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If you’re on disability TikTok (literally I hope you’re doing ok if you are LOL) then you probably know the drama that is happening on it.
Lemme just say this, there will ALWAYS be someone that is more disabled than you. And that isn’t a bad thing to say. I have mutuals who are full time power wheelchair users. I have mutuals who are high support needs. I have mutuals that are more disabled than me and I acknowledge that because there are people who are severely disabled and more disabled than me and that is OK!!!
Acknowledging that there are severely disabled people and that there are people with more severe disabilities than you isn’t a bad thing. It is life. No one is “At the same level of disability”. Some people are just more disabled and thats ok to say.
I’m a wheelchair and forearm crutch user almost full time. I can acknowledge that my friend with cerebral palsy whos a full time wheelchair user and eye-gaze AAC user is more disabled than me. I can acknowledge that my disabilities are more severe than most of my classmates. I can acknowledge those things and it’s all correct!
No one is at the same level of disability. There are people that are more disabled and thats ok and a conversation that needs to be had. Because the second we start trying to put everyone on the same level, the more people that will die from lack of care and access.
i just think it's bullshit that alternative meats, milks, eggs, breads, and other foods are prohibitively expensive. like i don't know how to tell people that not everyone who eats vegan or vegetarian is choosing to eat that way because of their moral beliefs- a lot of people are eating these foods because they have food allergies or intolerances, or have other gastrointestinal issues
i don't have a choice. it's downright cruel to make these different options more expensive. there is no one size fits all diet- every single person needs a unique diet and some folks literally have no choice but to utilize these substitutes. some vegetarians cant digest soy. some vegetarians can't eat beans. i also don't know how to tell you that not every vegetarian or vegan can ingest raw vegetables and fruits, or even cooked ones, for that matter
there are a LOT of health conditions like irritable bowel syndrome, gastroparesis, crohns disease, and other gastrointestinal issues that can cause a person to become very sick or even die if they ingest too much raw plant matter, especially vegetables high in fiber. when these fibers cannot be broken down by a person's digestive system, they can form blockages in the intestines and kill people. not every person on this planet benefits from eating a lot of leafy greans. some people are allergic to chlorophyll. some people are allergic to citric acid. diabetic people have to be careful with certain vegetables and fruits causing spikes or dips in blood sugar, and many people with diabetes end up with gastroparesis, or similar gut issues. there are a lot of reasons why people can't just switch to a diet of salads and fruit smoothies every day.
alternative foods need to be available to everyone, regardless of how much income they make. having safer alternative foods should not be relegated to the rich. these are not just being consumed by spiritual white moms on instagram. these foods need to be accessed by disabled people all over the world.
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I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.
And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!
As always, if there are any at all that you want me to add, please just say. I'm always looking for more!
Edit 20/10/2023: You can now suggest books using the google form at the bottom!
Updated: 31/08/2023
Articles and Chapters
The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012
Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017
How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019
Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018
Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019
Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004
Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020
Books
Fiction:
Misc:
10 Things I Can See From Here, Carrie Mac
A-F:
A Curse So Dark and Lonely, (Series), Brigid Kemmerer
Akata Witch, (Series), Nnedi Okorafor
A Mango-Shaped Space, Wendy Mass
Ancillary Justice, (Series), Ann Leckie
An Unkindness of Ghosts, Rivers Solomon
An Unseen Attraction, (Series), K. J. Charles
A Shot in the Dark, Victoria Lee
A Snicker of Magic, Natalie Lloyd
A Song of Ice and Fire, (series), George R. R. Martin
A Spindle Splintered, (Series), Alix E. Harrow
A Time to Dance, Padma Venkatraman
Bath Haus, P. J. Vernon
Beasts of Prey, (Series), Ayana Gray
The Bedlam Stacks, (Series), Natasha Pulley
Black Bird, Blue Road, Sofiya Pasternack
Black Sun, (Series), Rebecca Roanhorse
Blood Price, (Series), Tanya Huff
Borderline, (Series), Mishell Baker
Breath, Donna Jo Napoli
The Broken Kingdoms, (Series), N.K. Jemisin
Brute, Kim Fielding
Cafe con Lychee, Emery Lee
Carry the Ocean, (Series), Heidi Cullinan
