Nobody Made You Click the Link

This Tumblr post is the first time someone has explained to me *why* I couldn’t feed them before those instances.

every single time i have had to say, "i understand that if he had food or water, he could aspirate it into his lungs under anesthesia. i am not lying to you." THEN someone would make a little note and i would stop being repeatedly asked.

not a single time was that risk explained to me. the only reason it came up was because i already knew. i still don't understand why it isn't standard pre-op counseling or pre-op check information, when me as a parent acknowledging the actual risk also put THE MEDICAL STAFF at ease because i conveyed that i had informed understanding as reason to not lie about giving my kid food.

The $1 per hour rule. It’s exactly what it says on the tin. If I’m purchasing physical media, I consider it good value if I can expect to get at least one hour of enjoyment for every dollar I spend on it.

I don’t remember what I spent on BG3, but I know it was a good deal because I’ve logged 600 hours in it. Hades II costs $30, and I was more than happy to pay that because I know I’ll play it for at least 30 hours. When I add books to my library, I almost exclusively buy used books that cost under $5 because 5 hours is a good average estimate for how long it takes me to finish a novel.

if you are in pain within minutes or seconds, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

if you are in extreme pain, not just "ugh my feet ache" pain but "i am going to pass out" pain, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

I mean, I can walk just fine, but standing in one spot for like 15 to 20 minutes will leave me in pain for days.

So that didn’t help

Meanwhile document the actual effect the pain/etc has on your life. Document how it impacts your ability to cook; your ability to clean; your ability to clean yourself; your ability to sleep; your ability to work; document all attempts to be more active and how the pain interferes with them. If you have to do something other than just go stand in the kitchen for ~1hr to cook a meal, that's something to write down; if you have to choose not to have a shower because it'll hurt, write that down. If the pain prevents you from going for a walk, write that down.

Every single time you make a decision about what you're doing based on the pain, you document that; every time you have to endure the pain for a necessary activity which then impacts what ELSE you can do, write that down too, with a direct connection.

(Warning: this will probably be depressing as all fuck and you will probably hate it. You are almost certainly ignoring the impact of pain on you way more than you think you are, and having to face it will feel bad in the short run. Very bad.)

And then you bring it either to your new doctor or if you MUST, to your current doctor, and you say: this is how the pain currently affects my quality of life. This is what I would be doing if I weren't prevented from doing it because of the pain.

Say that you would like to find the reason for this pain and you would like them to order relevant diagnostic tests. If they refuse, or hem and haw, ask them to document clearly in your records that you requested this and both that they refuse and their reasons for refusing.

If you must deal with the same doctor, document the concerns you have with the weight-loss drugs, and ask your doctor to be explicit about why she thinks that these risks are worth something that does not directly address your actual concerns. Ask why this is their first line treatment for the rest of what you've described, and why they are more concerned with pushing an overprescribed treatment than actually investigating the cause of your pain and addressing it appropriately based on an evidence-based diagnosis.

Hey there previous poster!

Even if it is major depressive disorder, this level of Incapacity and Exhaustion isn’t “just depressed”, it’s “suffering from a genuinely dangerous illness that needs to be treated or better treated right now”. If you’re not being treated, please pursue it; if you are, you need to go to your healthcare provider and say “this isn’t working well enough, fix it”. I’m not kidding when I say “dangerous” - our disease has a high mortality rate and this kind of incapacitation is linked with it trending that way.

BUT ADDITIONALLY: for this level of fatigue please force them to give you appropriate tests for Everything. Anaemia, thyroid issues, sleep apnea, EVERYTHING. Assuming depression can miss very treatable physiological disorders and very DANGEROUS ones as well.

I have never. Seen this specific typesetting mistake before. I've seen editing mistakes I've seen writing mistakes I've seen typos aplenty I have never seen someone accidentally paste the file version details into the text while typesetting.

that's the first page of the book as well like. I'm assuming this got missed because it obviously happened after the copy was finalised. that's an InDesign file (and not the first InDesign file of the project (clock the 'V2')) so idk much about the publishing process but this is presumably final final steps before committing to print.