#spooniemom

Sigh. And I *just* got his elementary school staff to grok my whole Delicate Wilting Flower Mama Bear vibe. #notagoodstart #offonthewrongfoot #why #seriously #thesunwantstokillme #photosensitive #af #flare #lupus #systemiclupus #chronicillness #chronicfatigue #chronicpain #autoimmunedisease #spoonie #spooniemom #spoonielife

Texas Summer While Lupus, Day 1: Taking kiddos to the splashpad • ✅All exposed skin covered in fabric or SPF100 or both ✅oversized frosty hydrating beverage ✅comfy camp chair parked in shady spot ✅phone loaded with podcasts ✅eagle eyes covered with sunglasses for that perfect mix of Unapproachable and Where Is She Looking? (everywhere, kids) ✅one arm free to give a 👍every time I “watch this!” • #letsdothis #summer #splashpad #lupus #systemiclupus #photosensitive #chronicillness #chronicfatigue #chronicpain #spoonie #spooniemom #spoonielife

Ever get bummed out cuz you gotta chop herbs, but your immune system is attacking your knuckle joints, so your hands kinda hurt a lot, and your brain is all foggy so you’re extra clumsy and handling sharp knives seems like maybe not the best idea? • GOOD NEWS! They make scissors for that! • #herbscissors #aka #thebestever #chronicillness #chronicpain #brainfog #clumsy #cooking #lupus #systemiclupus #spoonie #spooniemom #spoonielife

🧠🌫 Brain Fog is ... Taking your kids on a special trip to spend their Barnes & Noble gift cards! • #idoublecheckedthem #iswear #sadtrombone #wompwomp #halfpricebooks #barnesandnoble #brainfog #cognitivedysfunction #chronicillness #chronicfatigue #lupus #systemiclupus #spoonie #spooniemom #spoonielife

The inner monologue of a chronically ill person is a wild ride, lemme tell ya. ~ #chronicillness #lupus #systemiclupus #autoimmune #chronicfatigue #chronicillnesswarrior #chronicpain #migraine #cookie #haveyoutriedyoga #naptime #thechroniccurmudgeon #spoonie #spooniemom #spoonielife

Boomer is fascinated by the contortions I put myself through trying to get a selfie with the weird band-aid on my own meaty upper arm. I tried to explain to her about flu vaccines and how vital it is for at-risk folks like me to get the shot each year, but she just sorta blinked at me. Bless her ginger heart. ~ #compromisedimmunesystem #flushot #vaccines #vaccineswork #science #sciencesaveslives #lupus #systemiclupus #chronicillness #autoimmune #spoonie #spoonielife #spooniemom #SelfcareSquad #Boomer #gingercat #kitty #catsofinstagram

TBT - That time I applied for Social Security Disability ~ I was younger then. Sweeter. Brighter-eyed. Less aware of the crushing cynicism that infuses the application process for government assistance, deliberately making it as difficult as humanly possible because the lives of a few legitimately sick people is a small price to pay for keeping out the mythical hoards of fakers. ~ (spoiler alert: I got denied, forever salty about it) ~ #disability #socialsecuritydisability #denied #chronicillness #chronicfatigue #chronicillnesswarrior #lupus #systemiclupus #chronicpain #autoimmune #spoonie #spoonielife #spooniemom

Lupus + photosensitivity + early morning eastbound roadtrip = ALL the SUN control TACTICS, cuz my wackadoo immune system doesn't get to win every daggum time daggummit ~ Shout out to my buddy Car Sarong, the sarong that lives in my car, always ready to dramatically fling itself between my tender skin and the evil daystar. ~ bonus: just noticed my son's photobomb ~ #lupus #photosensitivity #uvsensitivity #mtx #roadtrip #systemiclupus #chronicillness #autoimmune #chemo #spoonie #spooniemom #spoonielife