I Believe in Invisible Illness
Personally, I never think twice before entering new places. People everywhere, every day, come and go as they please between different buildings. Â It never occurred to me that something seemingly so simple could be such an obstacle for someone. I believe in invisible illness.
At first my sister would freeze up. Â Concerned, my parents and I would ask what was wrong, and she would simply utter the words, âI feel weirdâ. Â It became a running joke in our family whenever we were unable to express how we felt, weâd exclaim, âI feel weirdâ! Little did we know, our joke wasnât a joke at all. Â One day, after months of watching my sister struggle, my mother was venting to a friend about how it was impossible to bring Jenna into new spaces, as a change in temperature or lighting set her off. Â She went on in frustration, explaining how difficult it was to watch my sister struggle and the only clue she could give us to shed light on her situation was that she âfelt weird.â It was then that our family friend, who happens to be a nurse, asked if she could possibly be suffering from derealization. It was that day that âfeeling weirdâ was given a name, and that day, my sister was finally given validation that she wasnât crazy.
All I wanted was to take my baby sister back to school shopping, after all, sheâs going to high school. My friend and I took Jenna and her friend, Ken, to get school supplies. As soon as the red doors automatically slid open, I knew it was going to be difficult. Fluorescent lighting. No windows. Crowded. Target had been a stumbling block before, but never being able to tell when the derealization would hit, we made the attempt. The back to school section was in the back corner of the store, so not only did we have to enter, but trek across the bright, busy, enclosed space. Jennaâs friend has spent enough time with her to know her struggles and grabbed a shopping cart; not for the school supplies, but to push my sister in because she knew when she felt like this it was difficult for her to walk. Not even past the shopping carts, I watched as it seemed like my sister lost control of her body. Â Not yet in the cart, she crouched down a bit, clutching her head and stomach as if to make sure they were still there. Â Pulling hard at my arm and saying things that didnât make sense to me, I lost it. She had pinched me and grabbed on so forcefully that it actually hurt me. Â It wasnât until then that I could make sense of the fact that she claims she has no control over what she says or does in this state. As all sisters do, Jenna and I fight, but I know she would never create such a scene and hurt me, especially when I was doing something for her!
Derealization, also sometimes called depersonalization, is a unique anxiety disorder causing an âunrealâ or out of body experience. Â We took this newfound information and ran with it! Doing research, and talking with therapists and other medical professionals, we came to learn that my what my sister is struggling with is very real. Struggling myself with anxiety, I felt guilty that I had made a joke out of a symptom of her illness. Iâve learned so much from her and her diagnosis. Â She has opened my eyes and inspired me to listen and learn about this disorder that there is very little research on. Already having a love of psychology, watching her struggle made my decision to major in psychology seemed like a no-brainer. Derealization, for my sister at least, has become debilitating. She tells me she âfeels dead or feels like sheâs dreamingâ. Have you ever had one of those dreams where youâre both in it, and seeing it from a birdâs eye view? She describes it kind of like that, she says she feels like a ghost, like sheâs not actually physically in her body.
If someone has some sort of invisible handicap, donât belittle his or her struggle just because you canât see it. Listen to their struggle and ask if there are ways you can help.  If you canât or wonât help, do me one favor; acknowledge their illness. Acknowledge their struggle, and be patient. You may not understand it, which is okay, but not to believe in it is ignorant; itâs not a choice. Those with invisible illness have about as much of a say in the matter as you do about having acne, or catching a cold.  Jenna is fourteen.  She should be out with her friends, at the mallâŚ. Instead she spends most of her time alone in her room. She âhangs outâ with her friends on FaceTime in the comfort of her own home so that she doesnât have to enter into a building that might cause her to fall to her knees. It kills me knowing all of the experiences she misses out on.  I canât imagine how trapped she must feel.  I believe that no one deserves to feel this way. I believe that itâs struggle enough without the outside world questioning whether or not what you feel is âreal.â I believe in invisible illness.















