#ocrevusinfusion

FIRST FULL OCREVUS INFUSION DAY!!! 🎗🏥😷 I can’t believe it’s already been 6 months since my last (second half dose) of Ocrevus! 😮 . I will post a video later on how I felt after! 🟠🧡 . . #ms #multiplesclerosis #ocrevus #ocrevusinfusion #ocrevusjourney #firstfulldose #pleasework #chronicillness #incurabledisease #curems #spoonie #spoonielife #msfighter👊 #mswontstopus #mswarrior💪 #infusion #infusionday #takebackcontrol #letthiswork #medicine #mobility #mystory #community #roundtable (at Gamma Therapitic Infusions) https://www.instagram.com/p/CUYOWZzLz8j/?utm_medium=tumblr

Day two after my second half dose of #ocrevus : . . Today was a GREAT day. Nothing special happened, I didn’t even leave the house. But the steroids are wearing off so I had just the pep in my step to be very productive. . . But who gives a F#*k about productivity because today, I got to kick a ball around with my daughter!!! My leg was still feeling good from the steroids but I wasn’t as uncomfortable internally from them like I was yesterday so I could actually kick a ball around and move a little faster then previous days. My 5 yo was so excited when I said “wanna go kick the ball?!?” . . I also had energy to get a lot of house work done along with a lot of work work. But I feel like I may have over done it a tad now that I lay in bed with my achy body molding to the memory foam mattress. . . I know the steroids will be gone tomorrow or the next day but I do not care, today was a great day. A win, and I’ll take it✌️🧡 . . #ocrevusinfusion #multplesclerosis #ms #mswarrior💪🏼👊🏻🎗 #dadlife #dad #soccer #girldad #spoonie #spoonielife #outdoors #day2 #treatment #infusiontherapy #infusion #greatday #takethewin #whatmatters https://www.instagram.com/p/CNtZvgjDbmT/?igshid=cokqm7040vmt

Day 1 after second half dose of #ocrevus: . . Today I’m tired. On the outside that is. I’m on maybe 4 hours of sleep as the steroids made me feel like I could remodel my house at 11:00pm- not my body tho! Today I am very flush off and on. I just took an allergy pill and am drinking a LOT of water. . . On a positive note, these steroids are making my left leg (the one I limp with or drag like a zombie 🧟‍♂️) feel great! I know this will be short lived but I’m going to enjoy it while these steroids make my feel like I’m going to jump out of my skin at times, but then that subsides and it’s just anxious feelings. . . Speaking of my leg, I’m going to be starting a new medication, dalfampridine, which I will talk about more in a future post once I receive it. But this may help with my fatigue and leg issues🤞 . . . When it comes to the #ocrevusinfusion I’m still very hopeful. My PA reminded me this may take until after my first or second full dose. Which is disappointing considering that’s 6mo- 1 year+ out...but at least it’s something! I really want to use this time to focus on my health and do what I can while the medicine hopefully does what it can. . . I’ll update you all tomorrow, I appreciate any and all comments- remember more and more people are diagnosed each day and platforms like this @ms.roundtable community, we all help each other!!!☮️🧡 . . . #ocrevus #ms #mswarrior💪🏼👊🏻🎗 #multiplesclerosis #newmedication #health #ocrevusinfusion #infusion #infusiontherapy #spoonie #spoonielife #mstreatment #treatment #findacure #community #positivevibes #positivity #helpeachother #roundtable https://www.instagram.com/p/CNpnNCzDxDs/?igshid=r6pnnpx7dapw

Second half dose on the books! . . This second half dose of #ocrevus was easier, I didn’t have any reaction so no need for additional antihistamines during the infusion. . . Again this one took about 5 hours total. I did ask if I would get steroids every #ocrevusinfusion and they told me I would as that is how my doctor prescribes, to have the best chance against side effects. . . Now I wait 6 months (9.28.21) until my next dose. On one hand I’m happy I don’t have to go every month, on the other hand it almost feels like going every month would be better for my MS. I understand this medicine works slowly. My PA was there again (which is awesome!) and he said some patients do not report improvement until after the first full dose or second full dose. But I’m hopeful! . . . Of course I had my meal after (idk about you but I’m starving after infusion!) a burrito cures all ✌️🧡🌯 . . #ocrevus #multiplesclerosis #ms #mstreatment #infusion #infusionday #burrito #spoonie #spoonielife #hopeful (at Gamma Therapitic Infusions) https://www.instagram.com/p/CNnzVrZj-kM/?igshid=18b7hyrchjv31

