#commonvariableimmunodeficiency

#survivor #warriors #fighters #chronicpain #chronicillness #commonvariableimmunodeficiency #elhersdanlossyndrome #poetry #makeupartist

Oliver is a young boy who lives with his mummy, daddy and goldfish and he likes to play pirates in his street, but one day when he decides to climb the maple tree which looks like a mast, the branches aren’t strong enough to hold him, so he falls down onto his hip. When his daddy comes out to see if he is ok, he talks to Oliver about playing safely and send him up to his room to think about what has happened. While he is up there Oliver dreams about what it would be like if he was living with his birth parents, what would his life look like? Would it be exciting like a trapeze artist, or a scientist? Do other people wish for another life and what should Oliver do with all these thoughts? This is a story which talks about a challenging subject in a fantastic way, which children of all ages can understand whether they adopted, or not.

💪🦓 Raw. Exposed. Unedited. Warrior. Surivior.🦓💪 This is me. All of me. The one I hide. The one you will probably never see because the mask I wear is so perfectly placed disguising all the pain sorrow, and struggle of just trying to survive in a body that constantly fails you. This is the face os Common Variable Immunodeficiency. This is the face of Gastroparesis. This is the face of Elhers Danlos. This is the face of Dysautonomia. I have always possessed an amazing talent of making survival look good. Sometimes I wonder if that is a blessing or a curse...lol I am extremely strong-willed and independent...but there are times when we must yield and admit we can't do it all alone. I thank the Lord he carries me. I would have never made it this fsr without him. This is for all the other warriors out there. I know it's hard. I know it's exhausting. I know how heartbreaking it is to lose so much to a failing body....but you are not alone. Never give up! There is hope yet! 🦓💪💪💪 #chronicillnesswarrior #commonvariableimmunodeficiency #cvid #cvidlife #primaryimmunodeficiency #zebrastrong #bloodplasma #ivig #immunotherapy #gastroparesis #dysautonomia #elhersdanlos #makeupartist #mua #mue #beauty #strongwomen #strong #fighter #real #nofilter #allnatural https://www.instagram.com/p/Bx8-ImMJW1L/?igshid=vkz354x1av35

💕🦓 Today was my birthday. This is an older look I never posted and due to my latest round of being so sick and spending time in the hospital I am sorry but I can't remember all the details to the products I used the day I did this look . I do remember the glitter the glitter is from @glityourlife_ and the lashes from @scoobys_slay_and_play 🦓💕 I have been pretty depressed today as no one really wants to spend their birthday stuck in bed, but I am so very thankful that at least I am at home with my children and my pups and not still in the hospital. I am also thankful that we do have more answers now that we know I have Dysautonomia and that is what is causing my horrible issues with gastroparesis. I have many Doctor appointments and testing ahead and will continue to work with my doctors to hopefully get all my issues and my health in a better place. I am hoping and praying to be able to do a new makeup look soon as I miss it tremendously. It truly is my therapy. Thank you all for your thoughts, prayers, encouragement and support. #commonvariableimmunodeficiency #primaryimmunodeficiency #gastroparesis #dysautonomia #elhersdanlos #zebrastrong #makeup #makeupartist #cvid #cvidlife #ivig #chronicillness #slave2beauty #beautyaddict #birthday #itsmybirthday #gemini https://www.instagram.com/p/Bx3oPvbJB-Z/?igshid=cyhogtx4kvvf

🦓 Yesterday was a victory in my long journey with my health. As you know if you have followed my story I have both CVID (Common Variable Immunodeficiency) and EDS (Elhers Danlos syndrome) and finally yesterday another piece of the puzzle was resolved and I was diagnosed with Dysautonomia. Dysautonomia is a dysfunction of the nerves that regulate nonvoluntary body functions, such as heart rate, blood pressure, digestion, respiratory function, temperature regulation. There are also several types of Dysautonomia. I have some testing scheduled and also wearing a heart monitor for 30 days as well as starting a new medication to hopefully get my heart rate a bit lower. Ironically Dysautonomia can cause.....drumroll please 🥁🥁🥁🥁 GASTROPARESIS!!!!!!!!!!!!😱😱😱😱😱😱😱 It also explains my struggle with dehydration and low sodium and well so much more. It's amazing to get answered prayers! I will be having my EGD this Wed for a better look into my stomach and today I will have my IVIG.infusion. I have many doctor appts and tests.coming up in the following weeks and months since my recent hospitalization to hopefully get me to a better place healthwise. This has certainly been a difficult time in my.life but I am fighting with all my might! #zebrastrong #bloodplasma #dysautonomia #chronicillnesswarrior #commonvariableimmunodeficiency #primaryimmunodeficiency #elhersdanlos #zebra #cvid #cvidlife #ivig #makeupartist #nevergiveup #warrioe #figther #dysautonomiaawareness #gastroparesis https://www.instagram.com/p/BxuTXhOJIB-/?igshid=16uq7tm48jcrm

🦓 Hey there all my peeps! It has been a difficult past few days! I am finally home after a 3 day stay in the hospital! Unfortunately, sometimes with my illnesses this comes up! I am proud of my fighting spirit and my #zebra stripes! Having #commonvariableimmunodeficiency is not fun and has many challenges! So blessed and thankful to be back home with my kids and my pups! If you are struggling with you health...know your not alone...you can do this...you are beautiful and strong 🦓💪💪💪🥰 #makeup #keepfighting #keeppushing #chronicillness #chronicillnesswarrior #commonvariableimmunodeficiency #cvid #cvidlife #primaryimmunodeficiency #zebrastrong #bloodplasma #ivig #immunotherapy #plasmadonation #makeupartist https://www.instagram.com/p/Bxh2D1tJLwl/?igshid=14m1cqzuq5ogx

💕Never a day or night I go without my @champagnepapi 💕 Praise God I had a good day this #chronicillness life ain't no joke🦓 Sweetest dreams my peeps! Love you💕 🎶🎶Not after all of the shit I've seen and the things I believe Drastically changing, thank you for all your patience I'm just in a different space and I choose to embrace it🎶🎶🎶 💪💪💪 #chronicillness #chronicillnesswarrior #commonvariableimmunodeficiency #cvid #cvidlife #primaryimmunodeficiency #zebrastrong #bloodplasma #ivig #immunotherapy #plasmadonation #makeupartist #mua #mue #makeupaddict #beautyinfluencer https://www.instagram.com/p/Bu5PtlDAwsr/?utm_source=ig_tumblr_share&igshid=1jap6v2yriyei

💪💪💪 Total freaking MOOD!!!!💪💪💪 I had a good day! Had to get another myofascial release...but felt better since! I am pretty sure I overdid it today....matter fact I know I overdid it and will have a rest day tomorrow...but screaming I HAD A GOOOOOOD DAY!!!!! No matter good or bad days....I will ALWAYS get it out rha mud!!!! #chronicillnesswarrior #commonvariableimmunodeficiency #cvid #cvidlife #primaryimmunodeficiency #zebrastrong #bloodplasma #ivig #immunotherapy #plasmadonation #makeupartist #mua #mue #beauty #beautyaddict #myofascialrelease #triggerpoints #goodday #goodvibes #kevingates #ilovekevingates #getitoutthemud #fighter #survivor https://www.instagram.com/p/Bu5DmR4gs--/?utm_source=ig_tumblr_share&igshid=bgyydeh6e6xg