i just really want to add some from my own experience:
ask yourself, really ask yourself if youâre fine with plans being cancelled at the last second, cancelled mid-event, and for plans to often be âcome over to my house and lump on the couch with meâ - if you arenât? donât date somebody with chronic pain/fatigue. especially if you will take that sort of thing personally and/or hold it against the person. if you date me, you date my disabilities. i have to deal with them, so do you.
if you are grocery shopping with someone who uses a mobility aid like a cane or rollator, and that person is pushing the cart? DO. NOT. MOVE. THE CART. while they are using the cart, it is taking the place of their normal mobility aid and moving it is like moving their leg. DONâT DO IT. i have fallen in grocery stores more times than i want to think about due to an ex who couldnât get it through his head that THIS IS MY CANE RIGHT NOW and would just grab the basket and drag it somewhere.
if your date says âno, itâs fine, iâve got itâ when you try to do something? let them. just let them. my disabilities takes so much away from me, the things i can actually do are things i am proud of. it makes me feel better to be able to do things for myself. i detest nothing more than an able-bodied person INSISTING on doing something that i can do myself, even though iâve said multiple times that iâd prefer to do it myself. it says volumes on what that person really thinks of my abilities as a functional human, none of them positive. i get that youâre trying to help, but i promise, taking away what autonomy we do have? not helpful.
learn to tell your date beforehand what the date will entail. learn to look for the things your date would need to know. i had an ex that never factored in things like âwalking half a mileâ or âitâs a three story walkup with no elevatorâ because those things were no problem for him. i, on the other hand, would arrive at the destination crying from pain and unable to enjoy a damn thing - and exhausted in advance by knowing iâd have to repeat the journey just to get back home. donât be afraid to ask your date what things they need to have taken into consideration. ask what accessibility options are necessary for them when it comes to cane/wheelchair access, how much access there is to regular seating, how much walking will happen, how many stairs there are. if you go to a movie and the only parking is way in the back, ask if theyâd rather you drop them up front while you get a spot - because sometimes traversing a large parking lot is the difference between watching a movie and sleeping through it, or being too distracted by pain to follow it. by and large, we know our limitations and it means the world to have someone say âhey i want to take you to this exhibit, i think youâd really enjoy it! thereâs several stairs to the entrance and the wheelchair ramp is kind of obnoxiously far away, so itâs either a bunch of walking or deal with stairs to get in there, but once youâre inside thereâs a lot of comfortable benches and not a whole lot of walking.â because they thought about how you navigate the environment.Â
if your date is using a rollator or wheelchair, make sure your car (or whatever form of transportation you are going to be using) has space to put it. donât ask me out to the renaissance faire and then show up in a CRX and look confused when i say my rollator canât go in that so iâve gotta stay home.
BE. PATIENT. this shit is unpleasant enough for us already, the last thing any of us need in our lives is another able-bodied asshole making us feel like burdens. we canât do everything as quickly or as easily or sometimes at all. sometimes we need your help. sometimes we have to cancel plans. even big plans. even big expensive plans. itâs no fun for us either. sometimes we have to back out of shit halfway through because our bodies have absolutely hit the wall and have failed us. iâve had to abandon a cart full of groceries before and sleep in my car before i could even manage to drive home because my body just gave the fuck out with no warning. can you imagine? just for a second? imagine being young enough to still get carded for booze and your body literally collapses and you have to almost crawl to your car, sitting in the middle of the floor several times on the way. donât get frustrated with us, weâre doing our best. itâs just harder than you can imagine.