Chronically Positive

look at how beautiful @adelaadeela looks😍 she headed out on a travel in her chair! i hope you had a great time doll🌱🌿🔆 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rare

look at how beautiful @adelaadeela looks😍 she headed out on a travel in her chair! i hope you had a great time doll🌱🌿🔆 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rare

look at how beautiful @adelaadeela looks😍 she headed out on a travel in her chair! i hope you had a great time doll🌱🌿🔆 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rare

look at how beautiful @adelaadeela looks😍 she headed out on a travel in her chair! i hope you had a great time doll🌱🌿🔆 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rare

🔆Yellow is the colour of Mental Health Awareness Week🔆 - #endthestigma #chronicfatigue #chronicillness #mentalhealthawarenessmonth #mentalhealth #mentalillness #mentalhealthawareness #mentalhealthawarenessweek #positivelyspoonie #disabledandcute #anxiety #depression #bipolar #schizophrenia #gad #generalisedanxietydisorder #bipolardisorder #depressionquotes

Hiii! this account is having a full makeover!🌸🔆 - while still being for awareness, i'm going to be making it more personal, and being more active as myself, rather than keeping it away from myself! - my name is Amylou, known as Sunflower, Sunny or Ames to many🔆 my personal is @chronicallyamylou and my blogging one is @chronicalsunflower 🌻 I have over 15 chronic illnesses and will be revamping this account! I look forward to sharing this all with you🔆💗 - ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rared

Remember to take your meds today💕🌱 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rared

Spoons must be in the dishwasher because I JUST cannot move today🔆🌝 Who else has chilled out this fine monday?🍃🌼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease #rared

We have forged a NEW hashtag💕 Most general spoonie hashtags don't work OR many just use to like posts, rather than actually engaging/finding accounts we enjoy! ---- I have created #positivelyspoonie. This is a hashtag for those who wish for other spoonies to engage with their content. Maybe you're an awareness account. Or maybe you're a blogger. Or maybe you want to see more content that you can comment on/find spoonie friends. Using #positivelyspoonie can do that! - If you use it, PLEASE click on it and go through and see who else has used it too! And share this post/our story with your spoonie friends🌼🌱 - #invisibleillness #invisibledisability #endthestigma #invisibleillnessawareness #pcos #womenshealth #periodpain #invisibleillnesswarrior #chroniclyme #ibs #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #ckd #mentalhealth #spoonie #spoonielife #chronicillness #chronicpain #endometriosis #chronicfatiguesyndrome #autoimmunedisease

#Repost @endomarchireland with @get_repost ・・・ #endometriosis #eai #endofacts #expertpatient #Ireland #EndoMarch #inmheatróis #awareness #EndoAdvocate #NoFakeNews Help us to share accurate information on endometriosis. Join us to learn more about your endometriosis and how to manage it. #endometriosis #eai #endofacts #expertpatient #Ireland #EndoMarch #awareness #EndometriosisAssociationIreland #expertpatient #inmheatróis

#Repost @thechronicills with @get_repost ・・・ INVISIBLE ME... Would you believe that these two photos were taken just a day apart? The one on the left was from one of my closest friend’s bachelorette party. The one on the right was taken the day I met my cousin’s baby daughter for the first time. What do they have in common? Well, behind my smile, in both pictures, I am hiding unimaginable neuropathic & muscular-skeletal pain. I am on heavy opiate pain killers as well as anticonvulsants, muscle relaxants, SNRI & steroid based medications. In both I am sad. I am lonely. I am isolated. I am feeling despondent. Amazing what a bit of makeup can do, right ladies? “But you don’t look sick.” We’ve all heard it. And we’re all acutely aware that our outside appearance doesn’t always match what’s going on internally. Society, the majority of the medical profession & even US OURSELVES seem fixated on what is visible. It’s the very reason I was/am able to slip seamlessly in & out of society, despite having a diagnosed, recognized disability. I realize & acknowledge that to those who are permanent/semi-permanent wheelchair or visible medical apparatus users, just how privileged that may come across. That said, having an invisible disability comes with its own set of frustrations. I am disabled. And that’s ok. It’s a word that used to get stuck in my throat but the further I travel along this road of advocating for invisible disabilities, the more I embrace it. And you know what? I feel proud. Yes I am disabled and I still live a worthy life deserving of love & happiness. But why do you think it is that we encounter so much skepticism & backlash for not looking “sick”? What does “looking sick” even look like, exactly? Is there a certain, acceptable ‘level’ of sunken eyes/pallid skin that would earn each of us the compassion & empathy of society as a whole? While spending the past year researching invisible illness/disability for the documentary I am currently making, I’ve still not been able to find the answers... I know people are being kind when they tell me that I “look great” despite what I’m going through physically. I know it’s intended to make me feel better, but it..

#Repost @spoonie_village with @get_repost ・・・ Hey lovelies, last couple of days have been rough to say the least. To be honest since January my CFS/ME has really been putting me though my paces. I’m posting this because lately I reverted back to the “I’m fine” answer because let’s be honest sometimes it’s just easier than explaining that same thing over and over to the same people. I know they mean well but sometimes I just get sick and tired literally of being asked how I am, because if I was honest I know that a) most people wouldn’t know what to say b) often they see me like once in a few months so it’s politeness more than general interest and c) it’s usually followed by I “wish you were feeling better” or “can’t wait to have the old you back” or “it’s so unfair you’re still sick” or for me the worst “but you’re looking so well/so much better”. I know people mean well, and it can be hard to find the words sometimes but I just really feel the need to get this off my chest here because I know many of you will just “get it” and have your own experiences with it. I think whether you’re living with these types of illnesses or not we all go just revert to “I’m fine” because this day and age often asking how someone is seems to have just become an automatic start to a conversation but when the honesty comes out and you do express how you are, all too often people aren’t really prepared to deal with an answer they too are just waiting for an “I’m fine” so we can get on with the conversation as it were, when in actual fact that should be the very conversation we focus on and have. Didn’t mean for this to get this ranty haha but just something I’ve been thinking about for a while. What do you all think? Do you just say fine too most of the time? #spoonievillage #imfine #butnotreallytho