Lupus + photosensitivity + early morning eastbound roadtrip = ALL the SUN control TACTICS, cuz my wackadoo immune system doesn't get to win every daggum time daggummit ~ Shout out to my buddy Car Sarong, the sarong that lives in my car, always ready to dramatically fling itself between my tender skin and the evil daystar. ~ bonus: just noticed my son's photobomb ~ #lupus #photosensitivity #uvsensitivity #mtx #roadtrip #systemiclupus #chronicillness #autoimmune #chemo #spoonie #spooniemom #spoonielife





