#sclerodermaawareness

My video on Barcoft TV has exceeded 5 million views! I’m thankful for your kind messages and sharing YOUR personal stories with me. You can find the full video on Barcoft’s Youtube Page for their SHAKE MY BEAUTY SERIES: My hardening Skin is Turning Me Into A Doll.🖤#scleroderma #thetragicdoll #tragicdoll #nyc #barcoft #film #youtube #nyc #newyork #love #gothic #fashion #art #music #warrior #goth #sclerodermaawareness https://www.instagram.com/p/BqiRDseA-D9/?utm_source=ig_tumblr_share&igshid=t7x5bpk6vsrg

World Scleroderma Day , June 29 Turn up, join us at LASUTH tomorrow, details on the pics. #scleroderma #worldsclerodermaday #sclerodermaawareness #meandsclero #meandsclerofoundtaion #sclerodermainnigeria #sclerodermainafrica (at Lagos, Nigeria) https://www.instagram.com/p/BzQTT7pHG1v/?igshid=1hir0ukji0cll

"A Journey I Can't Forget" It's been a crazy, week/month/year but I'm still truckin. Wish I could sit down to write but there's a lot left I gotta do. So for now please enjoy me getting inspired by my Heavenly Father, the One who carries me... #blessed #onedayatatime #scleroderma #sclerodermaawareness #sclerodermasucks #arthritissucks #pulmonaryfibrosisawareness #GERDSsucks #fightthefatigue #sclerodermawarrior #beatingscleroderma #believinginmyhealing #Godistrulygood #ironsharpensiron #videoproject #instaedit #instaartist #water #bubbles #bubbleart #instaphotographer #instablogger #inspired #JESUSismymuse #spotify #musicinspirations #hangoutgems https://open.spotify.com/track/0AISJtBDtZXgB2fuvcjQEN?si=7a90DvwATWOrzlgxWraQMA https://youtu.be/A7CfX10jgnw #lasthashtag https://www.instagram.com/p/BmSBX9xlA71/?utm_source=ig_tumblr_share&igshid=1vybowtfzfmn1

Just found this post by accident, but must get in touch with @talktorebekah #Repost from @_chelswhoelse_ ・・・ For today’s #WCW, giving a shout out to the lovely Rebekah Roberts, who opens up about losing her mom to #Scleroderma. I found many similarities in her story....goes to show that watching your parent’s illness slowly progress throughout your life is challenging, heartbreaking, as well as eye-opening, no matter what illness they are combatting. 💫 • "My mom was very strong. She always tried to find a way to work around her disability. I also remember even though her appearance dramatically changed -- which occasionally was discouraging for her -- her identity was not placed in her looks. I remember other moms being too embarrassed to take a photo because they thought they were "fat" or didn't have makeup on. My mom was never like that, which sent a strong message to me about self-love and self-worth." @talktorebekah • #WomanCrushWednesday #SickChicks #SclerodermaAwareness #LosingAParent.

Part 2: I am trapped in my own skin, literally but that doesn't stop me from dancing. "Nature of Inviting"- IAMX! You are my world @iamx ✨ #scleroderma #dance #warrior #nyc #newyork #siren #worldofdance #goth #gothic #style #fashion #victorian #dark #siren #jewlery #tragicdoll #burgundy #tragicdollcreations #sclerodermafighter #sclerodermaawareness #sclerodermawarriors #sclerodermafoundation #music #chriscorner #iamx

#sclerodermaawareness #sclerodermaawarenessmonth #scleroderma #formysister #findacure #research #donate

Seriously, I have some AMAZING friends. Thank you! - 83% of donation goal reached. Donate today to help support "Stepping Out To Cure Scleroderma" - also join me at the walk this sunday, June 11 at 9:00am at Riverside Park (96th St in Manhattan) to help raise funds.💙#scleroderma #nyc #newyork #love #fundraiser #team #goth #sclerodermafighter #sclerodermaawareness #sclerodermafoundation #gothic #teal #fashion #style #events #walk #donation #happy #goal #tragicdoll

Trapped in my Scleroderma Skin. I'm solidifying from the inside out. Unsew me. Prints available via my Etsy shop - tragicdollcreations.etsy.com - $10 - 100% of the proceeds will be donated to the Scleroderma Foundation. 💀#scleroderma #nyc #newyork #photography #sclerodermaawareness #sclerodermafoundation #goth #gothic #art #photography #dark #heart #anatomy #strange #doll #creepy #donation #fundraiser #community #tragicdoll #sickness