All of my Spoonie Student Resources - Updated Spring 2018
For my student followers (and anyone else who could benefit from this info).
We’re (for the most part) a few weeks into our semesters now, so I thought it would be a good time to share some spoonie student resources. I’ve written quite a bit on these topics over the past few years, so it feels relevant to collect all of that info in one place. So, here we go, all of my spoonie student resources/advice, organized by category.
general advice on studying and academics
a collaborative list with concussedperspective
A professor’s wise advice: “You don’t get extra points for trying extra hard.”
How do I study math with chronic pain?
Communicating with Professors and others:
“Brief” guide to talking to your professors about your chronic illness/disability (I called it brief, but it’s actually rather long…)
Communicating chronic pain in educational settings
Reflections on how I learned to communicate my pain and disability
Remember to say Thank You
Remember your perspective is not universal
Dorm living and roommate advice
dealing with sensory issues on campus
A more-portable shower chair alternative
Dealing with the Disability Services Office:
What are my accommodations?
Do I use a testing center?
How did I get a reduced course load?
Productivity & Time Management:
For students with sleep disorders
Why Accommodations Matter (also a bit of a story about how things can get better as a disabled student)
general advice on picking a school
reflections on disability services during my graduate school search
affirmations that I used during my grad school search
Educationally-relevant Assistive Technology:
pencil/pen grips from hair curlers
Overview of speech-to-text tools
Options for computer input: pointing devices (part 1 & part 2)
Workrave: a tool for managing computer use time
my study space (from my old apartment, features several pieces of assistive tech)
AT you shouldn’t buy (because you can get it for free!)
Using low cost eye-tracking to write computer code
Walk-aid Scooter review (great for me on campus!)
request for disability-related meeting at beginning of semester
textbook info request template
Online training I couldn’t complete
Asking for a shuttle schedule
Email I drafted for a fellow spoonie returning to classes after surgery
I’m sorry I can’t stay awake!
Basics: what are oral exams and why might they be a good accommodation?
General advice on prepping for oral exams
How do math exams work with process vs. theory?
Do I prefer written or oral exams
Art & Other Reflections on Academic Ableism
“All students are welcome here”
Intro programming text is super ableist
Ableism in systems vs. people
Accommodations don’t remove disability
Some personal experiences & reflections that may help you feel less alone:
Bureaucracy at a new school (and a follow up!)
Non functional door openers
Non accessible IT resources
Poor accessibility on campus
Elevators and invisible illness/disability
Scholarships and reduced course load
Brainstorming academic accommodations pre grad school
Some reflections on academic ableism
ableism in grad school search
yep, I had a research meeting in my pajamas
writing from a place of frustration: should I be a student?
Reflections on negative experiences with disability services
You know you’re a chronically ill college student when… (an attempt at humor)
Mad at my professor for being insensitive
Please feel free to share this (and/or any of the posts linked here) if you find it helpful!
Also, if there are other topics you’d like to know (more) about, feel free to send an ask. (No promises on when I’ll have time to write a full post, though.)
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