vampire enthusiast

As someone who has epilepsy and used to have several grand mal seizures a day, I’d also like to add that “offer help” can range anywhere from keeping the person calm to explaining to them where they are and what they were doing to even just telling them they should sit and rest for a while longer (lack or coordination is common, and it can be hard to walk straight or see clearly).

It’s okay for them to take up to a half hour to fully regain their bearings and sort out what they were doing prior to the seizure. Just answer any questions calmly and be there for support.

If they come around and you start to panic or shake them or ask them what the heck is wrong with them they are going to freak out and panic too.

I cannot stress it enough that this is bad.

DO NOT CALL THE POLICE. I’m dead fucking serious. I had a grand mal in public once and the POLICE were called and imagine coming out of the seizure, feeling like you got smacked in the head with a sack full of bricks, confused, dazed, in desperate need of some sugar to boost low blood pressure and some DIPSHIT has called the police and I was being threatened with being ‘drunk and disorderly’. It took a phone call to my doctors office to get them to back off. The police cannot properly deal with sick people. 

Offer help can be:

assuring person where they are/what time it is

getting them something to drink if they can; seizure burns so much energy and does cause a blood pressure drop

getting them safely to transport or a carer

getting them some dignity like a blanket/towel [loosing control of your bladder and bowels is fucking horrifying]

ensuring they have a way to get home. Someone who has just had a seizure should NEVER DRIVE straight after

calling emergency services if you notice any of these symptoms because they may have stroked out.

Why you shouldn’t put anything in someone’s mouth: they will choke. Yes, they may bite their tongue but I can assure you it’s less traumatic than cracking your jaw on someone’s greasy wallet or choking on a spoon.

Because PNES seizures aren’t caused by the same thing as epileptic seizures, they can look similar but people can be semi-conscious during them, generally do not lose full control of their bodies (bladder/bowels and other reflexes remain), and importantly, they can last longer than 5 minutes (even hours) without causing long-term damage.

The “do not call the police” point was especially vital for them, because people with PNES are more vulnerable to medical abuse by professionals who think they are “faking” because the seizure isn’t epileptic, and a person with PNES may have medical trauma from being treated cruelly by doctors, family members, etc. while seizing in the past. This study looked at stigma around PNES (also called functional seizures; I’m using PNES because its what my coworker called it):

Literature suggests that it can take years for patients to finally get a diagnosis of FS, but once they receive the diagnosis, it is often met with negative stereotypes and perceptions that lead to stigmatisation and treatment resistance. […] Moreover, with 34 of the 70 included data sources reflecting HCP [healthcare professional] stigma, one of the main themes that arose from this review illustrated the importance of HCPs’ acknowledgement and acceptance of their role in both perpetuating and reducing FS stigma. From our review it became apparent that HCPs’ negative attitudes towards patients with FS persist in the health community, often because of a lack of knowledge, general awareness, understanding and medical training with regards to this disorder

For my coworker, they expressed that one of the most important things for them was to just not be alone, to have someone verbally saying they were with them and it would be alright, and then to be supported according to their needs once the seizure ended. Their seizures were often triggered by stress, or from trauma triggers, so being treated with compassion, having their body respected, and having a calm environment during and after the seizure were very important.

Regular people: Wait, the King has easily stolen potatoes? How do I get in on this?

My sycamore tree began life in the gravel at the edge of a parking lot. If trees can feel pain, that is a painful, unlucky death. I carefully dug it up and put it in a pot I made out of a disposable cup.

Hello small one. This world may be cruel, but I will not be.

I decided to take care of it, not expecting it to survive, and when my sycamore tree unfurled one tiny leaf and then another, it chiseled a tiny foothold in my terrified brain, the kind of brain that doesn't remember a world before the atomic bomb and before 9/11.

I googled the lifespans of trees. My neurons had to stretch and expand to accommodate what I learned: My sycamore tree may live five hundred years. It's hard to think something so big. In twenty years, my baby sycamore tree will be three stories tall, and the home of many creatures. In five years, my sycamore tree will be taller than I am. In one year, it will be summer.

There's this concept called sense of foreshortened future where people who have lived through trauma can't conceptualize a future for themselves because deep down they don't expect to survive, When I look forward, all I see is fire and death, melting ice and burning sky. We were raised Evangelical. All we see is Judgment Day, except there is no heaven.

But now there is a tiny gap in the wall, a crack in the door of my cell

and on the other side, I see a tree

There is, in the future, a great old sycamore tree, full of clean winds and the stir of a thousand wings. A hundred years from now. Fifty years from now. There will be forests in that world. There will be a world.

It takes courage, but we have to imagine it.

Most tree species can live in excess of three or four hundred years. I think I'm learning something. I think there are ancient voices saying hello small one, touch the dirt and the leaves, for now you are part of something that cannot die

in 2030 I will be thirty years old and the world will not have ended and there will still be hummingbirds, and we will have photos of the stars more beautiful than we can now imagine.

I planted an Eastern Redcedar; they may live nine hundred years. There will be nine hundred years. The people in that time will remember us. Maybe we will meet the aliens (hi aliens!).

I will blow out the candles on many birthday cakes in a world where there are wolves in dark forests far from home. I am learning to imagine the future. I learned recently that elk were reintroduced to the Appalachian Mountains after over a hundred years of extirpation, and that they are expanding their range.

