I wrote it for a friend, and theyâre releasing that bank soon, thus,,, a new list will become available.
Iâve legitimately no idea how compatible it is with the original VCCV list, or how it compares with the extensions many of you have made. So, youâll have to figure that out on your own! Sorry!
I donât have the will to make a new set of tutorials for it either, but there will at least be a cute little pdf with instructions. (A tiny part of my soul dies when you donât follow the instructions.)
I apologize for dropping the original list and basically running away on you in 2015. That whole thing put me in quite a burnout. Iâm talking like visiting the hospital a couple times kind of burnout.
Iâm doing a whole lot better now, but Iâve mostly been refocusing on my health, artwork, Live2D, and a tiny bit of Vtubing recently.
Also, YES, you can use the list to sell your VCCV UTAU banks commercially. (The original terms of use has finally been updated.)
Listen, Iâm tired and I hate the state that capitalism is in right now. I donât like needing to have money to survive. So please donât steal my work. Please credit me. Please make cool things that you love! And have some fun!
Iâll try my best to have more updates for you soon. Ok thanks bye!
A lot of irl things are happening right now and Iâm more or less staying offline until that all calms down which should be by October.
Will try my best to get the list out to the public then as long as my mental and physical health survive everything. lol
Iâm also working to make sure both VCCV lists work well in Mikoto.
AND Iâve begun experimenting with a new list for Mikoto specifically. (Though it will technically be UTAU compatible.)
Iâve no idea if it will ever hit the public or not but Iâm excited to suffer in new and exciting ways for this hobby that has chosen me and wonât let me go. :â)
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i got rickrolled today but it didn't work because i have adblocker installed, so youtube just told me i violated the terms of service. yesterday i was trying to edit a picture as a joke for my girlfriend, and google made me check a box to prove i'm human because i wasn't "searching normally".
it isn't just that capitalism is killing fun and whimsy, it is that any element of entertainment or joy is being fed upon by this mosquito body, one that will suck you dry at any vulnerability.
do you want to meet new friends in your city? download this app, visit our website, sign up for our email list. pay for this class on making a terrarium, on candlemaking, on cooking. it will be 90 dollars a session. you can go to group fitness, but only under our specific gym membership. solve the puzzle, sign up for our puzzle-of-the-month-club. what is a club if not just a paid opportunity - you are all paying for the same thing, which makes you a community.
but you're like me, i know it - you're careful, you try the library meetings and the stuff at the local school and all of that. the problem is that you kind of want really specific opportunities that used to exist. you are so grateful for libraries and the publicly-funded things: they are, however, an exception - and everything they have, they've fought tooth-and-nail to protect. you read a headline about how in many other states, libraries have virtually nothing left.
do you want to meet up with your friends afterwards? gift your friends the discord app. you can choose to go to a cafe (buy a coffee, at least), a bar (money, alcohol) or you can all stay in and catch a movie (streaming) or you can all stay in bed (rent. don't get me started) and scream (noise complaint. ticket at least).
you want to read a new book, but the book has to have 124 buzzwords from tiktok readers that are, like, weirdly horny. you can purchase this audiobook on audible! your podcast isn't on spotify, it's on its own server, pay for a different site. fuck, at least you're supporting artists you like. the art museum just raised their ticket price. once, they had a temporary exhibit that acknowledged that ~85% of their permanent art galleries were from cis white men, and that they had thousands of works by women (even famous women, like frida! georgia o'keefe!) just rotting in their basement. that exhibit lasted for 3 months and then they put everything away again.
walmart proudly supports this strip of land by the street! here are some flowers with wilting leaves. its employees have to pay out-of-pocket for their uniforms. my friend once got fined by the city because she organized a community pick-up of the riverfront, which was technically private property.
