DIDOSDD Predisc Culture is…

hi! im currently writing a character that is a full time wheelchair user and i wanted some help from actual wheelchair users in writing her!

if you’d like, can you share a little bit about life with a wheelchair?

things such as difficultys, things that people maybe jealous of you for, anything that comes to mind about daily life with a wheelchair!

it isn't even nearly as simple as these babies needing oxygen. they need incubators. and feeding tubes. and weight checks. and vitals checks. and hats. and blankets. and their (potentially dead) parents touch/presence (literally can help keep them alive). they need 24/7 supervision. they need to be in the neonate ICU, able to immediately go for surgery or imaging. they need this and more for MONTHS; i spent the first few months of my life in an incubator, on oxygen. i was not even able to be held by my parents.

without this intensive, even long term medical care, these babies WILL die. they just will. iirc, the complications of lung issues in premature babies is the leading cause of our death, and these babies are suffocating, some undoubtedly getting brain damage from low oxygen. there is no good reason that in another 22 years (my age), these babies should not be living life, surrounded by their loved ones. they should be able to live as long, happy, healthy lives as they would get with the best medical care on the planet.

1. “ritalin is a mobility aid”.

2. discourse on whether glasses are mobility aids or not. (correct answer: they are not. they are however disability aids.)

3. someone trying to defend chiropractors & also comparing EDS to a spinal cord injury / spinal deformity.

4. “i have adhd and consider myself crippled”.

5. someone (a stranger who is arguing with me) thinking they could call me a cripple because they’re also physically disabled.

6. seen before but recently again, the terms “adhd paralysis”, “scrolling paralysis” & “decision paralysis”. (look up executive dysfunction please.)

7. average misinformation about physical disability from average non cripple.

8. the use of the terms “crippling anxiety”, “crippling depression”, “crippling adhd” & “crippling (non crippling thing)”.

9. incredibly fatphobic comments from skinny™️ disabled ppl.

We have made some small updates to our blogs name!

Originally, this blog was named “plural egg culture” but I’ve recently decided a name change should be here. Being an “egg” is a term started by the trans community, and despite being trans myself, I don’t feel as though his blog should be using trans terminology.

“Egg” is a term used for trans people who are unaware that they are trans yet, and it’s usually labeled to unknown trans people by other trans people. So why can’t we apply this to systems? Because other systems can’t tell another system they are a system. It’s a covert disorder, it’s harmful to tell people they might be a system. It’s based in trauma, being hidden and staying safe. It’s a safety measure by your brain, being trans is an identity you learn about yourself. You can show signs of both but it’s significantly more damaging to tell someone they might be a system rather then telling someone they might be trans.

Therefore, I have renamed this blog to be “System Predisc. Culture is..” or any other variation that is given to this blog. For anyone sad to see this name go, I’m sorry but I feel as though it’s needed.

If you have any other, more clever ideas for this blog, you can share, and I might rename it to something more catchy then this.

With Love,

GIVE IT UP FOR DAY 15

I don't WANT you to know who is fronting. In the past when people knew that it put me in danger. I've been abused because I told someone who was fronting. I'm not comfortable with that anymore.