Iāve now been on Ajovy for 3 years and my feelings are still decidedly mixed. Iām still at the 12/30 migraine days a month that I was at last year, and the Rimegepant has decreased the severity of those migraines even if it seemingly hasnāt decreased the number. So thereās some improvement, and I am so grateful to have as much relief as I have. Recently, Iāve even been able to start a (part time, online) training course which will hopefully get me a (part time, online) job at some point, which feels like a huge step.
However, it is frustrating that the progress I was having seems to have stalled here. The consultant at my annual review was surprised that I thought 12/30 migraine days was a good enough situation, but she said the reduction was still enough from my baseline to keep me on the medication, if I wanted to. I said, this is the only thing thatās ever worked for me, even a little, of course I want to stay on it. Since then Iāve been wondering if I should have been more pushy about asking what else there is to try. The trouble is, I donāt really think there is anything. This is the best we migraine medication weāve got, and even if it wasnāt, Iāve tried basically everything else. But maybe I should have asked anyway, maybe I will next year.
I havenāt been posting on this blog that much in the last year, partly because the migraines are not as all consuming as they once were, but also partly because I donāt really know where Iām at with it all. Thereās a certainty to being in pain that there isnāt to being sort of half recovered. Iāve also been dealing with other health things that I donāt currently have all the words for (peripheral neuropathy/parasthesia of as yet unknown cause), which is making the idea of ārecoveryā even more murky. Iām sure Iāll come back when Iāve figured out how to talk about any of it
