having tics is like having a controller with stick drift or a buggy button

ā
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@ticcing-time-bomb
having tics is like having a controller with stick drift or a buggy button

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Dysphoria Hoodie is so real but can we give a round of applause to Autism Hoodie?
u were always there for my autistic ass when textures were awful, the world was too bright & loud, eye contact needed to be avoided, and i didn't know what to do with my hands. u even let me use your pullstrings as a stim toy. truest ride or die bestie i'll ever know š«¶šš«”
"they're the same hoodie" that is FREQUENTLY CORRECT
IM SO GLAD WE ARE IN AGREEMENT.
The hoodie is wear in middle school and highschool because I was dysphoric also happened to be the only hoodie I could wear that day that didn't make me feel like ripping off my skin and also the only hoodie that could successfully cover my eyes to block out the florescents because they wouldn't let me wear my prescription sunglasses and when I wanted to sleep I'd just pull my arms inside and hide in it inside the library.
sorry this addition made me so ANGRY on your behalf, remembering how schools inflict such absolutely TORTURE on students with sensory issues and health issues in general. and it all ties in to lack of childhood bodily autonomy.
it is absolutely insane the extent to which school students aren't allowed to take care of their basic bodily needs such as:
controlling their water/food intake (the fact kids have to ask permission to drink water is INSANE)
hearing protection for kids with noise sensitivity
light protection for kids with light sensitivity
(seriously what the FUCK is up with controlling kids wearing hoods/hats/sunglasses during class)
removing themselves from a hostile environment (having to ask permission even on the verge of meltdown to step out of a room/situation that is actively causing them pain)
not having every minute of their day scheduled and supervised on a level akin to literal prisoners (hint: we shouldn't be doing this to people in prison either!)
having a basic level of goddamn privacy
going to the fucking bathroom!!!
it is VILE how often school systems reject the basic human agency of their students. it causes devastating harm, and disproportionately impacts vulnerable students.
So many students are forced to experience PREVENTABLE daily pain and discomfort resulting in long-term health issues and disability because their basic needs are ignored and trampled on by adult authority. There is no world where this is an acceptable norm.
Considering Tourettes isn't actually that rare, I feel really alone in person.
I know lots of people with Tourette syndrome but I don't know anyone. Plus all of those individuals are online.
It'd be so nice to have a Tourettes friend. A close one š
NO REBECCA YOU DONT HAVE TICS BECAUSE YOU SHIVERED ONCE NO YOU DONT HAVE TICS CUZ YOU āCOULDNT CONTROL YOUR LAUGHTERā AND NO YOU DONT HAVE TICS BECAUSE YOUR EYE TWITCHED SO SHUT YOUR MOUTH AND STOP DIAGNOSING YOURSELF AFTER SEEING A SINGLE TIKTOK MADE BY AN UNEDUCATED 12 YEAR OLD
I think parents don't understand how punishing a child isn't for when they make you upset, it's for when they do something wrong. Like, you don't just punish them for stress relief, it's so they can learn right from wrong.
So if your kid learns, for example, that helping mom make dinner = getting in the way, but not helping = being lazy, but asking if mom needs help = being annoying and asking stupid questions, then you have basically trained a person to see the only option that doesn't lead to scolding as 'hide and don't be thought of until dinner is done'. So now what relationship is your kid going to have with cooking or cleaning or chores in general? How is that going to affect them as an adult?
If there is no right answer regarding the things that bother a parent, then your kid is going to associate those things with being punished no matter what they do. If talking during a car ride is bad and annoying, but being quiet and staring out the window is bad and disrespectful, then what are they going to do every time they're in the car with you but count every word they say? If texting is suspicious, but why don't they have friends, but going out with people is irresponsible, but why don't they ever leave their room, but their friends are all bad influences, but why did they stop hanging out with them, they were nice kids, then what are you even doing?