Challenger Deep, Neal Shusterman
Cinder, (Series), Marissa Meyer
Clean, Amy Reed
Connection Error, (Series), Annabeth Albert
Cosima Unfortunate Steals A Star, Laura Noakes
Crazy, Benjamin Lebert
Crooked Kingdom, (Series), Leigh Bardugo
Daniel Cabot Puts Down Roots, (Series), Cat Sebastian
Daniel, Deconstructed, James Ramos
Dead in the Garden, (Series), Dahlia Donovan
Dear Fang, With Love, Rufi Thorpe
Deathless Divide, (Series), Justina Ireland
The Degenerates, J. Albert Mann
The Doctor's Discretion, E.E. Ottoman
Earth Girl, (Series), Janet Edwards
Everyone in This Room Will Someday Be Dead, Emily R. Austin
The Extraordinaries, (Series), T. J. Klune
The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart
Fight + Flight, Jules Machias
The Final Girl Support Group, Grady Hendrix
Finding My Voice, (Series), Aoife Dooley
The First Thing About You, Chaz Hayden
Follow My Leader, James B. Garfield
Forever Is Now, Mariama J. Lockington
Fortune Favours the Dead, (Series), Stephen Spotswood
Fresh, Margot Wood
H-0:
Harmony, London Price
Harrow the Ninth, (series), Tamsyn Muir
Hench, (Series), Natalia Zina Walschots
Highly Illogical Behaviour, John Corey Whaley
Honey Girl, Morgan Rogers
How to Become a Planet, Nicole Melleby
How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn
How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn
Hunger Pangs: True Love Bites, Joy Demorra
I Am Not Alone, Francisco X. Stork
The Immeasurable Depth of You, Maria Ingrande Mora
In the Ring, Sierra Isley
Into The Drowning Deep, (Series), Mira Grant
Iron Widow, (Series), Xiran Jay Zhao
Izzy at the End of the World, K. A. Reynolds
Jodie's Journey, Colin Thiele
Just by Looking at Him, Ryan O'Connell
Kissing Doorknobs, Terry Spencer Hesser
Lakelore, Anna-Marie McLemore
Learning Curves, (Series), Ceillie Simkiss
Let's Call It a Doomsday, Katie Henry
The Library of the Dead, (Series), TL Huchu
The Lion Hunter, (Series), Elizabeth Wein
Lirael, (Series), Garth Nix
Long Macchiatos and Monsters, Alison Evans
Love from A to Z, (Series), S.K. Ali
Lycanthropy and Other Chronic Illnesses, Kristen O'Neal
Never Let Me Go, Kazuo Ishiguro
The Never Tilting World, (Series), Rin Chupeco
The No-Girlfriend Rule, Christen Randall
Nona the Ninth, (series), Tamsyn Muir
Noor, Nnedi Okorafor
Odder Still, (Series), D. N. Bryn
Once Stolen, (Series), D. N. Bryn
One For All, Lillie Lainoff
On the Edge of Gone, Corinne Duyvis
Origami Striptease, Peggy Munson
Our Bloody Pearl, (Series), D. N. Bryn
Out of My Mind, Sharon M. Draper
P-T:
Parable of the Sower, (Series), Octavia E. Butler
Parable of the Talents, (Series), Octavia E. Butler
Percy Jackson & the Olympians, (series), Rick Riordan
Pomegranate, Helen Elaine Lee
The Prey of Gods, Nicky Drayden
The Pursuit Of..., (Series), Courtney Milan
The Queen's Thief, (Series), Megan Whalen Turner
The Quiet and the Loud, Helena Fox
The Raging Quiet, Sheryl Jordan
The Reanimator's Heart, (Series), Kara Jorgensen
The Remaking of Corbin Wale, Joan Parrish
Roll with It, (Series), Jamie Sumner
Russian Doll, (Series), Cristelle Comby
The Second Mango, (Series), Shira Glassman
Scar of the Bamboo Leaf, Sieni A.M
Shaman, (Series), Noah Gordon
Sick Kids in Love, Hannah Moskowitz
The Silent Boy, Lois Lowry
Six of Crows, (Series) Leigh Bardugo
Sizzle Reel, Carlyn Greenwald
The Spare Man, Mary Robinette Kowal
The Stagsblood Prince, (Series), Gideon E. Wood
Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver
Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]
The Storm Runner, (Series), J. C. Cervantes
Stronger Still, (Series), D. N. Bryn
Sweetblood, Pete Hautman
Tarnished Are the Stars, Rosiee Thor
The Theft of Sunlight, (Series), Intisar Khanani
Throwaway Girls, Andrea Contos
Top Ten, Katie Cotugno
Torch, Lyn Miller-Lachmann
Treasure, Rebekah Weatherspoon
Turtles All the Way Down, John Green
U-Z:
Unlicensed Delivery, Will Soulsby-McCreath
Expected release October 2023
Verona Comics, Jennifer Dugan
Vorkosigan Saga, (Series), Lois McMaster Bujold
We Are the Ants, (Series), Shaun David Hutchinson
The Weight of Our Sky, Hanna Alkaf
Whip, Stir and Serve, Caitlyn Frost and Henry Drake
The Whispering Dark, Kelly Andrew
Wicked Sweet, Chelsea M. Cameron
Wonder, (Series), R. J. Palacio
Wrong to Need You, (Series), Alisha Rai
Ziggy, Stardust and Me, James Brandon
Graphic Novels:
A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews
Constellations, Kate Glasheen
Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber
Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein
Frankie's World: A Graphic Novel, (Series), Aoife Dooley
The Golden Hour, Niki Smith
Nimona, N. D. Stevenson
The Third Person, (memoir) (Non-Fiction), Emma Grove
Magazines and Anthologies:
Artificial Divide, (Anthology), Robert Kingett, Randy Lacey
Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg
Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench
Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe
Nothing Without Us, edited by Cait Gordon and Talia C. Johnson
Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson
People with psychotic disorders are neurodivergent too.
