P.O.T.S. and Stripes

Literally everyone will ask if you broke your leg(s). Everyone. Even people you don’t know. Theyll ask a lot and think you’re extremely fragile.

bruises show up within the first day of rolling around, and they can really suck

people will try to grab your chair if they think you’re struggling and it can be hard not to snap at them for it

static electricity is a huge issue. You will probably either continuously shock your leg when you’re rolling around or do what I did today and zap someone so hard as you pass that both of you nearly keel over

people will call you out as a faker if you do anything even remotely fun ever on your wheelchair. Wheelies? Obviously your legs are fine lol not like you have to go down fucking curbs /s

puddles are the worst and if there’s a curb with a puddle all around and you have some ability to walk its a better idea to just stand up and navigate the chair than to fall backwards into said puddle

weird looks from people are inevitable, especially from people who don’t like you

bus drivers will often push your chair and give you advise you don’t want to hear, even if you tell them nicely you can push yourself. Its really hard not to get mad at them for it

no wheelies in school. Though if you do it in the elevator when no one else is with you you can’t really get caught.

speaking of wheelies, always be ready to throw at least one arm behind you in case you fall. They say tuck your chin in but its easier and more reliable to throw your hands back and keep your neck up so you don’t hit the floor. Sore arms are way easier to put up with than head injuries

don’t even bother to try and roll back up curbs. You will either be there for an hour or fall backwards. I managed to do both.

90% of classrooms that aren’t special ed are not very wheelchair accessible.

people will automatically assume you’re faking something if you’re not considered dumb enough in their standards to fit in with disabled students (aka high class ableism at its finest)

people are going to give you weird looks if you don’t suddenly start sitting with the other disabled kids

standard backpacks usually dangle way too much to keep on you easily, so try to pack light

built in storage on wheelchairs cannot sufficiently carry books

don’t try to hold an umbrella. Period. Especially not with your teeth. It doesn’t work.

don’t try to give the bus driver your ticket while you’re stuck on the ramp. And speaking of, its easy to start falling down the bus ramp so be careful, and when in doubt throw on the breaks

and finally if you’re like me pray to god you don’t go nonverbal when someone is trying to push you and you don’t want them to because it is hard to get them to stop if you can’t speak

As disabled members of the lgbt community we should be celebrating marriage equality, right? but unfortunately us disabled people who rely on government support to survive risk losing everything and becoming totally financially reliant on our partners if we marry or even move in together.

I can confirm that this is the way the system works, and it is absolutely intended for it to be this way. Our government will reach ridiculously far in order to absolve itself of its basic duty of care towards sick and disabled people, and it really doesn’t care very much about how it does it, whether that means throwing a sick or disabled person into abject poverty by denying them the financial aid that they’re rightly entitled to, or throwing two people into abject poverty for the sake of getting one of them off the DWP’s books. Like, they don’t care if you die, if it means they don’t have to pay you anymore.

Yes, because walking in my own house is different than walking class to class at school. I don’t carry a heavy backpack at home. I’m not on a tight schedule at home. I can sit on the ground at home. I can ask my parents or siblings to help me at home. I can crawl on my hands and knees at home. I can lie in the middle of the hallway at home. I can sit on counters and tables at home. I can bear a lot of pain at home. I can show that pain at home. I can collapse in the middle of crawling up the staircase at home.

You’re sitting at a cafe with your friend when suddenly a woman walks in with a toy poodle in her purse. The manager at the counter informs her “I’m sorry, but we do not allow dogs”. She replies with a heavy sigh and a “She’s a service dog. She can come with me”. Not knowing much about service dog law, and worrying about getting sued for asking further questions, he sits this woman down at a booth. There, she promptly unzips her purse and places the dog on the booth seat next to her. When the woman’s food comes out, the little dog begs and she feeds her bits off her plate. This dog is not public access trained, and proceeds to bark at those who walk by. This dog is a nuisance and causes many in the restaurant to complain. The manager cannot do anything but inform the unhappy customers that this is a service dog, so he can’t ask her to leave. In the end, it’s the customers who end up leaving.

Now I walk in with my highly trained service dog pressed against my leg in a perfect heel position, and I’m quickly bombarded by the manager telling me “No dogs! No dogs! We ALL know what happened last time”. Confused, I tell him “This is my medical alert and medical response service dog. Her right to accompany me is protected under federal law.” With a sigh, he seats me at a table far away from others where my dog promptly tucks under my feet, out of sight. When my food arrives my dog is still tucked tightly under the table because she knows she’s not supposed to eat when she’s on duty. She stays there ignoring those who walk past for the remainder of my meal. When we leave, a woman by the door exclaims “Woah, I didn’t know there was a dog here!”

See the difference?

Scenario number two occurs at a local grocery store when a man decides to bring his certified emotional support animal into the store with him. Upon entering he flashes a fancy ID card and certification papers. This dog is not as unruly as the first, but he still forges ahead of his handler, sniffs the food on display, and may seek attention from those who walk past. You find this dog adorable, and when he and his owner walk past you ask to pet him. The owner says yes and explains how all he had to do was go online, register his dog, and a few weeks later they sent him a vest, ID card, and certification papers.

Now I pull into the same grocery store. I’m in a rush to get an ingredient for a dish I’m making so I hurry into the store with my service dog next to me. I’m quickly stopped by a manager who demands to see my service dog’s certification card. Remember, this is NOT required by law, and most real service dog teams don’t have them. After 15 minutes of trying to educate, pulling up the ADA website on my phone, back and forth bickering, and drawing more of a crowd than I want to describe… I’m finally allowed in. I grab my ingredient, stand in line (where my service dog obediently moves between my legs to make space for those around me), and I get bombarded by people asking to pet my dog. I explain that she’s working, she has a very important job to do, and she’s not allowed to be pet while on duty. People walk away grumbling and complaining about how rude I was when other handlers like the man they met earlier allow their dog to be pet.