no, you cannot afford to take that dance class, neither can i. by the way - i'm a teacher. i'm absolutely not saying "educators shouldn't be paid fairly." i'm saying that when i taught classes, renting a studio went from 20 bucks an hour to 180 in the span of 6 months. no significant changes to the studio were made, except they now list the place as updated and friendly. the heat still doesn't work in the building. i have literally never seen the landlord who ignores my emails. recently they've been renting it out at night as an "unusual nightclub; a once-in-a-lifetime close-knit party." they spent some of those 180 dollars on LEDs and called it renovating. the high heels they invite in have been ruining the marley.
do you want to experience the old internet? do you want to play flash games or get back the temporary joy of club penguin? you can, you just need to pay for it. i have a weird, neurodivergent obsession with occasionally checking in to watch the downfall and NFT-ification of neopets. if i'm honest with you all - i never got into webkins, my family didn't have the money to buy me a pointless elephant. people forget that "being poor" can mean literally "if i buy you that toy, i can't afford rent."
you and i don't have time to make good food, and we don't have the budget for it. we are not gonna be able to host dinner parties, we're not made of money, kid. do you want some kind of 3rd space? a space that isn't home or work or school? you could try being online, but - what places actually exist for you? tiktok counts as social media because you see other people on it, not because they actually talk to you.
there was a local winter tradition of sledding down the hill at my school. kids would use pizza boxes and jackets and whatever worked, howling and laughing. back in september, they made a big announcement that this time, rules were changing, and everyone must pay 10 dollars to participate. when im not scared shitless, i kind of appreciate the environmental irony - it hasn't gone below 40. so much for snow & joyriding.
i saw a bulletin for a local dogwalking group and, nervous about making a good first impression, showed up early. the first guy there grimaced at me. "sorry," he said. "there's a 30-dollar buy-in fee." i thought he was joking. wait. for what? the group doesn't offer anything except friendship and people with whom to walk around the city.
he didn't know the answer. just shrugged at me. "you know," he said. "these days, everything costs money."
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I keep waking up every morning just⌠beside myself with how angry? I am at the state of just nearly everything right now.
Angry because it feels impossible to handle. Angry because any seemingly smart thing to do about it is to say âThatâs too big of a problem for me to handleâ and then get out of bed and get on with the rest of your day.
And if you try too hard thinking about it, it just turns into hopelessness and thatâs not gonna fucking do it.
So itâs like Iâm just sitting here in a holding pattern waiting until ??? thereâs something for me to do!?
Anyway, so I watched hbomberguyâs 4 hour video essay a few days ago.
It was like a surgical procedure.
Maybe if I sit down and write a well researched essay Iâll feel better. Or at least feel like I did something. Or at least better understand what the hells is happening to the world right now.
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Fatigue Is So Much More Than Being Tired - The Atlantic
Fatigue is among the most common and most disabling of long COVIDâs symptoms, and a signature of similar chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS). But in these diseases, fatigue is so distinct from everyday weariness that most of the people I have talked with were unprepared for how severe, multifaceted, and persistent it can be.
For a start, this fatigue isnât really a single symptom; it has many faces. It can weigh the body down: Lisa Geiszler likens it to âwearing a lead exoskeleton on a planet with extremely high gravity, while being riddled with severe arthritis.â It can rev the body up: Many fatigued people feel âwired and tired,â paradoxically in fight-or-flight mode despite being utterly depleted. It can be cognitive: Thoughts become sluggish, incoherent, and sometimes painfulâlike âthereâs steel wool stuck in my frontal lobe,â Gwynn Dujardin, a literary historian with ME, told me.
Fatigue turns the most mundane of tasks into an âagonizing cost-benefit analysis,â Misko said. If you do laundry, how long will you need to rest to later make a meal? If you drink water, will you be able to reach the toilet? Only a quarter of long-haulers have symptoms that severely limit their daily activities, but even those with âmoderateâ cases are profoundly limited. Julia Moore Vogel, a program director at Scripps Research, still works, but washing her hair, she told me, leaves her as exhausted as the long-distance runs she used to do.
And though normal fatigue is temporary and amenable to agencyâeven after a marathon, you can will yourself into a shower, and youâll feel better after sleepingârest often fails to cure the fatigue of long COVID or ME/CFS. âI wake up fatigued,â LetĂcia Soares, who has long COVID, told me.
