about me ★ masterlist ★ request rules ★ anons ★ my ao3
please send requests for my 1k event 🙏
tags:
♥︎ #rangie's rambles – random thoughts + life updates
♥︎ #rangie's answers – ask answers
♥︎ #the kitties – my cats; nox, jyn & bean
I'd rather be in outer space 🛸
DEAR READER

izzy's playlists!
will byers stan first human second

Andulka
One Nice Bug Per Day
2025 on Tumblr: Trends That Defined the Year
let's talk about Bridgerton tea, my ask is open

tannertan36
d e v o n
taylor price
wallacepolsom
art blog(derogatory)
YOU ARE THE REASON

shark vs the universe

roma★
todays bird
AnasAbdin
$LAYYYTER

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@bahngarang
about me ★ masterlist ★ request rules ★ anons ★ my ao3
please send requests for my 1k event 🙏
tags:
♥︎ #rangie's rambles – random thoughts + life updates
♥︎ #rangie's answers – ask answers
♥︎ #the kitties – my cats; nox, jyn & bean

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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I know it's more nuanced than this but I think having a hard policy of thinking anyone who genuinely hates one group of queer people for their identity might as well hate all of us and thus I should block any queerphobic queer person I see can do a lot to save you from believing anything exclusionists say.
"bomb that kills all-" "I just don't get bi women bringing their-" "pansexuality isn't a real thing-" "all lesbians-" "trans men really are men bcs they're all misogynistic predators-" "theyfabs-" "pfft aroace people are cringe-" "nonbinary people are actually all-" Instant block. Goodbye. Not listening. It's for both solidarity with your fellow queers AND to protect yourself, because once a person is convinced to hate one group for their immutable traits they can be convinced fairly easily to hate another too, and thus I do not trust them.
Just block these people the second they pop up, they aren't your allies and nothing they have to say is worth listening to.
you’re allowed to be a boy btw. You’re allowed to be a girl. You’re allowed to be both or neither or something else entirely. You’re allowed.
Oh you take medications to manage your symptoms? That pales in comparison to my strategy of only eating raw eggs, avoiding anything that could possibly cause a flare-up and taking 50 different supplements every day.
I don't want to depend on pills for the rest of my life, that's why I decided to manage my chronic health condition with wellness & diet products that I will need to keep purchasing indefinitely.
I don't trust big pharma, but I trust influencers selling me their stuff, I have a parasocial relationship to them, they would never lie to me!
Hello I would like pills and health treatments but like not regulated at all and marketed with false promises only by people who cannot be held accountable.
so.. I return
yeah that’s my bad for coming back so late. I honestly meant to send another ask but just never got around to it?
anyways yeah the dress was a /neg I just forgot to include that
~ 🐦⬛
I was just thinking about you the other day actually, glad you're back :)
I kinda thought the dress thing was /neg but I didn't want to assume

