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@the-p-word
back to cold weather, back to long sleeves, back to hiding...

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Have you tried that defining gel everyone is claiming works? I'm gonna give it a shot cause I've tried everything for 10 years and nothing seems to stop it not even a new healthy diet I adopted over the past year
i have no idea what you are talking about surprisingly, haha! i feel like i've tried EEEEVERYTHING though. i think we all know how that feels! i used to have a laundry basket filled with lotions, shampoos, etc that just never worked out.
Thank you so much. I read your post about psoriasis and tattoos and I finally feel like someone understands. My mom isn so against it, saying that my skin will get worse. But tattoos will make it more bearable for me to wear short sleeves in public, in hope that other people will be inspired.
my mom really did not like the idea of me having lots of tattoos. but she didn't understand the underlying importance of it for me - and a lot of people won't - but all that matters is what it means to *you*. <3
i really just wish it was autumn already, this heat is driving me nuts. i flare up bad in the summer (which is weird, but what happens) + i just want some relief. i'm really trying to stay positive, but some days it is so hard.
Hello there, I've been a psoriasis sufferer for the past 5 years and I recently went to my doctor about it. And just to destroy the myths, you're stress levels/diet/exercise doesn't affect your psoriasis. But what my doctor referred me to, is actually helping clear it fully, I go to Phototherapy treatment and that's for a few minutes every few days, and get doctors to apply Dithranol ointment every day, nothing had EVER worked on me before this, just passing on experiences to fellow sufferers <3
hi! as a sufferer for 20+ years, i'd like to say that i have noticed my psoriasis is at it's worst when i'm stressed. who told you that was a myth? not trying to be rude at all, just curious. everyone is different when it comes to this disease, but i have heard diet changes get rid of it completely in certain folks. i don't really limit my diet (i stray away from most dairy bc it hurts my stomach) but i've noticed a slight change in the thickness of my plaques after exercising, lots + lots of water, + better eating (more veggies + fruits). of course, these things just help the quality of life (i think so, anyway) so it's really a change for the better regardless of my psoriasis. unlike you tho, i don't go to derms anymore. after really bad side effects w biologics (which is all derms request of me anymore on account of the severity of mine) i am just trying my own things naturally + seeing how they work. medicines can be so great for some people + i'm glad they are an option, but they just turned my skin into a thin, horrid mess (i got stretch marks on my arms + legs as a child from too many steroid creams - also known as "onion skin" side effect) so i'm really just seeing how my own methods work for now. best of luck to you. xo

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Hi, I came across your post about how severe other people's psoriasis is and wanted to reply. Mine is a similar level of severity as yours, based on what you said; I don't get it on my hands or feet but I get it everywhere else. I'm currently taking medication for it, which has helped to calm it down quite a lot, but it's still pretty bad, and I'm still having to use moisturiser and creams.
what meds are you taking, just out of curiosity? right now i am really only moisturising well (w coconut oil, witch hazel/glycerin mix, + neutrogena moisture wrap) + exercising lightly when i'm not in a ton of pain + trying to eat more veggies + fruits. so far it has not been a crazy difference but it has lightened up a bit. however the heat from summer also makes me flare up like crazy so it's hard to tell. xo
Thank you for your blog. I went to the rheumatologist today which is always extremely depressing. It helps to know that I am not alone.
oh, that is a big reason why i haven't been to a derm in ages. after biologics gave me too many bad side effects + that's all derms ever request of me to do (because mine is so severe, it's their go-to) i have just avoided them. probably not the best idea, but i am so sick of biologics (they may work brilliantly for some people, but they gave me horrible side effects + very temporary relief w an AWFUL vengeance afterward, which IMO is worse than just having full blown psoriasis). chin up, darlin'. yr not alone xo
severity
i'm curious as to how severe others psoriasis is - right now mine is covering most of my body including my hands and face :(
has anyone tried using a personal sized uvb wand? i've only heard few things about them but i'd really be interested in trying one if i could afford to, i've had success w tanning salons in the past but there isn't one very closeby to me now
psoriasis, please go away because it's fucking summer and i'm tired of hiding indoors and looking at you

