#cftrust

#CysticFibrosis #CFaware

@fivefeetapart

A day of remembering and reflection. Not dwelling on the sadness and pain but remembering the amazing happy memories of a life once lived, never to be forgotten. Today would have been my late partner Tim and his twin brother Martin’s 50th birthday. Reaching 45 for Tim and 44 for Martin was an incredible achievement for the two, who from 18 months old lived with Cystic Fibrosis and all the challenges that the disease gives daily. They weren’t expected to make their 20s so the full lives they lived, achievements they made until their mid 40s defied the odds. Happy 50th Moose and Tronq, I am sure you are both enjoying a Gin and Drambuie Queen Mother styli wherever you are. ❤️🐴🐴🌈🐴🐴❤️#cftrust #livelifetothefullest https://www.instagram.com/p/CrjOWIlosv9/?igshid=NGJjMDIxMWI=

I'm so special this is the CF Trust 2020 registry. 14 (13 other people) have B. Cenocepacia. I'm special. Although it's down to 6 in two years.

#cftrust #tbsahconsultant https://www.instagram.com/p/CQN7KV6hyXf/?utm_medium=tumblr

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)

The time of year has come again for me to attempt to raise awareness for a condition I face every second of every day.🌹After finishing my first year of university I’ve come to realise just how much I depended on my parents when it comes to my health and how difficult it actually is to manage daily. I’ve also learnt that not every person I meet in my life is going to understand my health requirements and deal with it in a mature way; but that doesn’t matter because at the end of the day I have an amazing support network with family/friends who go to the ends of the earth to put up with me.❤️ Cystic fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and will eventually stop working properly. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who suffer from it. Possible treatments include: • Antibiotics to prevent and treat chest infections • Medicines to make the mucus in the lungs thinner and easier to cough up • Medicines to widen the airways and reduce inflammation • Special techniques and devices to help clear mucus from the lungs • Medicines that help the person absorb food better • Following a special diet and taking supplements to prevent malnutrition A lung transplant may eventually be needed if the lungs become fatally damaged. There is always extensive research happening into new treatments and therapies for CF sufferers but this can only carry on and progress through fundraising programs and donations from the public. Simply text 'CFTG14' and your chosen amount (£3/£5/£10) to 70070, call the Cystic Fibrosis trust donation hotline on 0300 373 1040, or, head to the link in my bio to donate.💛🌹 #cysticfibrosis #cf #cysticfibrosisawareness #cysticfibrosisawarenessmonth #cftrust #cysticfibrosisrelateddiabetes #cfrd @cftrustuk @cf_foundation (at Telscome Cliffs)