Today I received a little care package from the Pheo Para Alliance. There's an old saying in medicine, "if you hear hoofbeats, think horses, not zebras." The problem with that is, of course, if you are a zebra you are totally fucked. I was lucky I have a doctor who thinks zebras every time he sees me (I have Ehlers-Danlos Hypermobility Syndrome, so I am already a zebra) and he figured out I had a neuroendocrine tumor pretty quick compared to a lot of patients. The time-consuming part has been convincing an endocrinologist to agree with him and order scans to confirm it. Next week I go to the University of Florida to find out what we can do about it. I am trying to be realistically optimistic.