If playing video games is lazy, going outside is unsafe, playing is ignoring chores and doing chores is being in the way, then YOU'VE CREATED A CHILD WHO'S LEARNED THE ONLY WAY TO AVOID BEING SCOLDED IS TO DISAPPEAR WHENEVER YOU'RE IN A BAD MOOD! You've created a person who is hardwired to feel guilty no matter what they choose to do. You turned them into a confrontation ninja, who can vanish as soon as a hard conversation enters the picture. You've trained a person to disregard why rules exist and instead focus on who they can placate and suck up to in order to make the rules change. Because to them, rules and punishments are just who gets on the bosses nerves at the wrong time.

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You are not unlovable
you are not broken
you are not a failure
your brain chemicals are just messed up. you're doing amazing, don't let the dark thoughts possess you.
Needed this today š
Does anyone else with Tourette's get massive random surges of premonitory urge that no matter what you tic it won't calm down? It feels like there's flaming electric ants crawling around in my veins all around my body. It's so incredibly horrible and painful. But it isn't like any other type of pain, it's a unique kind of pain specific to this. I hate it so very much.
I get this regularly, unfortunately :( especially when Iām low on sleep or extremely stressed and close to physical burnout
I've been disabled for almost 29 years. Here's what I've learned.
Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.
If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.
Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.
Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.
Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.
Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.
Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".
If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.
Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.
Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.
Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.
If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.
Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.
High-top Converse are good for weak ankles. I almost exclusively wear them.
You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.
Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.
You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.
Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.
If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.
Feel free to add on what you've learned about disability!
If you have memory problems, brain fog, or executive functioning issues, it doesnāt help how many hints, coping mechanisms, and tools you learn if you canāt remember what they are, or muster the brainpower to choose which one to use. Make a flowchart, a list of if-then statements, whatever you need, and print out copies of it and stick them up around your house in places where you find yourself being the most incapacitated (bed, couch, etc) so when you need it most, all you have to do is look over at it and boom- past you already figured out what you might need in this scenario and the answer is there!
this is my own flowchart I made for managing executive dysfunction and task initiation with ADHD. Itās *really* complicated so might be too overwhelming for some folks, I just like it like that myself because itās thorough! I have this printed out in multiple places around my home that I tend to get stuck.
Set reminders on your phone to refill your scrips as soon as you can do so. This will get you a few extra days of meds a month. Set those aside to cover your ass during delays.
Your pharmacist may be able to help you move things around so all/most of your monthly things can be done at once.
Keep a list of your meds on your phone. If you're worried that this particular provider is over sensitive and it might make you look overprepared, you can always drop in a line about how your your friend or relative insisted you do it, haha, but it really has made things easier.
Keep a list of every medication you have been given, when you started it, when you stopped taking it, and why you took it and why you stopped. This is especially useful if you are trying out different medications, like for depression or ADHD or whatever, and you wind up trying two or three or five different things in a relatively short period of time. You think you'll be able to remember the first one or two and don't need to write it down, but trust me, it is very possible he will need that information and not be able to remember it.
Jot down any phone call you received or place, and the name of who you spoke to, and what time the call occurred. Make a note of what was said.
Yes, bring people to appointments.
Have people there when you are on the phone if possible.
You can introduce them as your advocate, if you think that might be advantageous. This works better on the phone, where they should introduce themselves. In person, they should be dressed nicely, even if you look like crap. They don't have to talk for you, just be there. This made a huge difference when resolving my boyfriend's major issues at a psych clinic.
If you bring someone to an appointment and want them to come back with you, go up to the front desk and ask for a release that will allow them to do so. Some places aren't super strict about it but you still want them on the record for phone calls and such. Other places, such as GAC and reproductive health clinics, can be a lot stricter (for good reasons) and you will absolutely need the release.
Always ask how long a medication will take to work, and how long you should wait before contacting them if it doesn't seem to be working. This is an extremely helpful thing to know but they often don't remember to tell you.
When trying to get a bureaucratic problem fixed, always act as though you are just so glad to be speaking to THE person who can help you. Act as though they are the solution, make them feel appreciated. If all they can do is refer you to someone else, brilliant, they still did you a tremendous favor! I know it's really hard to be polite sometimes, but if you have a beef with a clinic or insurance company, but not the person you were speaking to, it doesn't pay to be actively rude. Even if you do have beef with the person you're speaking to, it still doesn't pay to be rude.
