#elhersdanlos

#cranialcervicalinstability #CCI #elhersdanlos #elhersdanlossyndrome #chronicillness #chronicpain #chronicillnesswarrior #chronicfatigue #thefibrochronicles #fibromyalgia #zebra #gofundmeplease #gofundmedonationsaccepted #fundraising #surgeryhelp #neckfusion #painwarrior (at Shrewton, Wiltshire, United Kingdom) https://www.instagram.com/p/B_xqos-DCut/?igshid=7tvc1rxn3mfb

💕🦓 Today was my birthday. This is an older look I never posted and due to my latest round of being so sick and spending time in the hospital I am sorry but I can't remember all the details to the products I used the day I did this look . I do remember the glitter the glitter is from @glityourlife_ and the lashes from @scoobys_slay_and_play 🦓💕 I have been pretty depressed today as no one really wants to spend their birthday stuck in bed, but I am so very thankful that at least I am at home with my children and my pups and not still in the hospital. I am also thankful that we do have more answers now that we know I have Dysautonomia and that is what is causing my horrible issues with gastroparesis. I have many Doctor appointments and testing ahead and will continue to work with my doctors to hopefully get all my issues and my health in a better place. I am hoping and praying to be able to do a new makeup look soon as I miss it tremendously. It truly is my therapy. Thank you all for your thoughts, prayers, encouragement and support. #commonvariableimmunodeficiency #primaryimmunodeficiency #gastroparesis #dysautonomia #elhersdanlos #zebrastrong #makeup #makeupartist #cvid #cvidlife #ivig #chronicillness #slave2beauty #beautyaddict #birthday #itsmybirthday #gemini https://www.instagram.com/p/Bx3oPvbJB-Z/?igshid=cyhogtx4kvvf

#rdd2018 #iamrare #intracranialhypertension #elhersdanlos #dysautonomia #irefusetobeinvisible (at Arkansas State Capitol)

And another shot from up the way #lakeblanche one of the hardest things I've done in my adult life. I don't talk about it often, but I have a #connectivetissue disorder called #elhersdanlos that makes certain activities more risky and hard. I feel particularly proud of myself for being able to do a six mile hike round trip with difficult terrain and heavy gear. It took an hour a mile, three hours each way. My calves are sore and my knees swelled up for a half a day,but the rewards were well worth the effort. Shout out to anyone able to do this or things like this!!! 🙌🏻🙌🏻 You're an inspiration! (at Lake Blanche)