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im starting to think my #issues are also a long covid thing. ME/CFS is really fitting the bill. there is something wrong with me I swear to GOD!!
doctors just donāt listen. it might not be lupus after all. that would make a lot of sense, since ME/CFS is like. hard to diagnose since thereās no discernible test for it.
like ok, there was a time I would take my iron and vitamin c twice a day every day for weeks and I still felt tired. It just didnāt help much. And I know what youāre thinking, you need to keep taking it to feel effects.
Yes but also I shouldāve felt SOMETHING from a month of a high dose of iron twice every single day.
im starting to think my #issues are also a long covid thing. ME/CFS is really fitting the bill. there is something wrong with me I swear to GOD!!
doctors just donāt listen. it might not be lupus after all. that would make a lot of sense, since ME/CFS is like. hard to diagnose since thereās no discernible test for it.
like ok, there was a time I would take my iron and vitamin c twice a day every day for weeks and I still felt tired. It just didnāt help much. And I know what youāre thinking, you need to keep taking it to feel effects.
Yes but also I shouldāve felt SOMETHING from a month of a high dose of iron twice every single day.
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got a rollator today finally and having sudden guilt about it. I have chronic anemia and weak ankles but thatās it. and if I were to consistently take my iron it wouldnāt be as bad. of course, thatās been without carrying heavy things during college since itās been the summer (it was way worse during the school year). so Iām thinking I should suck up feeling guilty honestly.
I keep reading posts on how mobility aids are for everyone, and I can already see it making life easier for me. but thereās just this part in the back of my mind thatās like āyou just havenāt gotten bad enough yetā even though Iād never say that to someone else. Itās weird.
I did also get tested for lupus and it came back positive, but then when they went further into it were like āfalse alarm!ā So I think itās just too early to tell, I do have the symptoms though.
[remembers I have a pinched nerve in my neck that makes it hard for me to carry things and move at certain angles] oh yeah haha
got a rollator today finally and having sudden guilt about it. I have chronic anemia and weak ankles but thatās it. and if I were to consistently take my iron it wouldnāt be as bad. of course, thatās been without carrying heavy things during college since itās been the summer (it was way worse during the school year). so Iām thinking I should suck up feeling guilty honestly.
I keep reading posts on how mobility aids are for everyone, and I can already see it making life easier for me. but thereās just this part in the back of my mind thatās like āyou just havenāt gotten bad enough yetā even though Iād never say that to someone else. Itās weird.
i've said it already probably but ppl who don't use mobility aids. especially doctors. stop trying to get rid of other ppls mobility aid. stop making that a priority. stop it with the "we gotta get you off that [mobility aid]" "you shouldn't need to be using a [mobility aid]" "let's focus on getting you to where you don't need [mobility aid]" "a [mobility aid]? but have you tried [herb]/[medicine]/ [exercise]/[facebook hack]/[pseudoscience]/[meditation] instead?" "but you look old/cringe/weak/sick". shut up
i don't know why so many of y'all think my end goal is to stop using the thing that helps me. and i KNOW most of y'all wear glasses or contacts but you're not running around trying to find the solution to make you stop needing them. so quit doing it with every other aid just because it reminds you of old or sick people.
especially bc most of y'all don't want to have that reaction when it comes to chronic pain, fatigue or discomfort. i say "my joints hurt" you say "oh well :/". i say "i feel lightheaded all the time" you say "just push through it". i say "my stomach is at least a 7/10 on the pain scale every day" you say "are you sure it's actually that bad? maybe you're exaggerating".
but as soon as i pull out a cane, or a shower chair, or a spinny chair for when im cooking in the kitchen, and i say "finally, im getting really good help!" . that's when you care. and all you want to do is take that away as soon as possible.
you just don't want to fucking see disabled ppl be disabled.
you don't want to have to look at it. you don't want to have to listen to it. you don't want to have to be reminded of it.
but too fucking bad !! i don't care !! im naming and decorating my canes !! they will be the loudest part of my outfits !! the same will go for a rollator if i'll still need one in the future !! i'm going to talk about how i'm disabled regardless of if anyone else can hear me !! because i am !! why should i hide just because YOU don't like it !! close your eyes !!!!!!