a lot of people are asking how i finally got medicated for my sleep disorder. the truth is i had a sleep study done in 2020 but due to my inability to sleep i only slept a single hour and they said i didnât have sleep apnea and recommended no further testing and i just accepted it bc i didnât know what else to do.
yet insomnia has been my longest lifelong disabling condition. i have often gone more than 70 hours with no sleep, and when i finally âcrashâ i may only sleep 5 hours between 70 hour no-sleep periods.
this issue began when i was a toddler and i have memories of being as young as 4 years old and regularly sneaking downstairs in the night to watch tv bc sleep was hopeless & no routine or discipline helped. i have lost jobs, friendships, and more over my sleep disorder.
it came to a head this spring when iâd been awake nearly 80 hours for the second time in a month and i realized i was going to fail out of grad school and lose my visa if i didnât find a way to sleep. and i tried everything. i often sleep better outside camping so one night i was so desperate that i walked an hour to a soccer pitch (closest grassy space to my place in dublin) and tried to sleep on the ground there.
so knowing my attempts with a sleep specialist had gone nowhere i went to my psychiatrist for a crisis appointment while in the middle of an insomnia episode. he asked me what type of treatment i was open to, and i told him anything. iâd do anything. he discussed several non-medication options and several medication options. iâd already tried all the non-med plans, and most anti-anxiety meds (especially antihistamine classes) hadnât worked.
so he decided we should try seropia (seroquel in the u.s., generic name Quetiapine). itâs an anti-psychotic sometimes rxâd for sleep as an off-label use.
he told me to try 20 mg and go up to 30 or down to 10 as needed. first night i slept nineteen hours without waking up once, woke up completely disoriented and dehydrated LOL. so i immediately went down to 10 mg. it has been life changing. i take it every night between 20:00 and 21:30 and iâm usually asleep by 23:00. i usually sleep 8-10 hours and donât have too much of a âhangoverâ in the morning.
iâve suffered chronic nightmares but it hasnât made them worse at all. mostly i just have very vivid dreams. also if someone calls me while iâm asleep i can have a completely normal conversation with them but may not remember it in the morning haha. apparently once took an important phone call from a friend at 1 am and i said to her âby the way you woke me up from my seropia sleep so i probably wonât remember this tomorrow, so text me to remind me.â sure enough she texted me and i didnât remember. after nearly sending a sleep-email one night iâve started sleeping with my phone in another room, which is better sleep hygiene anyway for me personally.
anyway all that said, if youâre not making any headway with a sleep specialist or GP, you might try a psychiatric approach.
ofc iâve had terrible experiences with psychs and itâs never perfect. but itâs a route that worked for me this time bc i have a good psych. so if you find a psych you trust (or already have one managing your other meds) itâs worth a shot.
seropia does have a minor risk of interacting with my other meds (lamotrigine & fluvoxamine) but iâve luckily had no issues. a few people have tried to scare me due to the connection between taking sleep medication longterm and heart disease, but the fact is chronic insomnia is proven to be extremely dangerous for cardiovascular health so this is the better route for me, personally!
iâm still adjusting to the fact that i get to simply sleep at night now.
i also didnât realize how many of my famous all-day naps were related to this alone. i assumed they were tangled up in my other conditions, but i barely nap at all anymore.
donât get me wrong. iâm still usually tired & in pain from my other diagnoses but iâm nevertheless overall functioning in a way i never thought possible.
anyway iâm pretty private these days about my disabilities and treatments etc. but this has simply changed my life so much that i wanted to answer yâallâs questions.