I am 35 and I have friedreich's ataxia. Friedreich ataxia is an inherited condition that affects the nervous system and causes movement problems. People with this condition develop impaired muscle coordination (ataxia) that worsens over time. Other features include the gradual loss of strength and sensation in the arms and legs, muscle stiffness (spasticity), and impaired speech. Many individuals have a form of heart disease called hypertrophic cardiomyopathy. Some develop diabetes, impaired vision, hearing loss, or an abnormal curvature of the spine (scoliosis). Most people with Friedreich ataxia begin to experience the signs and symptoms around puberty. This condition is caused by genetic changes in the FXN gene and is inherited in an autosomal recessive pattern.
I have lost most of my ability to move. My arm muscles still work fairly well.
This will be a blog about little things I have purchased that help me while living with a disability and maybe it will help someone else.
