carry me

self proclaimed schizoposter nervously typing '911' into their phone and hovering their thumb above the 'call' key as they hawkishly watch a disheveled guy at a bus stop make repetitive movements and ramble to himself

You know what lemme just come back to this post because I (physically disabled, joint pain, cane user) was on a full train last night with the biggest heaviest backpack you could imagine bcs I’ve just become homeless and I was on my way to a friends house. I tried to ask people for a seat and got flat out ignored. Nobody would even look at me. It got to a point where I was literally shaking crying sobbing dry heaving resorting to begging “I’m really sorry everyone but can someone please give me their seat I have joint problems I’m in a lot of pain”, speaking to people directly “excuse me but you’re in priority seating and I’m disabled and I really need to sit down” and the only person in the whole train who would even LOOK at me while I was wheezing and clutching my stomach and sweating about to pass out in some of the most rancid pain I’ve ever felt in my life. was an old disheveled guy with a tic who was mumbling to himself. and he quietly tried to console me and convinced me to just sit on someone’s suitcase. I hope all the unnatural hair coloured pierced 20 somethings on that train that night ESPECIALLY never know peace for the rest of their fucking lives

You seriously can’t call yourself a leftist or a progressive or whatever if you can’t treat other people like actual human beings. I’ve had disheveled people who a lot of ppl would assume are homeless, be quicker to offer me a place to sit on a train than 20 somethings with unnatural hair color and “Be Gay do Crime” pins and stickers do that (esp when I injured my ankle coming back from work nobody except a mumbling elderly lady offered me their seat). They’re also not the ones who threaten to call cops on me when I’m taking foodstuffs from grocery stores! You can post about anarchy and being progressive and unhinged all you want but the fact that you would treat people who are physically disabled and in poverty this way makes you just as an awful person as anybody else

File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.

reblog bc the non activities thing seems really important words

I get X number of pain-free steps per day right now, which means that, for large conventions (like SDCC), I need to be in a mobility device.  I had someone ask if I used up my steps every day before transferring to the scooter, and look surprised and a little horrified when I said “no, I save them so I can go to the bathroom unassisted.”  Like, they had never considered that walking is involved in peeing.

!

Reblogging for the important point that the term “activity” may mean something very different and much broader for a disabled person with a chronic pain or fatigue related condition compared to its meaning for a non disabled person. If you’re tired enough, simply sitting up in a chair rather than lying in bed is an activity that drains energy otherwise usable for other things. A thing I knew from other people with pain and fatigue related conditions, but worth reinforcing for followers who didnt know or had forgotten.

How do any of you earn things?

We don’t, it’s almost like disability puts us at risk of poverty or something.

when you’re disabled, your entire life is a trade-off; every decision is a cost-benefit analysis where the cost is a body in pain, and the benefit is participation in society.

Just wanted to say thank you to the chronically ill and disabled who share their vulnerabilities and feelings here. You help make this chronic illness trip a little less lonely.