Got some natural Vitamin D today!☀️ (Maybe a little too much!🕶) . . Yesterday I didn’t post a day 3 later #ocrevusinfusion update. I was very shaky feeling and just off in my head with groggy and lightheadedness at times. I just drank fluids and rested. . . Today is day 4 after the first half dose of #ocrevus . I woke up at 3:30 AM with my legs hurting along with my lower back/ butt area. I got up and took a shower, neck started hurting (usual morning just earlier than normal), I took one muscle relaxer but that didn’t help. Drank some coffee end watched some great MS pages videos! My father and brother were coming over at 9:00 AM to help me assemble a swing set for my daughter. But let’s be real, I couldnt do too much...we eventually got a system down where I would watch the instructions on the iPad and get the wood pieces and the hardware ready then my dad and brother would assemble. I at least felt like I was contributing. So embarrassing when people are over helping ME and I have to take breaks. . . But my other brother showed up and helped me put together a small couch for outside as well. It was a great day. But OMFG a lonnnnnggg day. I know I borrowed some of tomorrow’s spoons, which sucks because it’s Easter. Good thing we have to go to bed early for the Easter bunny!!! Have a great Saturday night round table🧡🌅 . . #multiplesclerosis #ms #spoonie #spoonielife #playset #easter #vitamind #outside #sunburnt #familytime #spring #overtired #fuckimtiredthough https://www.instagram.com/p/CNOOmBvjlt4/?igshid=4xobm98ruinw

The day after my first 1/2 dose of #ocrevus I feel okay. I can say I have a pep in my step but I am also very flush. My face is red and hot, I have been pounding water and took an allergy pill so that has seemed to help. All normal in the #ocrevusinfusion world I guess. . . This shirt...I went back and forth on posting in this shirt. I ordered it a week or so back and just felt like it’s “too soon” to be wearing a shirt like this. It’s hard to think sometimes that yeah I do have MS, I’m apart if this. I figured people would be thinking “here we go, now he’s all about MS” or “he JUST got diagnosed and now he’s some wanna be advocate?”. I let the invisibleness of this disease impact ME. The person who gets up everyday and has to deal with this. And pardon the language, but FUCK what anyone thinks!!! I am working on that a lot lately. But damn I’m exhausted, stressed, depressed, fall, limp, cry, fall asleep by 4pm...why do I care what “they” think??? They did not live my Three year journey on this diagnosis. . . So here I am , Made to Survive. We all are. Being diagnosed on 2/28/21 this #msawarenessmonth🎗 snuck up on me, but it was still a pleasure my fellow spooneies 🧡 . . #ms #mswarrior #madetosurvive #spoonie #flush #sideeffects #stillhopeful #inmarchwewearorange #beyou #hatersgonnahate #fuckwhattheythink #ocrevus #ocrevusinfusion #dayafterinfusion #dayafterinfusionbelike #msawareness #msawarenessmonth #findacure https://www.instagram.com/p/CNGTFl0jHqu/?igshid=ckt990djwxav

🚨Today’s the Day!!!! 🗓🚨 First half dose of #ocrevus !!! . . iPad ✅ AirPods ✅ Phone and charger ✅ . . Awesome set up at the infusion center in Greenfield, WI. Snacks, WiFi, drinks, warmed blankets, a recliner, it’s a day to myself and I’m okay with that 😝. No reactions or anything as of yet- as I type this I’m about 1/3 the way through the half dose. . . I was nervous today, didn’t sleep well last night. I think it was a mix of nerves, excitement, and also my legs decided to hurt all night, but hey I’m here. 3 LONG FUCKING YEARS (sorry for the language) but holy shit I’m here. Bye bye B cells. . . . Please universe, let this help, please...🙏🤞🌌☮️🧡 . . . #ocrevus #ocrevusinfusion #multiplesclerosis #ms #mswarrior #firsttreatment #infusion #infusionday #happy #hopeful #hopeforthefuture #mspost #treatment #findacure #excited #nervous #nervoussystem #lesions #netflix #apple #ipad #appleiphone #airpodspro (at Gamma Therapitic Infusions) https://www.instagram.com/p/CNDLPZLDDvh/?igshid=1989574nax00g