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holy fucking shit this is what happened to me
asthma drug singulair has been causing despair, hallucinations, and suicidality especially in kids and teens since 1998, quietly added to warning label in 2020 (NY times article gift link)
edit: don’t discontinue your medication without talking to your doctor, especially one with withdrawal effects.
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Making a Dr. Wilson Tumblr was my best idea ever.
ALVIN 2.0: And mine!
Our best idea ever.
Anyway…
Since I stopped the Singulair allergy med that it turns out was giving me constant headaches, making me extremely emotionally dysregulated, and causing horrendous brain fog, my ADHD brain has been spitting out ideas nonstop and allowing me to like…expand on 5-6 ideas at once. That’s pretty cool.
I like this new normal. I’m not having the “Do I need ADHD meds full time?” crisis nearly as much. The candy and music and exercise can work for more than 3 days in a row now! Because I’m not getting overstimulating migraine attacks! Who knew!?
With our external systems to lean on, our executive function has improved a TON! (Even Alvin’s) Who needs a quiet brain!? Not us! Let the ideas flooooow! Let the crazy random connections exist!
For the first time in ages, the munks and I can come home from work and NOT lose ourselves doomscrolling! We don’t have to just stare at a wall and sit in a chair. We can DRAW! And Write! And task switch like nobody’s business!
I can’t wait to talk about all the mini fic ideas so you can help us decide which ones to focus on next.
& then i got vivid nightmares every day 4 a week straight.. !
Holy crap. Just found out that an allergy medication I was taking when I went through a huge mental health spiral has a black box warning because it's known to cause severe neuropsychiatric problems in some patients. I was already having a rough time (it was during covid, so there was all *handwave* that going on), but this explains a lot
What is wrong with me that makes me become homicidal when my leukotrine is inhibited??!! First Singulair and now Zyflo??? Wtf??
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UK medicines regulator says information on boxes of montelukast will alert users to risk of mood and behaviour changes
The Medicines and Healthcare products Regulatory Agency (MHRA) announced last week that more prominent warnings would be added to the information provided on boxes of the asthma drug montelukast, sold under the brand name Singulair.
Officials announced the move after concerns were raised by families over reported side effects, which can include sleep disorders, aggression and depression. Many parents say they were not properly warned of the risks.
fucking so weird to have another brush with psychosis, this one much more pronounced and severe than my last episodes. I always expected I'd have another psychotic break due to stress, that I'd develop schizophrenia in my 20s (I still could I guess?). Instead it's due to a tiny pill, not even for my mental health but for allergies. This tiny thing warped my brain for a month, changed my personality, my beliefs. Made me hear things made me see things. Sucked me into a black hole. I came out with fractured memory and my life fucked up. Hopefully not beyond repair, but it's BAD right now man. Really fucking bad. I am saddled with the knowledge that if I had been prescribed this while living alone, I would have ended my life almost certainly. This terrifies me. I don't want to die. I could have.
It's like someone came in fucked up my life and left, except that someone was me under the influence of a drug I never should've been prescribed. It has a black box fda warning for mental health, psychosis and suicidality. It isn't supposed to be prescribed to patients with serious mental health histories. I should have never been given it.
And here I sit, two months away, traumatized again by the medical system, having to rebuild my relationship with my partner from the ground up. This is sick this is fucked up. This should not have happened.
CW: mental illness, drug impairment This is not what I wanted to be posting about in the leadup to my birthday, but I know some of my followers are here because of my MS posts, and I want to do what I can to save them from the experience I just had. Back in September, my neurologist told me that Singulair, an asthma medication, was in studies as an MS therapy, and she asked if I wanted to give it a try. I didn’t think twice about it. I’ve been on many prescription medications since my diagnosis and never had a bad side effect from any of them. This time I was struck by lightning. In 2020, the FDA gave Singulair a Black Box warning on the brand package. Black Box warnings are most serious. Rarely, Singulair can provoke neuropsychiatric events including but not limited to agitation, aggression, depression, sleep disturbances, attention and memory impairment, and suicidal thoughts and behavior. I didn’t know any of this because I wasn’t taking the branded, packaged medication, but the generic version, montelukast. It turned me into the worst version of myself in two months. Every bit of anxiety, anger, and sadness I’ve felt over the past few years was stirred hard and heated until it boiled over. I was constantly furious, terrified, and hopeless, all day, every day, for weeks. It happened gradually, but by late October I was a complete wreck, and I’d been making my nightmare everyone else’s problem. All my loved ones were in the splash zone. I’d still be in that mental space if I hadn’t nearly nuked a cherished friendship and been forced to take stock of where my mind's at. I was absolutely certain, in the storm, that I was fine: that the vicious intensity of my feelings was normal and rational, and that anyone who wasn’t on the same page was callous and inattentive. I was certain that my behavior was correct and justified. I’m horrified by how unhinged I was. I don’t trust my memories. This past week, I’ve been following directions to wean myself off the montelukast, and I’ve been having rough conversations with my friends and family about my words and actions over the past two months. I’m posting all of this immediately, as awful and embarrassing as it is, because I want you all not to start this medication right now and then have the most horrible holiday season ever. If MS doctors are now likely to suggest Singulair/montelukast, please be aware of the dangers, especially if you’re already struggling with anxiety or depression, which I think is probably most of us. Be well, fam. I love you. ❤️🌹❤️