That tiny crack I can see through now opens a tiny bit more:

Maybe elk will pass through my hometown, maybe there will be a forest where the pasture is on the high hill that I can see from my home

say it, say it, say it: ten years, thirty years, a hundred years from now

I never wanna hear people say "AI Should be diagnosing cancer ever again".

So radiologists are becoming less able to judge the cases the AI won't judge, which are the ones that would harm its accuracy rating the most, less able to offer that magic touch (final human check) that keeps AI detecting cancer well with few false positives, and much slower, to boot.

Lied and said he was non-verbal

Lied and said he was incapable of communication

Lied and said he had not gotten the surgery of his own accord

Lied and said his "guardians decided [he] was trans"

Got MGT to call a procedure done on a consenting adult "criminal" just because he had cerebral palsy

Mass reported his video and his account, which he ran, until facebook terminated his account for "child exploitation" despite it being his account, him being an adult, and him not being exploited

Ableism and transphobia are inseperable. Just like ableism was used to prop up bigotry throughout history, now it is being used to deny transgender people bodily autonomy the same way it is used to deny disabled people bodily autonomy. It's not a coincidence that so much of the rights transphobic rhetoric is focused on labelling us as "mentally ill". They don't think any disabled people, let alone mentally ill people should have independence or liberation.

And after getting over my initial (rather emotional) response, I wanted to reply properly, and explain just why that hit me so hard.

So back around twenty years ago, the internet cosplay and costuming scene was very different from today. The older generation of sci-fi convention costumers was made up of experienced, dedicated individuals who had been honing their craft for years.  These were people who took masquerade competitions seriously, and earning your journeyman or master costuming badge was an important thing.  They had a lot of knowledge, but – here’s the important bit – a lot of them didn’t share it.  It’s not just that they weren’t internet-savvy enough to share it, or didn’t have the time to write up tutorials – no, literally if you asked how they did something or what material they used, they would refuse to tell you. Some of them came from professional backgrounds where this knowledge literally was a trade secret, others just wanted to decrease the chances of their rivals in competitions, but for whatever reason it was like getting a door slammed in your face.  Now, that’s a generalization – there were definitely some lovely and kind and helpful old-school costumers – but they tended to advise more one-on-one, and the idea of just putting detailed knowledge out there for random strangers to use wasn’t much of a thing.  And then what information did get out there was coming from people with the freedom and budget to do things like invest in all the tools and materials to create authentic leather hauberks, or build a vac-form setup to make stormtrooper armor, etc.  NOT beginner friendly, is what I’m saying.

Then, around 2000 or so, two particular things happened: anime and manga began to be widely accessible in resulting in a boom in anime conventions and cosplay culture, and a new wave of costume-filled franchises (notably the Star Wars prequels and the Lord of the Rings movies) hit the theatres.  What those brought into the convention and costuming arena was a new wave of enthusiastic fans who wanted to make costumes, and though a lot of the anime fans were much younger, some of them, and a lot of the movie franchise fans, were in their 20s and 30s, young enough to use the internet to its (then) full potential, old enough to have autonomy and a little money, and above all, overwhelmingly female.  I think that latter is particularly important because that meant they had a lifetime of dealing with gatekeepers under our belts, and we weren’t inclined to deal with yet another one.  They looked at the old dragons carefully hoarding their knowledge, keeping out anyone who might be unworthy, or (even worse) competition, and they said NO.  If secrets were going to be kept, they were going to figure things out for ourselves, and then they were going to share it with everyone.  Those old-school costumers may have done us a favor in the long run, because not knowing those old secrets meant that we had to find new methods, and we were trying – and succeeding with – materials that “serious” costumers would never have considered.   I was one of those costumers, but there were many more – I was more on the movie side of things, so JediElfQueen and PadawansGuide immediately spring to mind, but there were so many others, on YahooGroups and Livejournal and our own hand-coded webpages, analyzing and testing and experimenting and swapping ideas and sharing, sharing, sharing.  

I’m not saying that to make it sound like we were the noble knights of cosplay, riding in heroically with tutorials for all.  I’m saying that a group of people, individually and as a collective, made the conscious decision that sharing was a Good Things that would improve the community as a whole.  That wasn’t necessarily an easy decision to make, either. I know I thought long and hard before I posted that tutorial; the reaction I had gotten when I wore that armor to a con told me that I had hit on something new, something that gave me an edge, and if I didn’t share that info I could probably hang on to that edge for a year, or two, or three.  And I thought about it, and I was briefly tempted, but again, there were all of these others around me sharing what they knew, and I had seen for myself what I could do when I borrowed and adapted some of their ideas, and I felt the power of what could happen when a group of people came together and gave their creativity to the world.

And it changed the face of costuming.  People who had been intimidated by the sci-fi competition circuit suddenly found the confidence to try it themselves, and brought in their own ideas and discoveries.  And then the next wave of younger costumers took those ideas and ran, and built on them, and branched out off of them, and the wave after that had their own innovations, and suddenly here we are, with Youtube videos and Tumblr tutorials and Etsy patterns and step-by-step how-to books, and I am just so, so proud.  

So yeah, seeing appreciation for a 17-year-old technique I figured out on my dining-room table (and bless it, doesn’t that page just scream “I learned how to code on Geocities!”), and having it embraced as a springboard for newer and better things warms this fandom-old’s heart.  This is our legacy, and a legacy the current group of cosplayers is still creating, and it’s a good one.  

OP also invented armsocks.