Crazel's reblog account

animated the "It's okay not to smile" scene from chapter 4

Hey y'all -- I'm making this post on behalf of Sami and his family, who are currently suffering in Gaza. You can find their fundraiser here. I think we can all do more for Gaza, more for others — you don’t want to move through the rest of your life with the regret that you didn’t help when you could have. We've all wished for someone to be there for us in a time of need, and we can be that for other people.

One day I'll write about what it's like to grow up knowing you might have a terminal, incurable illness, and not be allowed to test yourself because "it's such a serious decision" they don't want it hanging over you until you're an adult (as if it doesn't hang over you as you witness a parent die, and know you've got 50% chance of inheriting the same illness--as do your siblings). One day, I will talk about how, in the fear of traumatising children with the knowledge they might be incurably, terminally ill, they also took away their right to decide over their bodies to a degree that is traumatising. One day.

But today I am going to cry. Because it's over. Because no child will ever have to go through the same uncertainty, because at least they will know there is a treatment option available. A treatment option that one of my siblings might come to rely on. With all the shit things happening around us, my childhood hope and dream have been realised. That's got to count for something.

It's such a terrible disease. This procedure is technically difficult and the surgery/infusion takes a long time but it is EFFECTIVE and reduced progression by 75% with surprisingly few side effects, and it's expected to be permanent.

my friend's 5 year old recently got a toy veterinary medicine set - it's super cool, like one of those mini play kitchens a lot of kids have, but it's set up to pretend to be a vet (it's this thing) - it has stuffed animals and things to weigh them, give them medicine, take x-rays, write on their charts, etc.

so this kid, who is five and to my knowledge has no experience in the administrative bureaucracy of modern healthcare, puts a stuffed pig named Piggy on the exam table. she pretends to draw blood from Piggy using a fake syringe, and the blood goes into a toy test tube vial that she calls "the resulter"

i'm playing with her, right, so i'm like, awesome, what are the results of Piggy's blood test? and she says "we have to send it to the scientists." so we send the vial to the scientists (put it in her bedroom) and when we get back to the vet playset i'm like awesome what did the scientists say? and she says they have not gotten back to us yet

so she rolls her eyes, exasperated, and says we have to call the scientists. she pretends to call them. apparently, they tell her that Piggy's blood test is "at the bottom of the list" and "we have to WAIT." she frowns. we wait a bit longer and call them back. they tell us it will be a while! she says we should go ask the scientists in person so we go back to her bedroom and she inquires at this imaginary lab, at which point the scientists yell at her and tell her now they will make us wait even longer!

keep in mind she is 100% directing this play. she is making all this up. she is fully in control of this game, and she has decided that what we are going to pretend is that we are dealing with this exhausting nonsense, not actually treating Piggy.

finally the blood tests come back. they are inconclusive. the scientists do not know what is wrong with Piggy. the little girl walks back to the stuffed pig on the exam table, sighs deeply, and says in a very serious voice "we can never help you."

i'm obsessed with this kid. when given complete control over a make believe scenario, instead of becoming the heroic rescuer administering effective cures, she is instead a beleaguered vet making multiple calls to an overworked lab only to be left unable to help her patient.

He was found hanging from a tree on the Delta State University campus on September 15th at 7 A.M with the police suggesting it was a suicide. The problem with that is the student body, which has stated that he suffered from both arms and legs broken and suspecting it to be a lynching.

No major media outpost is talking about it. There are no flags hung at half mass for him. Hell, there's not even gonna be an investigation, and that not okay. Not to his family, not to his friends.

-Shot while saying that gun violence wasn't a problem

-While standing under a banner reading "Prove Me Wrong"

-After posting "Play certain games, win certain prizes"

-By a shooter from a rival right wing terror group

-Who engraved his bullets with memes

-And would have gotten away scott free because the investigators were being led by two former podcast hosts

-Except he decided to brag to his family about it

-Causing everyone fawning over Kirk as some kind of martyr to immediately shut the fuck up

-To the point where the President went in less than 24 hours from "he was like a son to me" to "Charlie who?"

“Wow that adult was being a jerk”

“That sounds really frustrating”

”Good job handling that, I would have lost my mind”

“It’s cool, I don’t expect you to remember me”

“You don’t have to hug me if you don’t want to”

“Yeah sometimes (authority figure you can’t avoid) doesn’t know what they’re talking about, it’s not your fault, just do your best”

“I don’t totally understand what you mean but I get that you’re upset, is there anything I can do?”

”Wanna go yell and break stuff with me?”

“You don’t need to be friends with that kid as long as you can still be polite”

“If an adult tells you to do something that will get you hurt, you don’t have to listen.”

“My number one goal is to keep you safe, but I don’t know everything and sometimes I’m wrong, so let me know if I make a mistake.”

“Man. Today sucked.”

“Yeah I also kinda wanna cry right now”

“Whoops, yeah, my bad”