Top Posts Tagged with #crmo

spending every day going "why am I so tired and why does my everything hurt" as if I don't have The Disease That Makes You Really Tired And Your Everything Hurt All The Time

#🙃#chronic pain #chronic illness #specifically I have SAPHO syndrome #which like. I don't think fatigue is actually considered a direct symptom I guess?#but it is a symptom in the sense that. being in pain all the time and your immune system constantly fighting an infection that doesn't exist #will in fact make you incredibly fatigued #SAPHO syndrome #crmo #cno #chronic nonbacterial osteomyelitis #chronic fatigue #spoonie

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Shout out to folks with Chronic Recurrent Multifocal Osteomyelitis/Chronic Nonbacterial Osteomyelitis!

#Chronic recurrent multifocal osteomyelitis #CRMO #Chronic nonbacterial osteomyelitis #CNO #disability #shout out

Uhh so the Paediatric orthopedic doctor was pretty brief. Honestly I think it it went pretty well, we discussed my pain and then he told me the two current options he's thinking of.

1. I may have bone deformities, so I'm getting an x-ray on my legs done soon just in case

OR

2. I may have CRMO. Now if you've never heard of that before, I dont blame you, this was my first time hearing about this as well, it stands for Chronic Recurring Multifocal Osteomyelitis. There's a literal 1/1,000,000 chance of having it (tho some accounts say as low as 1/160,000) What that means is, it's unlikely I have it but if i don't have the bone deformities then they'll do an MRI to check for potentials of other things and possibly CRMO

If im being honest, I'm fairly sure I don't have CRMO or if I do, I must have something else alongside it since I don't have some of the symptoms, rather having symptoms that aren't within the realm of that issue as well. I still have a PT and Pain management clinic appointment coming up next month so there's a chance I'll get a diagnosis then or at least help with pain and all that.

#chronic pain #chronic illness #disabled #cpunk #cane user #chronic fatigue #CRMO #Chronic recurring multifocal osteomyelitis #I still believe that I most likely have fibromyalgia tho since I match all of the symptoms perfectly but we'll see ig #Hoping the MRI will be good #mri #orthopedics

Reposted from @unny420 📷@sebamuozz 🔧@biclaa 👨‍🏭@eneenebikes #fsfg #fixedgear #28inch #eneenebikes #continentaltires #continentalbiketires #fixie #fixieargentina #fixedgearbike #dartmoor #dartmoorbikes #crmo #4130 #steelisreal #tracklocross #hizokucycles Hizokucycles.com https://www.instagram.com/p/Ca2bv3rpXdw/?utm_medium=tumblr

#fsfg #fixedgear #28inch #eneenebikes #continentaltires #continentalbiketires #fixie #fixieargentina #fixedgearbike #dartmoor #dartmoorbikes #crmo #4130 #steelisreal #tracklocross #hizokucycles

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#op #requests #crmo #cno #rare disease #chronic recurrent multifocal osteomyelitis #chronic nonbacterial osteomyelitis #ct scan #imaging #SEPT 2020 #medcore #medicalcore #medical #medaesthetic #hospitalcore #medical aesthetic #hospital aesthetic

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Hey! I am the only person I know with CRMO, and I really want to meet other people. I was diagnosed when I was 13 and I still have it at 21. If you also have CRMO and want someone to talk to please talk to me! We are so rare and our condition so different from any other so it can get a bit lonely.

#crmo #chronic recurrent multifocal osteomyelitis #chronic #chronic disease

小野路に人知れずひっそりと残る掘割状の鎌倉道 #自転車 #ロードバイク #クロモリ #サイクリング #ポタリング #里山 #鎌倉道 #鎌倉街道 #歴史 #古道 #bicycle #roadbike #crmo #cycling #pottering #history #ancientroad https://www.instagram.com/p/B6-YCPZHkSV/?igshid=h0cant21edut

#自転車 #ロードバイク #クロモリ #サイクリング #ポタリング #里山 #鎌倉道 #鎌倉街道 #歴史 #古道 #bicycle #roadbike #crmo #cycling #pottering #history #ancientroad

#repost @switchcraftcycles ・・・ . 🇬🇧 Wish y'all successful year and most importantly the good health. Do what you love and do it good. Go where it takes you even if you are scared. Don't be affraid of making mistakes. Without them you'll learn nothing. Make that thing you always said you gonna do. Do it this year. Make your dreams come true. Make yourself happy, you deserve it. And don't forget to spread the love. 🇨🇿 Všem přeju úspěšnej rok a hlavně zdraví. Dělejte co vás baví a dělejte to dobře. Jděte tam kam vás to táhne, i když z toho máte strach. Nebojte se dělat chyby. Bez nich bychom se naučili kulový. Tak tenhle rok udělejte něco, co už si léta slibuje. Splňte si to. Udělejte si radost, zasloužíte si to. A nezapomínejte se mít rádi. . . #handbuild #steel #steelframes #framebuilding #handmade #steelisreal #crmo #welding #tigwelding #steelbike #steelbicycle #fgfs #singlespeed #fixie #psbmx #psbmxbikeoftheday https://www.instagram.com/p/B3-tDMyAtZb/?igshid=19ind5y0pxmt

#repost #handbuild #steel #steelframes #framebuilding #handmade #steelisreal #crmo #welding #tigwelding #steelbike #steelbicycle #fgfs #singlespeed #fixie #psbmx #psbmxbikeoftheday

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