#savella

Recently scrolling youtube, one of the rants did a video of a popular Gachatuber named "Hatsumi Rou" whos nearly close to 1 Million subs. Damn, first was LenTotally, and now her. For a full "apology" message, please check her community post. And for rants, i recommended to watch Flotalendy's video (4 minutes) and also, if you know Savella, she did made a letter of this situation, to read her letter, check Flotalendy's description of the video.

UvU

YouTube : Floralance

So I drove an hour and a half to this pain management clinic a month ago. First of all I was suppose to see a specific doctor I was going there for her (my rheumatologist put the referral in only because he wanted me to see her). I get there and they don’t tell me that the doctor called out and that I’m seeing a completely different doctor. I didn’t know until a man doctor instead of a woman doctor walked into the appointment. 

Fast forward, we spoke how I should be on savella. Then I said that I needed help with my chronic fatigue that it’s killing me. The DOCTOR brought up putting me on adderall. I leave the appointment with the understanding that he was going to write me the scripts. Then I was told that he wasn’t and that I needed to see another doctor to ok the medications meaning I have to do another 3 hour trip again (and it’ll be during the winter and it’s on the worst high way in the state for winter. Yay!!) 

When the appointment notes became available on the website I read through it. I noticed it mentioned savella...but nothing about adderall. I phoned the office probably around 5 times in a total of 3 weeks with them keep telling me he’ll update it. I even called my pcp and he said he could only prescribe the med if the notes get updated that I need it. (That was a week ago)

I finally am able to check the website and it says, 

“I would try to minimize oral medications secondary to her current fatigue and somnolence.” 

So literally this fucking prick mother fucker brings up that he wants to put me on adderall...I didn’t bring up even me being on medications or being on adderall just that i needed help HE says it....then he doesn’t put it in the notes and makes me suffer for another month and then completely and utterly lies on the notes and fucks me over. 

I find this thread aggravating, though some might find it useful. I used Savella several years back and I found it to be very helpful with pain. Unfortunately it seemed to hyper-adrenalize me. I was a highly unpleasant person to be around. I didn’t want to be around me. It was fun.

There are individual posts saying they believe that Fibromyalgia and Ehlers-Danlos Hypermobile type are the same thing. I believe they are not the same. In my experience there’s a subset of EDS (some H type, some not) patients that seem to be predisposed to Fibromyalgia &/or Chronic Fatigue Syndrome.

It was total and absolute hell. I cannot physically or mentally go through that again. I was bed bound for a good part of 2 months, constantly nauseous and throwing up all the time, in agony, depressed, sleeping 14 hours a day when I could drug myself enough to sleep with the pain, and unable to think, concentrate or remember anything. It was one of the worst experiences of my life. I’m still having a hard time with things that were practically non-issues before I went on savella. My memory and concentration have taken a serious dive and haven’t recovered yet.