#cf aware

Just wow.....I’ve just seen #fivefeetapart and it brings back floods of memories when I was young and was in hospital having IVs and us CFers were allowed to mix as the issue of cross contamination was not understood by science. I have to say you’ve done us justice @fivefeetapartfilm

I’m so grateful my wife doesn’t have Cystic Fibrosis as I couldn’t live without her, and I am so glad we can touch! I know it’s a rare scene CFers falling in love but today it’s also rare for CFers to become friends in real life within the UK as the issue of cross contamination is understood so deeply - giving another individual with CF a hug is impossible for us. Great awareness movie.

And the funniest thing was when I left the cinema I heard from a group of teenage girls “look there’s one”, like they’ve seen a celebrity 😂 but at least they know what we go though

When Five Feet Apart came out in cinema, I thought I was going to be a harsh critic being a Cystic Fibrosis patient but that wasn’t the case. To see my honest opinion about the film click on the link. Thank You!

Cross infection is a serious hurdle individuals with #CysticFibrosis face. #FiveFeetApart in cinemas can cause issues for CF patients. I’ve made a Safety Guide Video for all Cfers! To watch click on the link below 👇

👉youtu.be/sE-5q9WXPu0👈

Here is a great vid and some pics of Emily throwing out the first pitch on May 17! BIG night for Rock CF and Cystic Fibrosis!

Thank you Detroit Tigers for having us out and helping us celebrate Cystic Fibrosis Awareness Month!