#hyperadrenergic pots

This is your friendly reminder that hypovolemic POTS is not the only type of POTS. There is also hyperadrenergic POTS and Neuropathic POTS. Sometimes there is another type included that is called Secondary POTS or POTS secondary to another disorder. Many people with POTS also have multiple types. Also most people with POTS don’t faint. Don’t forget all types are valid and your experience is still valid without fainting (also still valid if you faint though).

Back before I knew what was wrong with me (medically speaking) I'd work 7 days a week often 14+ hour days, and when something happened or I was experiencing 'symptoms' I'd either refuse to acknowledge them or try EVERYTHING trying to figure out what my body was trying to tell me. More water? sugar? Do you need uh... some sort of vitamin or mineral? salt? Who knows, try binging everything and see if anything helps. (nothing helped) And I'd be okay *enough* to coast through most of the year without much issue, ignoring my symptoms and pretending like I was fine (I was not fine). But almost annually my body would deteriorate so quickly and so badly around the New Year's that I'd have to go into the hospital due to how severe my condition would become at that point. The ER staff would have no idea where to start, acknowledge that yeah something IS very wrong my vitals are all over the place without knowing WHAT is causing it, as standard give me some IV's while they ran tests, and by the end of the IV I'd make a miraculous recovery and feel almost all better and be able to go home with all of my vitals magically stabilizing even though they didn't know what was wrong and technically didn't treat me for anything (aside from the bag of IV) This went on for years before I was adamant something was wrong and I had to advocate for myself to get sent to the right doctors in order to figure it out . Until I got diagnosed, I was concerned it was all in my head and that maybe I was just crazy or it was mental illness expressing in weird and unusual ways, but no it wasn't. Lots of appointments and testing and over a decade of wondering and I finally got the answer that explained most of my symptoms. Hyperadrenergic POTS.

I don't think non-POTS havers truly understand how exhausting POTS is. All I did was cut grass and run a few errands and I'm as exhausted as if I ran a marathon. I had a 3 hour nap and it didn't even help.

feels bad seeing other people with hyper POTS whose heartrates only go up to 120 upon standing. mine goes up to 150 upon standing, 170-180 if moving too fast, 180-190 if panicking. can you imagine my immense fear of something like an epipen? it would kill me.