Jamie's Journey

Hey Everyone, Sorry for the “hiatus”. Things got chaotic but in a good way for the most part. In March 2023, I returned to Baylor in Houston and got the results of my bloodwork – My “Chromosome Microdeletion” is 15.21.1-15.21.2 (its rather small) and very rare. there is no other deletion exactly like mine, there are some that are similar, but I am a medical anomaly (as if I didn’t know that…

Who are your favorite people to be around? I have always been “a people person,” and I adore being around people, but it’s authentic people, not fakes. For a long time, I have been able to “read a person” by their body language and the way they talk. I can usually tell if someone is being genuine and sincere or just doing it out of “obligation,” So while I do enjoy visiting with anyone and…

The Lights of My Life Everyone has numerous roles they play in life. The roles I play “send light to people in darkness,” while for me, it’s just what I love to do. The roles I play are best quoted from a close family friend and her family, “Her role is comforter, supporter, friend, evangelist, sisterhood, etc., in our lives and we love her for it.” These roles, along with others, are very…

On Thursday, February 16, 2023, Mom and I traveled to Houston Texas and back. I had an appointment with Baylor Genetics. (THAT WAS A LONG DAY. Left home about 4:15 a.m. or earlier and got back around 4:30 p.m. at the latest.) In July 2021, I got diagnosed with Marfans syndrome by Oschner in New Orleans, they wanted me to go to Baylor genetics as they are the “experts”. it started with Mom and…

SuperBowl 2023: So tired of Hypocrisy!

Food for thought: Let me start this post by saying this: I did not watch the superbowl nor did I watch the halftime performance. I did however see the facebook blowup about it, calling it demonic and inappropriate, etc. People say that about the halftime performance for the last several years…. Let me start by saying this: TV IS NOT YOUR CHILD’s Babysitter! Social Media is not your child’s…

Goodbye 2022, Hello 2023

Update: the latest and somewhat greatest in my life…

Okay, so the last post I did was about Fortitude and public speaking events and such. well, right before my Guns Down Power Up event, I managed to hurt my ankle- It was so swollen and hurt bad. Not broken though thankfully. The diagnosis eventually was “Soft Tissue Swelling” because i had fell on it when my legs gave out (my disabilities make my legs give out sometimes.) Anyway, I ended up going…

Fortitude and what it means in my life

#college #LeadershipCommunication #disabilities #collegewithdisabilities #accomplished #disabilitydoesntLimit

I am not sure if I put on here that I was taking an online class for the Fall 2021 semester at UL Lafayette. I decided to take Leadership Communication thinking I would learn how to speak like a leader; Instead it was reading news articles and writing case studies, and learning different leadership styles; which can be helpful too I guess. I was disappointed at first that it wasn’t what I…

Life Update: Summer Special Needs/Inclusion Camp Proposal Idea

 This is a future endeavor for me once I graduate with my bachelors degree. For as long as I can remember, I have been passionate about special needs and disabilities, probably because It is what I know. At age 11, I started attending a Summer day-camp for special needs called Camp We Can Do. (I have previously mentioned my experiences at Camp we Can do- See older blog post titled: “Disability…

Genetics update: I DO NOT HAVE EDS; I Have Marfan Syndrome! 

 Talk about turning my world upside down!! LMAO..30 years thinking I had one diagnosis ( Ehlers Danlos syndrome).. Come to find out it’s a different connective tissue disorder, Marfan syndrome. LMAO 🤣🤣 My life is never dull.. it’s a roller coaster.. another loop de loop, turn in my life lol 😆I just got the diagnosis from the genetic testing, today!!! I am still in shock..30 years of lies!…

@apexgamzee @cassisanasshole