#ms hug

The multiple sclerosis hug describes the feeling of tightness around the stomach or chest. Don’t be afraid to tell your doctor if you’re dealing with this. They can help you identify and work with your symptoms.

today was the first time I experienced the “MS hug” and in between the waves of pain that had me bent over trying not to curse out loud in front of my one year old niece that has been picking up a lot of new words lately my sister goes “so does it actually feel like a hug?” no. just no. it is muscle spasticity in a band around your body that luckily didn’t have me struggling to breathe, just struggling to not yell, because i’ve read it can do that. like you or anyone else in the family could know if anyone other than me actually read up on anything related to multiple sclerosis which i happen to be doing because i’m the one that has it. being over a year after being diagnosed with ms and people still not knowing basics, or dare i say it even a little bit more involved stuff, gets frustrating. i know this situation may not qualify as that, i don’t know, but the question “oh, is that a symptom that can happen? i didn’t know that” gets old.

I have had the MS “Hug” for almost 2 weeks and I’m ready to give up. And it’s not a cute little band of pressure; I feel like my chest has been caved in, had petrol poured into it and been set on fire. It is beyond any pain I have ever experienced, how can anyone live like this? Why would anyone want to? Fentanyl worked for a week, holding it at bay but it was still sitting there with me, waiting to jump me, and it did. People think I’m being hyperbolic when I describe it, I think the pain that often accompanies MS is not well understood. As a pedestrian I have been hit by a car traveling 70km an hour. I would rather that happen again than experience this unbearable pain.

Forever hoping I don’t have an episode like that in front of other people. I don’t know how they’d react.

I think I am experiencing my first REAL MS hug. It is extremely painful. It is 10 PM and it started when I was at work around 3 P.M. I tried taking Tylenol a few hours ago, but that hasn't worked. I am going to take my muscle relaxer, but that usually makes me drowsy so I thought I'd wait. The pain is in my right breast, arm, shoulder, neck. My ear also feels like it's on fire, sometimes both ears. I never knew it could feel this terrible. I just need it to stop before work tomorrow morning. I also don't have insurance at the moment, so I can't even see the neurologist. The health plan at work is expensive, especially since I don't make much. Whatever. I am going to eat my dinner now. Just wanted to update.

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Me: yeah it leaves me speechless too.