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I quit smoking. Here's seeing if my psoriasis acts up because I'm more stressed, or gets better because I'm removing one of my vices.
"Look at her neck. What is that? That's disgusting." That's only part of the conversation that took place on the bus behind me. They were talking about my psoriasis. They were uninformed and cruel, and will probably never think of it again. Unfortunately for me, I get to live with it for a lifetime. Every time I want to forget it, it's there. Every time they walk outside in shorts and tank tops, I'll walk out in a cardigan and pants. I wish I could have turned around and told them that, but ignorance is bliss, I guess. Why try to be kind or consider someone else before making cruel comments that ruin their day. I was ashamed and embarrassed for something I have no control over, and that's not fair. Words can hurt, think before you use them.
If thereβs one thing Iβm sick of itβs people who try to tell me how to fix my skin without me asking. I used to appreciate the empathy and advice. At first I would hear the person out and thank them for their suggestions. At this point Iβm over it. People look at my skin and say βoh I had that on...
As Spring arrives in Portland, so do short sleeves, shorts, and bathing suits.Β
Another reminder of a summer I'll spend inside. Again.
It's not that I don't want to be that person that just doesn't care what people think, does what they want, and just ignores everything else. I want to be that person SO bad. I want to say that I don't mind the staring-at-me-like-I'm-a-zombie, or the awkward questions, but I do. I do on a level where I can't bear to deal with it. As much as I'd love to go on a hike, or to the river, or just really be outside comfortably - I can't. Not yet. I haven't made it to that point.
Isn't it weird to think that I might spend my entire life inside? It's not like I'm going to wake up tomorrow without my chronic illness...
Hey have you tried changing your diet? I have psoriasis as well and have been doing the Jason Vale Skin Cleanse Juice diet for 3 weeks now and have seen significant improvement! All the P on my head and arms is gone and the spots on my body and legs are lightening up and seem to be going away! I really think diet is the answer. Its hard but hopefully worth it
I have a pretty hard time changing my diet. I've tried going gluten-free, but stopped after a few months with no real changes. It's difficult to convince myself to change things I enjoy for the sake of an illness I didn't ask for, although I have tried. I also have noticed most things I've tried - including biologics, ointments, and diet changes - that produce any positive results, never last, and my psoriasis comes back even worse. :(

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Thank you so much for creating this blog. I also have sever psoriasis and got it my junior year in high school. Since then it has been the biggest burden on my life. I try not to get too down on myself but i feel so lonely all the time, and i have anxiety about the future and being able to find someone who will want to be with me because of it. Its so hard some days, its nice to know im not alone.
The main reason I created this blog was to feel less alone and hopefully, make someone else feel less alone. Psoriasis can make you feel lonely, depressed, and frustrated (at least for me it does). Because I don't really know anyone besides my sister that has it, creating this blog has given me a direct way to talk to other people experiencing the same things I do. It's hard, and life is definitely way different when you have a chronic illness, but you're not alone. :)
Is it possible to have psoriasis without skin problems? I went to the doctor cause I have joint pain all over along with other symptoms and she noticed my nails have pits in them and said that's a sign of psoriasis but I don't see how. She really seemed knowledgeable so I don't want to doubt her, but still... The most I have wrong with my skin is maybe dryness and itchiness sometimes but it's not even enough to be labeled as a "symptom". I just wanted your personal opinion/take on it.
Well, I'm not a doctor nor can I really give any medical advice at all, but I can only assume that it's possible. Auto-immune diseases are pretty tricky beasts. From what it sounds like, you might have psoriatic arthritis and if you have that, it's possible to get psoriasis in your nails as well (I have it there, and I get "pitting" like you said, along with Beau's lines). I would assume since it's possible to have psoriasis only on your scalp, or only on certain parts of the body, that it's possible to only have it in your nails, or affecting your joints. I have it everywhere, but not everyone does. Just my opinion, but I'll bet your doctor knows what she's talking about! :)