meowdy @sadcabbage - Tumblr Blog

Had to go to the ER tonight because I've been in a massive flare since last Thursday night and my rheumatologist asked if i wanted a prednisone taper Monday and then never sent it in. Which made me have to call off the last 2 days due to just being MISERABLE and when I try and call to ask what's up he hasnt read ANY of the "high priority" messages and they catch attitude because all I wanted was help and i'm frustrated and hurting. Theyre also closed on Fridays so I'd be waiting until at least Monday so I had no choice but to go. Blood work showed inflammation levels being present so they dosed me with an iv steroid there and sent me a script in for the prednisone. At least work cant think I'm lying because they fill my scripts.

I am so miserable and so exhausted. The stress of it all made the flare way worse. I also am missing my brothers coming home ceremony for his deployment and my cousins vow renewal ceremony because I am not fit to travel in the car that long.

#about me #personal #systemic lupus erythematosus #sle flare #sle exacerbation #er visit #sad #angry #a day in the life #chronic illness #autoimmine disease

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Shot #8 of Benlysta down, meaning its been 2 months on the therapy.

Ive noticed some slight improvements. My flares havent been as bad, which is great because Summer is my enemy, my fatigue doesnt last as long, and my appetite is coming back. I was really struggling with food anxiety and aversion but its getting better.

Also getting the Durolane (the gel injection) last week has already improved my walking which will hopefully help my hip, ankle, and knee pain.

Progress!

#about me #personal #ginger #systemic lupus erythematosus #pain #flares #self injected medication #benlysta #durolane #chronic illness #chronic pain

angelvvrath

Was just diagnosed with “need to bite you” disorder. Yeah sorry it’s terminal. The only cure is biting you. C’mere.

wingkink

btw it's so fucking stupid you can be anxious physically in your body even after you've decided mentally you don't care. I'm supposed to be in charge here

Had an injection in my knee today. My cartilage is wearing out and I've had 3 steroid injections over the years. Now we did a gel injection to act like the cartilage I've lost once it hardens. Currently laid up in bed with a snack bag and a cat sleeping at my feet. From my knee down is numb because of the lidocaine injection. Feels very strange tbh.

Shes guarding my knee. She does this after every shot <3

#personal #about me #durolane injection #gel injection #systemic lupus erythematosus #knee pain #chronic illness #cat #tortie #tortoiseshell

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caffeinatedopossum

"I'm still kicking" is such a funny way to say "I'm still alive". Like lol. I'm still thrashing. Flailing. Writhing even. The violence remains.

Shot #6 of Benlysta down. Idk why i was so scared to do it in my belly, it was so much less painful (probably because i'm chubby). Bled a little more though.

Also we're seeing results because I had blood work done and my results were stable for the first time in years. So yay!

#benlysta #systemic lupus erythematosus #self injected medication #about me #plus size #tw blood #tw injections #autoimmune disorder

artndetails

— stillness.

elena-gilbert

KATE BECKINSALE as Anna Valerious Van Helsing (2004) dir. Stephen Sommers

#my bi awakening #kate beckinsale #van helsing

sadcabbage

Shot 4 of Benlysta done. My left thigh seems to just not work well for the injection, but Im still scared to do it in my tummy. Even though i have plenty of squish for it. I bled for the first time as well. Maybe i should get some fun bandaids to have on hand.

sadcabbage

I had an injection site reaction for the first time. It hurts. Feels like the spot is on fire and its sending little zaps in my nerves

#personal #about me #benlysta #injection site reaction #lupus #systemic lupus erythematosus

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Shot 4 of Benlysta done. My left thigh seems to just not work well for the injection, but Im still scared to do it in my tummy. Even though i have plenty of squish for it. I bled for the first time as well. Maybe i should get some fun bandaids to have on hand.

#about me #personal #benlysta #injected medication #self injected medication #systemic lupus erythematosus #plus size

I forgot to update, if anyone cares, 3rd Benlysta shot went well. I did it in my thigh again (you have to wait 2 weeks between injection sites) because doing it in my tummy scared me. I let it sit out for almost an hour this time (its stored in the fridge) and it hurt so much less. I also ask my pharmacists/coworkers for advice and they've helped alot. Very low side effects this time around. Just a lot of fatigue and aching because ohio weather keeps changing. Shot 4 will be this Monday and then I'm on vacation starting Wednesday after 5pm until the following Thursday for my fiance's birthday. No shot that week (my dr is aware and they said it was ok as long as i continue as normal). Ok baiii :)

#about me #lupus #benlysta injection #self injected medication #autoimmune disease #chronically ill #systemic lupus erythematosus #ginger #ohio

Did my 2nd Benlysta injection yesterday. Hurt so much more. Big owie compared to the 1st. Burned the entire 15 seconds. Left a giant welt on my thigh.

After week one side effects sucked. My stomach was upset, i felt feverish, nauseous, and so tired. But it subsided after 2 days.

Week 3 I start the injection in my stomach and I am terrified.

#about me #lupus #systemic lupus erythematosus #benlysta #self injected medication

obroechlins

maomao’s dedication to ignoring jinshi’s real identity is truly inspiring. the woman who has solved multiple murders based on minor clues in the environment keeps looking at every sign pointing to jinshi being royalty and going “damn, this could add up to something. good thing I can’t do math!”

sadcabbage

About to give myself my first Benlysta injection for my lupus treatment. I am shaking. Currently waiting the 30 minutes to let it warm up and have my little injection station set up.

sadcabbage

I did it. Burned like crazy, but it wasnt too bad. Ice cream time as a reward

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About to give myself my first Benlysta injection for my lupus treatment. I am shaking. Currently waiting the 30 minutes to let it warm up and have my little injection station set up.

#lupus #sle #systemic lupus erythematosus #benlysta #self injected medication #terrified #anxious #chronic illness #about me #day in my life

fujokafka

we need to bring back old school tumblr communication and im so serious. sending an ask to a mutual just to say hello. seeing three different asks in your inbox all asking how your dentist appointment went. seeing a post you think one of your mutuals would enjoy and tagging them/sending it to them in the dms. nowadays its just silently liking a post or (if youre feeling extreme) replying under posts. WHAT HAPPENED TO US!! we used to be a proper community!!!! #LetsBringWhimsyBack

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