UNBELIEVABLE SUPER COOL OUTRAGEOUS AND AMAZING

As someone who has epilepsy and used to have several grand mal seizures a day, I’d also like to add that “offer help” can range anywhere from keeping the person calm to explaining to them where they are and what they were doing to even just telling them they should sit and rest for a while longer (lack or coordination is common, and it can be hard to walk straight or see clearly).

It’s okay for them to take up to a half hour to fully regain their bearings and sort out what they were doing prior to the seizure. Just answer any questions calmly and be there for support.

If they come around and you start to panic or shake them or ask them what the heck is wrong with them they are going to freak out and panic too.

I cannot stress it enough that this is bad.

DO NOT CALL THE POLICE. I’m dead fucking serious. I had a grand mal in public once and the POLICE were called and imagine coming out of the seizure, feeling like you got smacked in the head with a sack full of bricks, confused, dazed, in desperate need of some sugar to boost low blood pressure and some DIPSHIT has called the police and I was being threatened with being ‘drunk and disorderly’. It took a phone call to my doctors office to get them to back off. The police cannot properly deal with sick people. 

Offer help can be:

assuring person where they are/what time it is

getting them something to drink if they can; seizure burns so much energy and does cause a blood pressure drop

getting them safely to transport or a carer

getting them some dignity like a blanket/towel [loosing control of your bladder and bowels is fucking horrifying]

ensuring they have a way to get home. Someone who has just had a seizure should NEVER DRIVE straight after

calling emergency services if you notice any of these symptoms because they may have stroked out.

Why you shouldn’t put anything in someone’s mouth: they will choke. Yes, they may bite their tongue but I can assure you it’s less traumatic than cracking your jaw on someone’s greasy wallet or choking on a spoon.

Because PNES seizures aren’t caused by the same thing as epileptic seizures, they can look similar but people can be semi-conscious during them, generally do not lose full control of their bodies (bladder/bowels and other reflexes remain), and importantly, they can last longer than 5 minutes (even hours) without causing long-term damage.

The “do not call the police” point was especially vital for them, because people with PNES are more vulnerable to medical abuse by professionals who think they are “faking” because the seizure isn’t epileptic, and a person with PNES may have medical trauma from being treated cruelly by doctors, family members, etc. while seizing in the past. This study looked at stigma around PNES (also called functional seizures; I’m using PNES because its what my coworker called it):

Literature suggests that it can take years for patients to finally get a diagnosis of FS, but once they receive the diagnosis, it is often met with negative stereotypes and perceptions that lead to stigmatisation and treatment resistance. […] Moreover, with 34 of the 70 included data sources reflecting HCP [healthcare professional] stigma, one of the main themes that arose from this review illustrated the importance of HCPs’ acknowledgement and acceptance of their role in both perpetuating and reducing FS stigma. From our review it became apparent that HCPs’ negative attitudes towards patients with FS persist in the health community, often because of a lack of knowledge, general awareness, understanding and medical training with regards to this disorder

For my coworker, they expressed that one of the most important things for them was to just not be alone, to have someone verbally saying they were with them and it would be alright, and then to be supported according to their needs once the seizure ended. Their seizures were often triggered by stress, or from trauma triggers, so being treated with compassion, having their body respected, and having a calm environment during and after the seizure were very important.

I explained very clearly to the manager my issue with the meat section not having the price tags listed, and they claimed it was only going to be for the meat, since meat is by weight, and the price of each item is printed on the packs of each item.

Sure. That’s how they get their foot in the door. Fast forward not even two weeks, and here we are:

Bar codes. No prices, no item descriptions. No price stickers on the individual items. Heck, not even the name of the item that is SUPPOSED to be there.

No. The only way to see the price is to scan it on your phone app, which is also recording what you looked at recently, as a way of gauging what you might be looking for in the future.

So here’s what we’re gonna do gang:

Every time you go into a store that has implemented these price-less tags:

Take 1-3 items up to the cash register. Ask the cashier for the price, or hit the price check item on the self checkout, which will likely call over the attendant.

Express that you didn’t actually want it, you just couldn’t see on the shelf how much it was.

POLITELY, AND WITH A THANK YOU FOR THE PRICE CONFIRMATION, Give the items to the cashier or attendant to put back.

When they inevitably try to push the app, politely decline. If pressed for why not, say you don’t want to have to carry your phone in-hand the whole time you are shopping in order to see how much things cost. (Not having cell service or data to use the app is NOT a valid excuse, as stores already often have complimentary WiFi AND more stores will provide WiFi rather than give up on this push for surveillance pricing)

If it’s a shelf-stable item, the cashier will have to set it aside, taking up room in their limited operating space, and eventually pass it off to someone to put in a holding area to put back later. If it’s a fridge/freezer item, it might have to get tossed due to food product sale regulations.

In either case, you are making it a pain in the ass for them to have these digital bar codes. Tie up the checkouts. Give the employees more busywork that the company has to pay them to do. Hurt their bottom line having to toss the pint of ice cream you carried around in your cart for 20 minutes before giving it back to the cashier.