Older Than Most

ТГК: @marimorzhhh (marimorzh)

So the translation is: Qui-Gon says, "I see that you're in luck, but we're not complaining either. I'm betting on this boy." And Obi-Wan says, "MASTER🤧".

I love just about everything you draw, but especially the art featuring the little padawan cadet with Cody and Obi-Wan 😌🥰. Do you think you will draw them again and explore some new angle of their life?

Rat wishes you all a mischievous and relaxed week!

me, an elder fandom veteran, suddenly having anne rice flashbacks:

no.

NO.

starting to rock back and fourth.

you do not understand.

you were born into an age of peace. i was there Gandalf. i was there three thousand years ago. i remember the cease and desists. i remember authors hunting fanfic writers for sport. i remember when every fic opened with a disclaimer because we genuinely thought it might protect us.

we do not charge money for the copyrighted gay wizard stories.

do not tempt fate youngling.

step away from the paywall.

that is how you summon the ancient evils.

in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.

people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.

My ward is the respiratory ward - CF is one of the things we specialize in.

Since this med came out we haven't had a SINGLE CF admission to the ward

There used to always be a CF patient spending a couple of months with us at a time

There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)

There's a set of the local frequent flyers that we all know so well

Except

No we don't

On the CF specialist ward (with reasonable staff turnover)

Half the staff have probably never even seen a CF patient

Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.

That is per month with the most common coupon people are likely to use.

But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.