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i think we should be talking about the semi-recent advancements in cystic fibrosis treatment like all the time every day. there hasn’t been a drug like this since AZT medications for HIV infection it is truly fucking miraculous and very important
basically: cystic fibrosis is a genetic disease which makes the mucous a person generates extra sticky. it used to kill people in infancy, then with advancements in medical tech it killed people in young childhood, and until very recently cystic fibrosis patients could expect to live until about thirty years old with consistent painful lung infections and complications.
in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.
people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.
like isn’t that insane. isn’t that amazing. doesn’t that give you hope for the future of medical advancements and treatment. fuck. i think about it all the time……
There’s a WHAT.
For WHAT.
It's been amazing!
My ward is the respiratory ward - CF is one of the things we specialize in.
Since this med came out we haven't had a SINGLE CF admission to the ward
There used to always be a CF patient spending a couple of months with us at a time
There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)
There's a set of the local frequent flyers that we all know so well
Except
No we don't
On the CF specialist ward (with reasonable staff turnover)
Half the staff have probably never even seen a CF patient
They are going to live
For the people asking "well how do we know people are living that long if it's so new????" Here's a page from the CF foundation about life expectancy.
Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.
But the fact remains that the odds are better now than they have ever ever been before, by leaps and bounds. It isn't cured, and many patients still need significant treatment in addition to Trikafta, but it is so much better than anyone could have dreamed of twenty years ago, and that is a triumph.
Yes! My sister has a serious form of cf and finally is living a more comfortable and active life. She was also part of many of the clinical trials leading to these breakthroughs due to the nature of her cf. It's been very exciting to see.
That's absolutely incredible. Don't get me wrong. It's miraculous from a clinical standpoint. But, uhh. Not to be a downer but I need people to see this so they stay angry and stay real about what medical breakthroughs actually mean for patients. When I call something "survival gatekeeping", this is what I mean:
That is per month with the most common coupon people are likely to use.
But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.
NEVER look at something like this and navigate away feeling better about things without asking how much it costs and who can get it. NEVER. It isn't revolutionary until poor people can access it without a struggle.
Vertex doesn't just charge a ton of money. They actively block generics and decline to make it available in developing nations.
Reshma Kewalramani, the current CEO of Vertex Pharmaceuticals, makes $20.6 million a year. The prior CEO, Jeffrey Leiden, is still on the board and makes $8.6 million a year.
The developing nations are fighting back though!
Tipranks Press Release.
too weird for normal kids too normal for weird kids Just right for being alone and miserable my entire life
a Common misconception under this post is that the weird kids will not judge you. I have news for you
they should invent a job that doesn't affect your schedule or energy level that you don't have to go to if you don't want but you still get paid
so, like, universal basic income?
I see we’ve reached the “blame your failures on communist subterfuge” phase of the AI business plan
The AI business plan, for reference:
1. Promise everything.
2. Piss off everyone.
3. Deliver nothing.
4. Blame asians?
when i was a kid i had moments of being so fucking diabolical because i realized at some point the best way to leverage power over my family was to do shit that would make everybody late
our house was in the middle of nowhere surrounded by woods so when i decided i didnt want to wear dresses anymore if we were going to some event & my parents insisted i had to wear a dress i would just go hide in the woods. was so committed i almost made us miss a flight once bc my mom packed a dress in my suitcase
i only promised to stop doing this if my parents got me formal boys clothes to wear which eventually they did. i don't feel bad about resorting to violence bc i asked politely and they said no. proud of 10 yr old me for evil annoying lesbian behavior
5th grade was the last time I wore a dress for school pictures. When my parents attempted to force the issue for 6th grade, I climbed onto our roof and pulled the ladder up after me. My dad borrowed the neighbors ladder. As soon as it touched the roof I pulled it up too. By the time I had 3 ladders they were willing to negotiate, and 2 hours late for work.
[Image ID: a tumblr tag reading "problems that can be avoided if you simply treat your child as a human being with the right to make decisions on what they wear". End ID]

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I will not call myself or other people "gooners" or "npcs" or "larpers". i will not call things i dont like "slop". i will not use terms like "-oids". i dont like how common language is slowly becoming more focused on shorthand terms for hate and apathy
Tags from @crystaltoa
Decided to archive lock the last of my fics on Ao3 as I just encountered a new AI flavor of the commission scam ("I loved your work! May I please commission you/you can commission me, reach out to me at this shady link or discord handle"), which uses AI to write a comment that looks at first glance like it's actually read the fic. And it's a long comment, the kind authors love to receive, that describes multiple things they liked. Here's what I got on my tumblr post fic link:
It's the "I kept picturing" line listing things that really reveals the nonsensical processing of AI, because choosing visual moments that would make good connected comic panels is more difficult to simulate, and it also attributes "the glimmer of amber scales" to Essek when that is very very obviously Caleb in the fic, and there is a grammar/punctuation issue ("as panels the row") that doesn't feel natural. And for the scam element, the classic unsolicited "reach out to me on Discord" hook should always be suspect.
I decided to check the user's tumblr profile, and what do you know: it's empty, of course, with 0 posts. And their profile banner is literally an AI generated image with the big DREAMS TIME watermark right in the middle. And if this was not enough: all their Likes/Comments are visible. And all of them are on posts with Ao3 links like mine, and every single comment shares the exact same format. A few sentences complimenting themes and moments, followed by "I draw comics, and honestly I kept picturing [that scene] as a panel/series of panels [described]. If you ever want to see a scene as a comic, I'm on Discord at margarita._.morales. This fic really stuck with me, thank you for sharing it." And the time stamp for all these comments are like 2min apart, because the bot is trawling for ao3 link posts that have the tag "Ao3 link".
Most people already know or should know that any comment from a stranger (positive or negative!) that's trying to get you to go to a different platform like Discord is almost always a scam. The laundry list of other flags are also familiar: soulless empty profile, the fact that likes/comments are not hidden, the fact they only follow the default Staff account, the fact some things that don't quite make sense in the message. But before I registered all these things, the effusive specificity of the message initially made me happy. It achieved seeming real at first glance, even if it fell apart immediately under a due diligence mental checklist. And it's because it fed my work into fucking AI.
So anyway, if you've ever posted Ao3 links here or tagged such posts as "Ao3 link" or similar, keep an eye out for bullshit like this and consider archive locking your works if you want to protect them.
Documented evidence of war crimes in Gaza and the West Bank.
STOP SCROLLING
Your life ends in the wasteland.
there’s a japanese radish just below this post but you can’t reach it
the second radish is 29 feet away
this is legitimately the funniest post on this site

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Awwwwww I love happy endings