Top Posts Tagged with #actionforme

#Repost @meactnet with @get_repost ・・・ #Repost @myillnessmythoughts with @insta.save.repost • • • How amazing would it be if that apology came via education & biomedical M.E research in these communities. Now that would effect change. * It’s time for change 🙌🏻 it’s time for #understanding #awareness the end of #neglect & for governments to allocate adequate funding for this life destroying disease known as ‘the living death’ #facts #meawarenessmonth #meawareness #millionsmissing #missingbutnolongersilent #endcfs #mecfs #meadvocacy #maymomentum #openmed #actionforme #endtheneglect #cfsme #thetruthoflifewithME #canyouseeMEnow

#awareness #neglect #canyouseemenow #meawareness #millionsmissing #endtheneglect #missingbutnolongersilent #openmed #repost #thetruthoflifewithme #endcfs #understanding #meadvocacy #maymomentum #actionforme #meawarenessmonth #mecfs #facts #cfsme

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Specialist M.E. services will often use elements of two approaches – graded activity therapy (GAT) and graded exercise therapy (GET).Below we explain what these approaches involved, the evidence base for them, and self-reported results from people with…

“The PACE trial concluded that GET is safe with few adverse effects (please note the trial did not include those who are severely affected by M.E.).

However, surveys carried out by Action for M.E. and other patient groups suggest that graded activity/exercise may sometimes be harmful, perhaps if they are delivered inappropriately.

Scientific debate also continues around the results of the PACE trial, with a number of researchers in the M.E. field and beyond questioning its findings.“

#cfs #me #cfs/me #PACE trial #actionforme #check out in particular the section headed patient surveys

Not a piggie related post but..... Regram from @cfsselfies. This week is M.E (CFS) awareness week and Olivia at @cfsselfies has set up a just giving account for people to donate to help raise awareness and to hopefully one day find a cure. Please donate if you can: https://www.justgiving.com/OliviaHCole. As a fellow spoonie and ME/CFS sufferer (I was diagnosed at the end of last year) this is a cause close to my heart.. And yes I am on that banner is you can spot me 😜😊 #cfsme #cfs #ME #spoonie #actionforme #meawarenessweek

#me #actionforme #cfsme #meawarenessweek #spoonie #cfs