#avonex

Valentine’s Day marks 23 years with multiple sclerosis

At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days I was at a neurologist who was asking my mom and I if anyone in my family had MS. Having actually had optic neuritis about 6 months before and…

Neurologist was as expected

My doctor appointment went as expected. I will be continuing on Rituxan for the foreseeable future. There really is nothing on the market for me to change to at this point. The question about me getting worse, isn’t really a question, it’s more of a fact. That is what secondary progressive MS is, it’s steady decline or worsening of symptoms. That is what I have and they are really no drugs for…

I have to do bloodwork this morning. You think I’d be a lot less needle phobic with the amount of shots I’ve received over the years but I’m really not. I’ve from the earliest medicine for MS. I’ve been on Avonex, Betaseron, Rebif and even Copaxone. These are all medicines that required weekly or even daily shots that I had to learn to administer myself. For the first 12 years of my journey I had…

Christmas is a time of year to multiply thoughts of others and the merit and joy they bring to your life. I am blessed having family and friends who this year, truly stepped up to the plate when I needed it most after switching Disease-Modifying Treatment from daily Copaxone injections to weekly Avonex ones. Sure about the success of the upcoming reduction in self-administered pin holes in my…

Winner Best Blog Post 2018… Badabingbadaboom!

Badabingbadaboom.

In a world where neurodegenerative illnesses roam freely, the above expression takes on different meanings. Badabingbadaboom, because you happily jumped out of the shower because this time, you didn’t forget to shave your other leg. Or, badabingbadaboom on a more serious note, when tremor-filled days turn into steady steps forward, and painful eyes see what the future can still…

Ocrevus infusion side effect gone better than past medicines I took

Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that.