When dealing with red tape, always ask what the next step is, and whether you need to do it or whether they will do it for you. Know how long it should take something to be done, and check back in when that time arrives. Even if you have a really great relationship with a clinic, this is such a helpful thing to do for both of you.
Record all phone calls. Talker ACR and Talker ACR Helper, used together, will let you. Download them from app site, stores don't have them. Obviously, don't do this if it's illegal where you are. This is incredibly handy for reference, if you need to go back and check who you spoke to, ask a friend for an opinion, or see if they really said that absolutely batshit thing you think you heard them say.
If you are treated poorly and feel that you can do so safely without compromising your identity in a way that will lead to further poor care, leave bad reviews on major review sites, and encourage other patients to do so as well, if you know anyone in the same position. Google reviews are actually useful to people, they are one of the first places people check, but there are physician review sites as well. Leave reviews there. If you have multiple other patients leaving reviews, over time you can tank a clinic's rating. (Obviously do not have your entire friends group leave negative reviews over the same incident. That will lead to what you say being dismissed, and on some sites removed altogether.) If it prevents even one person from wasting their time or getting hurt, it's worth speaking out, especially if the issue is bigotry. I have avoided clinics and providers where homophobia/transphobia/fatphobia was mentioned, and considered that a bullet dodged.
With reviews, be clear right up front in the first line whether it was clinic staff or the provider that was the issue. Providers often work at more than one facility, so if you find out that this is the case it's perfectly acceptable to leave a bad review for them at that facility as well. I keep track of the couple of people who openly verbally abused me or who almost caused me harm, and make sure that bad reviews follow them wherever they go. Be aware you may be burning bridges, use discretion and possibly an account that is not attached to your real name. If there were identifying features to the encounter and you don't want them to know it was you, do not include those, or disguise those in a credible way. You can also wait a while. If they leave a response with the number of a clinic manager, consider calling them back. It isn't always helpful, but it can be super helpful if the clinic manager was unaware of what's going on.
Filing complaints with state licensing boards typically isn't difficult. Consider doing so if something truly egregious happened. Also, you can typically check medical licensing boards to see if there have been complaints filed or measures taken against a particular provider. Different kinds of provider may have different licensing boards, make sure you are looking at the right one for the type of provider you are seeing. If the professional does not appear on the licensing board website you may need to check a different organization, or even in a different state. The licensing boards are typically made up of medical professionals, so they are less likely to rule in favor of the patient than if they were patient-led as they should be, but a pattern of behavior, once established, can lead to future action and help others.
Do not threaten legal action. If that's the route you want to take, move in the shadows. If there's going to be a lawsuit, they should hear about that first from your lawyer. Don't give them warning, don't telegraph your actions. This is what a lawyer told me, so I'm assuming it's good advice.
That said, super politely asking for the name of the clinic manager or for regional/corporate headquarters can get things moving. It's a little aggressive, so take care with how you go about it, but a couple of times when I was in dire straits it was the only thing that got things done.
Good luck!
for the first one, what if the pain (for crossing your legs) is like
very subtle but still there
I've been disabled for almost 29 years. Here's what I've learned.
Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.
If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.
Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.
Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.
Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.
Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.
Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".
If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.
Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.
Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.
Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.
If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.
Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.
High-top Converse are good for weak ankles. I almost exclusively wear them.
You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.
Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.
You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.
Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.
If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.
Feel free to add on what you've learned about disability!
Credit: @pet_foolery
I think I already reblogged this but im gonna do it again because this is a good reminder on how toxic gatekeeping it.
Iām reblogging this for the amount of thought that was put into figuring out the necessary configuration for a mertaur wheelchair.
MMMMM, the LAYERS to this.Ā
Sheās technically a monster too. She might not look it at first glance and seems mostly human, but it isnāt deniable even despite her looks compared to the other monsters.Ā
But she realizes that she is still not like the rest of the monsters either and may not have entirely the same experiences as them, which is why she feels that she might not belong to or deserve to go to the support group. By sometimes passing as human, she feels she isnāt worthy of the space.Ā
The sad reality though is even though sheās mostly human in appearance, that tail she has undeniably would still cause her some struggle. Humans are still gonna look at that tail and think sheās a freak. There are probably still accommodations she needs because of the tail that she may still struggle to have access to. Even if it is just the tail, that tail is still enough to other her from humans and cause her problems and discrimination.Ā
She should get to belong in that support group even if she gets told sheās not monsterĀ āenoughā. She still shares some of the same struggles as them that are caused by being a monster, and needs support.Ā
This is an excellent demonstration of the flaws in the concept of passing privilege. Bravo to the artist.Ā
NOW I will reblog this.
