I donāt think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore.
She was gonna come over yesterday and I had to cancel. She asked if I canāt hang out later that day. When I said i wonāt feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and ājokedā that Iām just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her itās a normal thing for me.
āBut you got the diagnosis now, arenāt you better?? I thought youāll get better nowā
She was honestly surprised and it made me realize a thing. They donāt get it. They donāt get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That itās a forever thing. That that one day we felt good a week ago was just a bright spot and doesnāt mean we wonāt need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when weāre 70.
Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think weāre being dramatic and pessimistic.
And I donāt think theyāll ever get it, cause to get it you need to live it.
And I want my friends to stay healthy and not go through hell.
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