People with personality disorders are neurodivergent too.
People with substance abuse disorders are neurodivergent too.
People with tic disorders are neurodivergent too.
People with bipolar disorder are neurodivergent too.
People with dissociative disorders are neurodivergent too.
Neurodivergence isn’t just ADHD, autism, anxiety, and depression. (Plus those last two also get left out sometimes!) Neurodivergence is anything that affects your brain.
“Neurodivergent people hate loud noises” is actually just as valid as a statement as “neurodivergent people have delusions,” “neurodivergent people have tics,” or even “neurodivergent people have low empathy.”
I need people to understand that, yes, what RFK jr. said about autism yesterday was absolute and utter bullshit...
However, what folks ALSO need to understand is this: even those points which he was correct about - that there really are folks who have such profound disabilities that "They'll never pay taxes, they'll never hold a job, they'll never play baseball, they'll never write a poem, they'll never go out on a date. Many of them will never use a toilet unassisted," - that those individuals are STILL PEOPLE WITH WORTH AND WHO DESERVE HUMAN RIGHTS AND RESPECT.
Human beings do not need to be useful or productive to deserve human rights. To say otherwise is pure eugenics. Full fucking stop.
So be careful about how you respond to his bullshit... because while what he described does NOT reflect reality for the largest percentage of individuals on the Autism Spectrum, even the folks that his comments DO realistically describe are human beings who do not deserve to be hit with the, "But Not Everyone Is Like That!" Because some really are, and even so, they STILL deserve respect, consideration, and not to be shit on like that.
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As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:
People with Down syndrome
People with Fragile X
People with William’s syndrome
People with dyslexia
People with dyspraxia
People with dyscalculia
People with dysgraphia
People with Prader-Willi syndrome
People with PANS or PANDAS
People with aphasia
People with a TBI (traumatic brain injury)
People with chronic/early onset mental illnesses
People with cerebral palsy
People with FASD or were otherwise disabled via other substances in utero
And many, many more I may have forgotten to list (but still support and love, I will add more to my list)
You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.
If you have Instagram, Meta has set an automatic limit on "political content" as a means to stop the spread of awareness about Palestine, Sudan, Congo and more places where genocide and injustice are being enacted.
You can remove the limit in your settings. Instructions:
1. Go to Settings and Activity
2. Scroll down and click go to Suggested Content
3. Click on Political Content
4. Select "Don't Limit"
Please share so more people know about this and what to do
On this year women's day, all we could think about are Palestinian women in Gaza.
Nearly 9,000 women have been killed in Israeli attacks in five months. Another 2,100 are missing and presumed dead, while 23,000 have been wounded and over half a million are displaced.
“Palestinian women, especially in the Gaza Strip, are exposed to the worst humanitarian catastrophe,” Ashraf al-Qudra, the health ministry’s spokesperson, said on Thursday.
Dozens of women and girls have also been detained and face harsh conditions in Israeli custody, including sexual abuse.
Women in Gaza also struggle to find menstruation products and access the necessary pregnancy and post-natal care. The consequences on reproductive health, including a rise in stress-induced miscarriages, stillbirths and premature births, have increased significantly.
Women in labour are undergoing caesarean procedures without anaesthetics, and a shortage of post-operative care such as medication, antibiotics and pain relief further exacerbates the situation.
According to the health ministry, 5,000 women give birth monthly in Gaza under “harsh, unsafe and unhealthy” conditions caused by Israeli bombing and displacement.
There are 60,000 pregnant women in Gaza suffering from “malnutrition, dehydration and lack of medical care.
There have also been repeated cases of Israeli soldiers mocking Palestinian women by posting videos and pictures of themselves rummaging through personal belongings in Gaza homes, making derogatory comments and posing with women’s underwear.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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when reproductive justice activists told us that overturning roe was just the beginning, this is what they meant. The ruling from Alabama is an outrageous violation of bodily autonomy.
Illustration of an older pregnant Black woman wearing a starry robe. Text reads, ‘protect access to IVF’ with smaller text that reads, ‘ivf helps queer and trans people, single women, older people, disabled people and couples struggling with in infertility.’
Digital art of a queer nonbinary teen with glasses and a beanie wearing a rainbow shirt with their back to us. They have a striped long sleeve on and red pants with a star patch. Text reads, ‘schools should be a safe place for queer and trans kids.’
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