Between long COVID, ME/CFS, and other energy-limiting chronic illnesses, millions of people in the U.S. alone experience debilitating fatigue. But American society tends to equate inactivity with immorality, and productivity with worth. Faced with a condition that simply doesnât allow people to moveâeven one whose deficits can be measured and explainedâmany doctors and loved ones default to disbelief. When Soares tells others about her illness, they usually say, âOh yeah, Iâm tired too.â When she was bedbound for days, people told her, âI need a weekend like that.â Soaresâs problems are very real, and although researchers have started to figure out why so many people like her are suffering, they donât yet know how to stop it.
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Post-exertional malaise, or PEM, is the defining trait of ME/CFS and a common feature of long COVID. It is often portrayed as an extreme form of fatigue, but it is more correctly understood as a physiological state in which all existing symptoms burn more fiercely and new ones ignite. Beyond fatigue, people who get PEM might also feel intense radiant pain, an inflammatory burning feeling, or gastrointestinal and cognitive problems: âYou feel poisoned, flu-ish, concussed,â Misko said. And where fatigue usually sets in right after exertion, PEM might strike hours or days later, and with disproportionate ferocity. Even gentle physical or mental effort might lay people out for days, weeks, months. Visiting a doctor can precipitate a crash, and so can filling out applications for disability benefitsâor sensing bright lights and loud sounds, regulating body temperature on hot days, or coping with stress. And if in fatigue your batteries feel drained, in PEM theyâre missing entirely. Itâs the annihilation of possibility: Most people experience the desperation of being unable to move only in nightmares, Dujardin told me. âPEM is like that, but much more painful.â
Medical professionals generally donât learn about PEM during their training. Many people doubt its existence because it is so unlike anything that healthy people endure. Mary Dimmock told me that she understood what it meant only when she saw her son, Matthew, who has ME/CFS, crash in front of her eyes. âHe just melted,â Dimmock said. But most people never see such damage because PEM hides those in the midst of it from public view. And because it usually occurs after a delay, people who experience PEM might appear well to friends and colleagues who then donât witness the exorbitant price they later pay.
âŚ
Oller thinks this dismissal arises because PEM inverts the dogma that exercise is good for youâan adage that, for most other illnesses, is correct. âItâs not easy to change what youâve been doing your whole career, even when I tell someone that they might be harming their patients,â she said. Indeed, many long-haulers get worse because they donât get enough rest in their first weeks of illness, or try to exercise through their symptoms on doctorsâ orders.
People with PEM are also frequently misdiagnosed. Theyâre told that theyâre deconditioned from being too sedentary, when their inactivity is the result of frequent crashes, not the cause. Theyâre told that theyâre depressed and unmotivated, when they are usually desperate to move and either physically incapable of doing so or using restraint to avoid crashing. Oller is part of a support group of 1,500 endurance athletes with long COVID who are well used to running, swimming, and biking through pain and tiredness. âWhy would we all just stop?â she asked.
Some patients with energy-limiting illnesses argue that the names of their diseases and symptoms make them easier to discredit. Fatigue invites people to minimize severe depletion as everyday tiredness. Chronic fatigue syndrome collapses a wide-ranging disabling condition into a single symptom that is easy to trivialize. These complaints are valid, but the problem runs deeper than any name.
Dujardin, the English professor who is (very slowly) writing a cultural history of fatigue, thinks that our concept of it has been impoverished by centuries of reductionism. As the study of medicine slowly fractured into anatomical specialties, it lost an overarching sense of the systems that contribute to human energy, or its absence. The concept of energy was (and still is) central to animistic philosophies, and though once core to the Western world, too, it is now culturally associated with quackery and pseudoscience. âThere are vials of âenergy boostersâ by every cash register in the U.S.,â Dujardin said, but when the NIH convened a conference on the biology of fatigue in 2021, âspecialists kept observing that no standard definition exists for fatigue, and everyone was working from different ideas of human energy.â These terms have become so unhelpfully unspecific that our concept of âfatigueâ can encompass a wide array of states including PEM and idleness, and can be heavily influenced by social forcesâin particular the desire to exploit the energy of others.
