#napcave

#nncon2022 #ncon22

That’s why we do this. Cataplexy is horrendous but when it’s bad enough to fear emotion and scares other people... it tends to get a doctors attention as well as all others whom have witnessed. Absence and chance things like your PT(physical therapy) and my grandma 👵 made it click... u don’t see cataplexy without narcolepsy ( with a small exception). Is the diagnosis of narcolepsy terrifying? no I don’t think so. It is what it is. The drip finally stops. See u after my doctor cures me! Oh bojack there is no cure, only treatment of Narcolepsy symptoms . Before you get bummed out … know that you are a true Badass Advocate Superhero whom will achieve far great feats because of your grit which only grows through hardship or disability. It took a Blind Man to see Jesus for what He Truly is! #putstigmatobed #napcave “When you are chronically ill You must celebrate all little triumphs, because It takes so much hard work and perseverance plus strength to achieve. Normals may win the race, but they aren’t running uphill with a bolder on their back. Until #blacklivesmatter, #disabledlives can’t matter.” Rachel Nesmith I’ve lost more Weight! No more foot ankle swelling nor highBP since my cardiologist adjusted my heart medicine as well as eating a ‘ketoesk” diet! Down from 230 to 177 so far! Here’s the proof! #Accountability #hypertension #edema #weightlossjourney When the #twintowers came down, my life came crashing all around. #september11th2001 #september11th #narcolepsy #sleepparalysis #weremember911 #narcolepsy #worldnarcolepsyday2020 #suddenlysleepysaturday2020 #knownarcolepsy #sleepin2020 #wheniwakeup Narcolepsy: Not Alone Grab my hand - #narcolepsy is a lot more common most people don’t know they have it. And when you do you’re doc won’t be your therapist. All the hurt, loss, we must seek #narcolepsyfriends #narcolepsyawareness #narcolepsy #narcolepsynotalone #sleepin2020 #raredisease #rarediseaseweek #rarediseaseday #rarelivesmatter #cataplexy #hypocretin #idiopathichypersomnia #putstigmatobed #napcave “When you are chronically ill You must celebrate all little triumphs, because It takes so much hard work and perseverance plus strength (at Aubrey, Texas) https://www.instagram.com/p/CFfR9cjjjUm/?igshid=c7dhkp3ukfp6

http://tinyurl.com/wvgrr27 chronically-epic-ringer-t-shirt

If you are going through Hell, Keep Going.

A winner is a Dreamer who doesn't give up!

Rachel Nesmith