Endometriosis: My Life With You

Days 1 and 2 of our endometriosis awareness challenge!

it's not exactly invisible... is it? I have surgery scars and my hair grows funny, I developed acne...

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Hi guys!

    As many of you know, I have a disease called endometriosis. This is a disease without a cure, (only very temporary treatments, mostly hormonal based. So in order to get Endo in check, it requires you to mess with the rest of your entire body)     This disease is considered entirely taboo because it revolves around the woman's reproductive system, which is ridiculous. It's a disease that acts like cancer, it spreads around the body and attacks organs, mostly the abdomen, but in severe cases it's been found in the brain and lungs even!    The 1 in 10 women that have it suffer from debilitating pain that prevents them from living a normal life. Many people and doctors alike have no idea about this disease.        Women not only suffer with pain, but criticism that we're lazy or whining about menstrual pains. We lose jobs, friends, relationships and family over this illness, all because it's misunderstood.

    I'm trying to break the taboo, make the world aware that we are suffering and just want to be normal. To do this, I'm creating a movement online, making awareness for this disease.     But I need everyone's help!     Just because you don't have this disease doesn't mean it doesn't affect you! There are women in your life suffering and you can help!     Please, go like my page. During the month of March, we're going to do everything we can to make awareness for this disease go VIRAL. This includes creating hashtags, videos, statuses, pictures expressing the problems we face everyday and to push the need for a cure!     By making endometriosis 'trend', it'll push us one step closer to a cure. But to get this, we need as many people to participate as possible!

 Please go like and look for updates and plans! It will mean the world to me, the 176 million women it affects, and the loved ones who have to see us suffer.

Together we will make a difference.

1. I had a feeling before I was ever diagnosed with endometriosis that I had it.

2.I've been banned from a doctor's office because they thought I was making up my symptoms to get pain killers. This was even after the doctor had opened me up and saw the damage that had been done

3. I only have one ovary and one fallopian tube.  With my first surgery back in July 2012 when I was diagnosed, he didn't have the proper tools to be removing endometrioma, let alone lesions. Which doesn't make sense to me, since he knew that was the biggest reason he was going in there... to remove a giant cyst!

4. The only reason I got him to listen to me when I thought that it was endo was because of that giant cyst. I named him Voldemort because it sort of looked like the back of Quirrel's head when he was carrying Voldy around on there. (i would have been completely convinced if he was wielding a wand... or a dark mark) Because of the way the doctor removed the cyst, I lost the majority of my ovary, which over the next year and a half, got worse and started gathering eggs and blood in my fallopian tube. No matter how much I tried to explain how much pain I was in, he didn't get it. He confessed to me after having me half way through a Lupron Treatment that he didn't know what he was doing.

5.I was on Lupron Depot for 3 months, I couldn't take it any longer than that! I was constantly sick, always felt like I was was in the early stages of catching the flu. My hair started coming out in chunks or breaking off in spots. It also messed with my teeth, which is a huge reason why I have braces now

6.I've been on short term leave since the end of August. While I've been on leave, my job got rid of my position, so I have no job to go back to when I'm ready to go back. I dont feel like I'm ever going to be able to work full time again. After all I've been through the last year and a half, I haven't been able to make it through more than 2 days a week. One day of work makes me hurt so badly, I'm so sick after that I'm completely bed ridden for the next day or so.

7.I haven't had a boyfriend in over a year now. The last one I had ended up resenting me because of my illness. He dumped me the day after christmas after ditching me in front of my whole family christmas eve and ignoring me all day Christmas. Surprisingly. I'm pretty insecure about dating now. I'd known him for years and could honestly say I was in love with him... I'm too scared to even try dating again.

8. I've had 3 surgeries and with every single one, They've removed endometriosis. This is 3 surgeries in16 months, it continues to grow back fast and hard.

9. I've lost a lot of friends because they don't understand what this disease makes a person go through. My best friend growing up told me I was faking it because she knew a girl who has endo who never ever was as bad as me. She said I was a whiner and then shortly after stopped speaking to me.

10. I live with my mum, which doesn't bother me one bit. I love the woman to death. She's an amazing support system. But right before I got so sick, I was in line for a huge promotion and looking into buying my own house. Since I've been sick, I've been passed up for that promotion twice. Makes a person feel pretty pathetic.