#ms accommodation

I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…

Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop…

Urinary tract infections and MS

I worked in a nursing home for 13 years. I was in finance but I was in charge of the census daily. The census was how many people were currently in the home. It showed any new people that came in and anyone that left. It also showed diagnosis of these individuals. Urinary tract infection, UTI, would send more elderly people to the hospital than you could imagine. UTI in the elderly can actually…

Preparing for your neurologist appointment

There are steps recommended to prepare for your doctor appointment.

Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor.

Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant.

Have a list of all the medicine you are currently taking which should include anything…

Is one of the medicines working?

Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder.  What was more amazing was my stamina. I was able to get through each workout. Even though I napped all three days, I’ve been napping most afternoons when I haven’t worked out Anyway.

Done, done and done

Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018.  The all the headaches that it took me to get on Ocrevus and then all the headaches it took getting the infusion site, I’m happy to say I am done with this infusion. As expected, the infusion was smooth I had no allergic reactions of any sort. Other than being extremely tired from the Benedryl that…

I’m leaving on a jet plane

I’m all packed up and ready to go. My daughter Mikayla and I are going to Florida to visit my dad and stepmom.  I’m already exhausted and I haven’t even gone to the airport yet. My final morning items had to be packed all while watching the puppy. Zoey wasn’t being very cooperative to say the least. I just picked up the dog sitter now. I’m very lucky I have her. She loves my dogs almost as much…

When your MS progresses your assistive devices progress too

As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip…