Health Update
Got diagnosed with HyperPOTS yesterday
So now I have Hashimotos and HyperPOTS and some vague hypermobility issue
I got told by my neurologist to see an allergist/immunologist about my hives and possible MCAS and hopefully if I get in I can see my rheumatologist or neurologist again and look into EDS (my neurologist said looking into my pain and joint pain was the next step)
I still feel awful but I feel less awful than when I first got the Hashimoto’s diagnosis because my synthroid does it job well so there is hope.
For now I will still have to lie down a lot.
Tilt table was crazy though I had chest pain, shortness of breath, felt hot, sweating, leg tremouring, and felt lightheaded. I still don’t know my exact numbers (they did not show me the direct test numbers) but I did hear the tech say my HR was over 140 and it sure felt that way. My BP apparently went real high too but I don’t know the number. Typically I would have just sat down by minute two I don’t typically wait out the waves cause my legs get too shaky to stand. I didn’t faint but I have only done that like twice in my life so I was not surprised I didn’t.












