#ms difficulties

I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…

Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop…

Multiple Sclerosis no rhyme or reason

I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease.

A good example is when I was playing mahjong. I’ve had…

Trying to stop gabapentin, lesson learned

Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society)

I’ve been taking this drug for years. I’ve had it in a wide range of dosages from 100mg to 600mg. Probably about 4 or more years ago my doctor…

A horrible and humbling outing

My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a…

I was approved for a nursing aide

I’ve been so involved with the transition to Ocrevus, that I haven’t talked about that I was approved for the nursing aide by my insurance.The evaluator put the request in for 7 days but I really didn’t want an aide 7 days a week. I wouldn’t even know what to do with someone here that many days.  My caseworker told me, with the multiple sclerosis diagnosis, it is easy to get the increases if…

Forks over knives vegan Sheppard’s Pot Pie

I wouldn’t post a recipe I haven’t either tried or was about to try. I made this recipe this afternoon with the help of my daughter. It was a little difficult for hands to whip and mash with multiple sclerosis, so I enlisted a sous chef. I must say, as I was preparing this dish, i really didn’t have high hopes. I thought it was going to taste bland. I am happy to say, I was wrong. It was really…