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why isn’t autistic burnout in not lsn people talk about very much? i hear about it a lot when about from masking and stuff but i don’t mask becuase can’t mask anyway and am still in burnout. am burnt out just from living in this world. is so hard to exist and makes me so tired and exhausted
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What does “complex” high support needs mean? How is it different from just saying high support needs? (/genuine question)
Complex support needs is needing 24/7 on the clock hour care by a caregiver usually someone who possibly lives in a facility or hospital hospice care abd cannot be alone for any amount of time. Has extremely hard time communicating and cannot do any or all ADLs BADLS like any bathing ambulating toileting without assistance basically those who are high support needs already and above those who have multiple disabilities on top of other chronic illnesses this again is just my own personal experiences. Those who need feeding tubes or are needing an in home nurse care and or huge health care team of nurses. Im someone who is consistently in and out of the ER and needing IV Ativan and fluids for my severe autistic catatonia and dystonia I need lots of help with motor stuff and even assistance with AAC .most of us are totally nonverbal or can use moderate to minimal "home signs" or modified ASL sign language or for the UK version BSL modified signs some of us use eye gaze AAC power chairs. Etc. It depends from complex needs supports person i am very severely cognitively disabled I'm not intellectually disabled but I am very cognitively dusabled due to many untreated traumatic brain injuries (TBI's) and multiple concussions. Ive got other forms of communications outside of AAC tablet and homesign like I can write to an extent pen and paper. But very hard. High Support needs can be a wide spectrum from MSN-HSN lots of HSN autistics can be speaking or minimally to unreliably speaking. Or semiverbal. Depends i myself am totally nonspeaking (nonverbal) I have severe aggresive meltdowns that require intense help to calm down from and it can be so exhausting and mentally draining. Sorry if this isnt very well put out I just got back out off the ER for a concussion from a major meltdown I had three days ago and severe pneumonia. Hope some of this helps
Today I had my first day at a bakery and lunchroom for people with neurodevelopmental disabilities and physical disabilities
I had a lot of fun
On Wednesday I’m going to a day activity centre and I want to do crafts
my last session with mental health team well was one of specialists which was doing pre treatment for me but i wasnt supa keen on whole program they suggesting for me feel like they were kind of ignore certain factors of my complex care and idk jus my circumstance they decide maybe we not do this after all so futher pre treatment session cancel then this lady going report my main psychologist
was some mention of psychiatrist again and other thing am awaiting phone call main psychologist on what we do with me instead and such
i feel like some people dont realize what actually means to be hight support disabled person it frustates me so much that people think that needing help to cook when in shutdown equals to needing help with basic and complex things of daily life everyday, always, not just when overwhelmed or under a crisis, some people dont realize whats like not having a choice what it really means whem you cant force yourself. yiu have the abilities and capacity i dont stop pretending we're the same stop talking over me you dont need to relate to every single thing to make your needs valid its not about you
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