As the historian Emily K. Abel notes in Sick and Tired: An Intimate History of Fatigue, many studies of everyday fatigue at the turn of the 20th century focused on the weariness of manual laborers, and were done to find ways to make those workers more productive. During this period, fatigue was recast from a physiological limit that employers must work around into a psychological failure that individuals must work against. âPresent-day society stigmatizes those who donât Push through; keep at it; show grit,â Dujardin said, and for the sin of subverting those norms, long-haulers âare not just disbelieved but treated openly with contempt.â Fatigue is âprofoundly anti-capitalistic,â Jaime Seltzer, the director of scientific and medical outreach at the advocacy group MEAction, told me.
Energy-limiting illnesses also disproportionately affect women, who have long been portrayed as prone to idleness. Dujardin notes that in Western epics, women such as Circe and Dido were perceived harshly for averting questing heroes such as Odysseus and Aeneas with the temptation of rest. Later, the onset of industrialization turned women instead into emblems of homebound idleness while men labored in public. As shirking work became a moral failure, it also remained a feminine one.
âŚ
Some COVID long-haulers do recover. But several studies have found that, so far, most donât fully return to their previous baseline, and many who become severely ill stay that way. This pool of persistently sick people is now mired in the same neglect that has long plagued those who suffer from illnesses such as ME/CFS. Research into such conditions are grossly underfunded, so no cures exist. Very few doctors in the U.S. know how to treat these conditions, and many are nearing retirement, so patients struggle to find care. Long-COVID clinics exist but vary in quality: Some know nothing about other energy-limiting illnesses, and still prescribe potentially harmful and officially discouraged treatments such as exercise. Clinicians who better understand these illnesses know that caution is crucial. When Putrino works with long-haulers to recondition their autonomic nervous system, he always starts as gently as possible to avoid triggering PEM. Such work âisnât easy and isnât fast,â he said, and it usually means stabilizing people instead of curing them.
---
Ed Yong's follow up to his previous piece on post-COVID brain fog published last year:
What Makes Brain Fog So Unforgiving - The Atlantic
btw ed yong has said that he has recorded an audio version of this piece that should help make it more accessible for people whose symptoms make it difficult to read long pieces, though from what i can tell i don't think that has gone up yet.
he has also offered to personally email a copy of this piece to anyone who cannot access it
the archived versions of the article that i linked above should get around the paywall, but this still may be an option with regard to the audio version? not sure, but thought i'd include his offer in case it is helpful to anyone
I wrote it for a friend, and theyâre releasing that bank soon, thus,,, a new list will become available.
Iâve legitimately no idea how compatible it is with the original VCCV list, or how it compares with the extensions many of you have made. So, youâll have to figure that out on your own! Sorry!
I donât have the will to make a new set of tutorials for it either, but there will at least be a cute little pdf with instructions. (A tiny part of my soul dies when you donât follow the instructions.)
I apologize for dropping the original list and basically running away on you in 2015. That whole thing put me in quite a burnout. Iâm talking like visiting the hospital a couple times kind of burnout.
Iâm doing a whole lot better now, but Iâve mostly been refocusing on my health, artwork, Live2D, and a tiny bit of Vtubing recently.
Also, YES, you can use the list to sell your VCCV UTAU banks commercially. (The original terms of use has finally been updated.)
Listen, Iâm tired and I hate the state that capitalism is in right now. I donât like needing to have money to survive. So please donât steal my work. Please credit me. Please make cool things that you love! And have some fun!
Iâll try my best to have more updates for you soon. Ok thanks bye!
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
â Live Streamingâ Interactive Chatâ Private Showsâ HD Quality
Anya is LIVE right now
FREE
Free to watch ⢠No registration required ⢠HD streaming