#specialneedsmama

To all the Medical Parents & Caregivers :

YOU are not ALONE.

I think most of us always are trying to achieve the impossible for our kids, and as a result, even if we don't end up at the ULTIMATE goal(s), we land somewhere near it... and I think it's safe to say, that for most us - that works just fine too

Today.... be more compassionate. 🌸

I used to always think before that I was almost like Zaza's personal assistant... but now, even more so, b/c I'm literally scheduling zoom meetings with the therapist and teachers all week, or answering emails everyday, on her behalf. How many gahtdang times does everyone need to check-in tho?!.... for example, we've been on the phone throughout the entire day with different people while I'm trying to legit work & meet a tight a$$ deadline, at the same time. Fck my work meetings tho right, between Dd, Za & her nurses when they're here(hollering about who has coronavirus now🙄😒), no one can see I'm trying to concentrate so I've been taking conference calls in the bathroom🤫... other than that....

After my trainings/meetings for work around 830am, Azana has pt @9am thru Zoom, then her feed 930am, then bathe around 11am, if we couldn't get in early around 8am, then her home hospital teacher through Meet at 12pm, then another feed at 1pm, then nap @2pm, then another meeting with Speech through Zoom at 3pm, & stander time for 2hrs after that. Phone calls & emails (for the therapist I dont care to see or talk to right now bc I'm socially exhausted) returned for about an hr, then the necessary customer service calls to make sure our shit doesn't turn off.

Oh shoot what is DD doing?! His teacher wants to meet through Zoom too! Then, email the teachers back, check the progress, fix the attitude cus you cant play Fortnite all damn day. Can't forget the boys brain will turn to mush if he doesn't use it.

Wait, did furboy go out yet cus he's staring at me again?! Thank goodness he doesn't have a Zoom meeting too. Ok, then maybe I can catchup on work for a couple hrs round 4pm...then 4pm turns into 6pm.. cus I have real life ADD &now Darryl's home, so finally a grown up i can vent to!!

By 8pm, I feel like parading around the house cus the kids are almost ready for bed...🤯. I'm not complaining I'm just saying, 1 thing at a time y'all. Damn. My human ass is kinda tired🥴

1 thing for certain , even though sometimes I get stressed the heck out, I thank God for technology and that no one calls or schedules close to 5pm around here 😅..& at least we can still try to keep this ship from sinking.