Just scheduled a bunch of vaccinations for this Thursday, and I'm so happy to be getting them!! Sending so much love to my fellow chronically ill ppl today <3
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Just scheduled a bunch of vaccinations for this Thursday, and I'm so happy to be getting them!! Sending so much love to my fellow chronically ill ppl today <3

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I know there's DSM shit for rapidly changing self-perception and fluctuating self-worth. I think my autism does play a role, in that processing everything ever manually is overwhelming as fuck, and is part of why I always wrestle with doubting my own perception of things, including my perception of myself.
It really helps to be in a familiar environment and in some semblance of a routine. So it shouldn't surprise me (or anyone) that I struggle both to properly regulate my emotions and to be aware of my body and its various cues.
I struggle to rest largely bc of hypervigilance. This, too, is magnified by being away from home.
Idk if this is anything. I feel like I'm really not built to live in this world sometimes. Like I'm not cut out for it. I want so desperately to live and live fully. But let me be very clear in saying that taking care of myself day in and day out is an incredibly difficult job and not one I'm able to do on my own.
So, I guess as a message to my future self:
If you think:
A. you're maybe the worst, and you should just die
B. You're worthless and unlovable and bring nothing to the table
C. You are weirdly emotional about things right now.
D. Any/all of the above
Then: you need to sleep. You need to not merely rest. You need Super Ultra Mega Restβalso known as sleep. You need food and mega rest, and then you can circle back to this and realize you're actually pretty cool and impressive and resilient as fuck and that the truth of whatever situation is likely somewhere in the middle of things. The answers aren't tidy or easy or simple. They're complicated and nuanced. But you don't need to doubt yourself and your worth so much. Your job right now is only to rest. I love you. We'll be okay β€οΈ
Hyper-aware of my ability to perceive myself. Hmm.
Why after full night sleep I wake up every morning feeling like I was run over by an 18-Wheeler?
Pots stuff:
I don't realize how much the smaller meals help until I have a bit too much, and it just kills me. The blood rushes to my stomach to break down the food, and I feel incredibly bloated and horrible.
Still trying to get good at figuring out where that line is of "yeah, I'm still hungry, and the food is good, but I need to stop eating now, or my pots will flare up big time and I'll regret it."
It helps me to remember I can enjoy the specific meal/taste I'm having again another day. It also helps me to eat slower and savor the meals, which in turn helps with the pots, too.
I also think the times I get backed up and it's hard to get stool moving through my system are likely the times when I've eaten a bit too much.
I'm slowly learning how to do this. Sometimes, I'll mess up like today, but I know I'll get better at listening to my body.

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I am still unlearning my internalized ableism every single day.
Turns out this whole disability thing is disabling??? Wtf??
Am I dying or is it just painful digestion