#ms relapse

During my first flare up I was struggling a lot with vertigo; a quite common MS symptoms that I've visualised so people who've never experienced it can still relate to what it's like :)

check out my video to learn more

I'm an artist and in summer of 2022 I was unexpectedly diagnosed with Multiple Sclerosis. Now I create art to visualise my invisible illness to raise awareness of it! Check out my video to find out how and WHY I do this!!

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I learned something new when I went to an ophthalmologist appointment this week and I wanted to share it with the MS community so they do not make the same mistake I did.

I have permanent nerve damage in my left eye from not getting treatment. Had I known that having an optic nerve flare would have cause permanent vision complications I would have gotten treatment sooner. The ophthalmologist recommends that even if vision impairment is the only problem you are having during a relapse, it’s important to get treatment right away because if you leave it untreated you could have or will have permanent optic nerve damage.

The reason I didn’t go in for treatment was because my prior MS relapses that impaired my vision was accompanied with other MS symptoms and I would get treatment right away. So this time when it was just my vision that was impaired, I thought I would “tough it out” because my vision wasn’t too bad off and I thought it would go back to normal. But after five months of my vision not returning to normal I went to see an ophthalmologist for the first time and that’s when he told me the damage was permanent from my optic nerve inflammation being around for so long without treatment. He also said that there isn’t anything he could do to repair the nerve.

My vision loss is similar to the picture below:

As part of my art project A Thousand Faces I painted another invisible Multiple Sclerosis symptom, and it actually was the first symptom of my 2nd flare up; pins and needles. This is Beatrice, my personification of this abnormal sensation of the skin:

Created to raise awareness and spread knowledge of the chronic and invisible illness Multiple Sclerosis.

Watch the video to learn more about this :)