I always reblog this but this time my brain went somewhere different.
Accommodations! Itās really interesting to me how the brother has a very clear and blatant accommodation, but this time around, I really noticed the sisterās. Anyone else notice just how prominent the bracelet is on her arm?
Iāve always passed it off as a stylistic choice ā just some jewelry, yknow? And maybe thatās what the artist intended.
But alternatively, what if itās an accommodation too? Maybe she needs extra support for her arm, something to help with nerve damage or strength in her wrist. I mean, look at the Minotaurās hands! Those are very different from his daughterās.
How much harder is it to get accommodations that are needed when you look that way? What happens when you feel you donāt really need those accommodations, you function fine without them, not like your brother who clearly has greater needs, right?
And just how often do the accommodations we have go unnoticed? How many times have I seen people say that people who wear glasses arenāt disabled? How many times have I heard people argue that glasses arenāt accommodation tools/disability aids?
Idk. Just more thoughts.
@bettinalevyisdetermined

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seen a this edible aint shit but for adderall
sharing @mumblesplash 's tags:
reblogging to cast
the first time I took Vyvanse I literally was like. Huh I don't know if thi is doing anything. And then it was like a wave of silence washed over my brain and then I spent the next day doing an amount of focused chores and activities that would have taken me like, months previously.
I took my first Vyvanse and immediately did my taxes + a month's worth of laundry. The sudden clarity was like divine revelation.
me: trying to sleep
my brain: tics? tics. squeeze eyeballs. move shoulder. hum. now.
me: you could do this at literally any point today why now
my brain: because tic :)
Think I've just about had it with people who ONLY find Tourette's funny.
I'm declaring here and now, yes it absolutely can be funny sometimes.
But I'm also declaring that it is sometimes very NOT funny.
You're just lucky that you haven't seen anything nasty.
Wishing my fellow tic disorder havers happy and safe chilly seasons. I know some of yall, like myself, can have worse tics triggered by cold or shivers. I hope you can still have a good few months, and Iām sending you love!
i think the worst thing about tourette's is the unpredictability of it,
i can have a few good months, i can have a few good weeks.
i can have good and bad days.
yet i don't know WHEN it's going to happen, when one day i will not be able to walk correctly, again. when one day i won't be able to stop shouting and talking, when one day i will not be able to even hold a glass of water.
and it's scary knowing that one day i can be great! that i have little to zero tics, and one day, my whole body hurts because of the constant movement, and it hurts to talk because of the constant talking and shouting, to spending my whole days in bed after tic attack, exhausted, crying, exhausted.
that's all, i wish people could take it more seriously.

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Free to watch ⢠No registration required ⢠HD streaming
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Good news everyone I have accidentally discovered the stupidest fucking conceivable way to make myself to do chores
It goes like thisā¦..
-
My car: *low gas light on*
Me: I mean, I COULD stop at the gas station on the way home⦠OR! I could just NOT do that and deal with it tomorrow
Me: but what if I get stuck in a time loop starting tomorrow and every day I wake up and my car is on empty that would be so annoying
Me: uggghhh FINE I will stop at the gas station.
****LATER THIS EVENING:****
My sink: *has all my bowls and tea mugs in it*
Me: okay I don't actually care about this problem for tonight I am not planning on eating soup or tea
Me: ā¦yeah but if i do end up being stuck in a time loop starting tomorrow it is going to SUCK to have only dirty tea cups in the morning forever
Me: uuuuughhhh okay clean sink it is
-
I hate this. My brain must have an extremely low opinion of me to even try it, and it worked.
But hey, I don't have to try to remember to leave 5 min early tomorrow for a gas run?