Met with a speech therapist today. She was very nice and informative but also told me straight-up that she wasn’t as well versed on EDS as she’d like but that she’d done a lot of research leading up to our appointment.
We talked for a bit about EDS and MCAS in general, before discussing how I’ve been handling my dysphagia by myself.
She told me I was already doing everything she’d tell me to do and unless I wanted to do a barium swallow study (possibly not a good idea with MCAS) there wasn’t much else she’d recommend, and it seemed like I had a good handle on it.
I appreciated that honesty and expressed thankfulness to know I was already doing all the right things.
Got home a few hours ago and saw my mychart had updated with some test results. Checked those, then on a whim checked the summary notes from the speech therapist.
Top line of the summary just says, “Patient knows more than me.”
I mean, A+ for humility, I guess 😂
